Abstract

BackgroundWe describe the development and evaluation of a secure Web-based system for the purpose of collaborative care called Loop. Loop assembles the team of care with the patient as an integral member of the team in a secure space.ObjectiveThe objectives of this paper are to present the iterative design of the separate views for health care providers (HCPs) within each patient’s secure space and examine patients’, caregivers’, and HCPs’ perspectives on this separate view for HCP-only communication.MethodsThe overall research program includes cycles of ethnography, prototyping, usability testing, and pilot testing. This paper describes the usability testing phase that directly informed development. A descriptive qualitative approach was used to analyze participant perspectives that emerged during usability testing.ResultsDuring usability testing, we sampled 89 participants from three user groups: 23 patients, 19 caregivers, and 47 HCPs. Almost all perspectives from the three user groups supported the need for an HCP-only communication view. In an earlier prototype, the visual presentation caused confusion among HCPs when reading and composing messages about whether a message was visible to the patient. Usability testing guided us to design a more deliberate distinction between posting in the Patient and Team view and the Health Care Provider Only view at the time of composing a message, which once posted is distinguished by an icon.ConclusionsThe team made a decision to incorporate an HCP-only communication view based on findings during earlier phases of work. During usability testing we tested the separate communication views, and all groups supported this partition. We spent considerable effort designing the partition; however, preliminary findings from the next phase of evaluation, pilot testing, show that the Patient and Team communication is predominantly being used. This demonstrates the importance of a subsequent phase of the clinical trial of Loop to validate the concept and design.

Highlights

  • Four types of chronic disease – cardiovascular disease, cancers, chronic obstructive pulmonary disease, and diabetes – kill an estimated 153,000 Canadians every year, account for nearly threequarters of all deaths in the country, and are the major causes of premature death and hospitalization

  • The biggest killer is cardiovascular disease, which claimed the lives of 76,321 Canadians in 2000, and accounted for 35% of all deaths in the country

  • Arthritis and rheumatism afflict 14% of Canadians, with Nova Scotians having the highest rates at 20%

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Summary

EXECUTIVE SUMMARY

Four types of chronic disease – cardiovascular disease, cancers, chronic obstructive pulmonary disease, and diabetes – kill an estimated 153,000 Canadians every year, account for nearly threequarters of all deaths in the country, and are the major causes of premature death and hospitalization. Combining direct medical costs ($38.9 billion) and indirect productivity losses ($54.4 billion), the total economic burden of seven types of chronic illness (cardiovascular diseases, cancer, chronic respiratory ailments, diabetes, musculoskeletal disorders, diseases of the nervous system and sense organs, and mental illness), exceeds $93 billion a year. The Cost of Chronic Disease study was originally done for Nova Scotia, and this report is the first to present estimates for Canada It indicates that Canada’s high rates of chronic illness can be reduced through concerted health promotion initiatives that reduce risk behaviours and conditions. The evidence demonstrates that the country’s escalating health care costs can be significantly lowered by improving the health of the population and thereby reducing the need and demand for medical care

PART I COSTS OF CHRONIC DISEASE
Deaths and Costs Due to Chronic Disease in Canada
Cardiovascular Diseases
Cancers
Diabetes
Chronic Obstructive Pulmonary Diseases
Musculoskeletal Disorders
Reducing Chronic Disease Risk Factors and Health Care Costs83
Tobacco and Chronic Illness
Secondary and Tertiary Prevention
Primary Prevention
A Note on Supplements
Physical Inactivity
Lack of Screening
Pap Smear Tests
Blood Pressure Checkup
PART III SOCIOECONOMIC DETERMINANTS OF CHRONIC DISEASE
Costs of Poverty and Inequality
Poverty among Children and Single Mothers
Health Care Costs of Poverty
Costs of Homelessness
Costs of Social Exclusion and Vulnerability
Cost Effectiveness of Socioeconomic Interventions
Social Networks and Social Supports
Family and Shared Households
Social Health
Volunteers
Costs of Mental Illness
Stress and Chronic Disease
Psychosocial Interventions to Overcome Mental Illness
Delaying Diseases Associated with Old Age
The Compression of Morbidity
Reducing Illness among the Elderly
10. Effectiveness and Cost-Effectiveness of Prevention
10.1 The Challenge of Demonstrating Cost Savings
10.2 Key Elements of an Effective Health Promotion Strategy
A Note on the Precautionary Principle
11. Worksite Health Promotion
12. School-Based and Childhood Interventions
13. Clinical Preventive Services
14. Preventive Alternative Treatments

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