Increasing Community Participation in Public Health Research: Applications for Concept Mapping Methodology.

Abstract

Concept mapping builds on other qualitative methods widely used in community-engaged research and community-based participatory research (CBPR) approaches by adding intentional participatory elements to engage stakeholders and increased data collection structure via built-in quantitative elements. This article presents examples of community-based studies using concept mapping to illustrate how public health researchers can use this method to incorporate participatory elements in projects that vary by research objective and degrees of community engagement. Drawing from our previous experience, we present four participatory concept mapping projects. These illustrative research examples focus on projects developed by academic-community partnerships, including a hospital-based community needs assessment, the creation of a domestic violence research agenda, the study of trust in community-academic partnerships, and the development of strategies to address breast cancer through a county-level collaborative. Through the use of illustrative examples, we provide four research-based applications of concept mapping with a variety of community engagement levels. These examples show how the use of concept mapping as a research method allows for the direct participation of community stakeholders to move research agendas forward. Concept mapping generates this forward movement in public health research through the production of visual representations and action-oriented results that promote the ability of stakeholders to have increased ownership in the improvement of health outcomes in their communities.