Abstract
BackgroundThere has been an identified need for greater patient and family member involvement in healthcare. This is particularly relevant in an intensive care unit (ICU), as the family provides a key communicative and practical link between patient and clinician. Family members have been deemed a positive beneficial influence on ICU care and recovery processes, yet they themselves are often emotionally affected after discharge. There has been no standardised evidenced-based approach which explores research on family member involvement and the range and quality of contributions remain unclear. This project will undertake a systematic review to assess the evidence base for interventions designed to promote patient and family member involvement in adult intensive care settings and develop a comprehensive typology of interventions for use by clinicians, patients and carers.MethodsThe following databases will be searched without date restriction: MEDLINE, EMBASE and CINAHL, as well as the Cochrane Central Register of Controlled Trials, Joanna Briggs and Cochrane Libraries. Manual searches of recent back issues of leading ICU and patient experience journals will also be undertaken, as will the reference lists of included studies. Unpublished literature will be sought through grey literature databases, including GreyLit and OpenGrey. All evaluation studies that consider intervention activities to promote patient and family member involvement in adult ICUs will be included; all research designs will be eligible. We will seek to include studies that report on a mixture of relevant outcomes for patients and family members. s and papers will be independently screened by at least two members of the team to determine their inclusion. Included papers will be assessed for methodological rigour using a standard rating approach, which assesses ‘quality of study’ and ‘quality of information’. Quality assessment will be completed by at least two members of the team. Data on interventions, evaluation methods and outcomes will be collated using a predetermined extraction table. These are likely to be heterogeneous in nature, which will mean that the review will follow a narrative approach to synthesis.DiscussionThe review will provide valuable and rigorous insight into the range and quality of interventions available to promote patient and family member involvement in ICU. This is the first step towards addressing the absence of a synthesis of research for this context, and will, in addition, develop a typology of available interventions that will help service users and clinicians make informed decisions about the approaches to patient and family member involvement which they might want to adopt.Systematic review registrationPROSPERO (CRD42018086325).
Highlights
There has been an identified need for greater patient and family member involvement in healthcare
Azoulay et al [9] surveyed family members of patients who have been in intensive care unit (ICU) to find that 90 days after discharge more than a third (34%) of them suffered from posttraumatic stress syndrome (PTSD) symptoms
We will complete a systematic review of interventions designed to promote patient and family member involvement in adult intensive care settings and, in doing so, we will develop a classification framework/ matrix, known as a typology, of existing interventions that take into account their effectiveness and quality of their evidence base
Summary
There has been an identified need for greater patient and family member involvement in healthcare This is relevant in an intensive care unit (ICU), as the family provides a key communicative and practical link between patient and clinician. There has been no standardised evidenced-based approach which explores research on family member involvement and the range and quality of contributions remain unclear. This project will undertake a systematic review to assess the evidence base for interventions designed to promote patient and family member involvement in adult intensive care settings and develop a comprehensive typology of interventions for use by clinicians, patients and carers. For the purposes of this systematic review protocol, patient and family member involvement refers to the interaction of different professionals to improve care by ensuring patients and their families are involved in decision-making, sharing of information, power and responsibility for patient needs and choices
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