Abstract
The aim of this article is to analyze discrepancies and informational gaps which produce a doubly neglected version of human leptospirosis in the Brazilian public health policy. To achieve this goal, we compared data on morbidity, mortality, hospital and social costs, population profiles, vector habits, social health determinants and diagnostic practices related to leptospirosis with another disease of higher recognition in Brazil: dengue fever. Our analysis shows that the arbitrariness of criteria for assigning health priorities, the invisibility of the population profile of human leptospirosis in official data and its mimetic character in clinic corroborate the production of a version of human leptospirosis that is invisible and, because of that, doubly neglected by the Brazilian public health policy. We conclude that these discrepancies and informational gaps are related to the fact that human leptospirosis affects a population which the State has no interest in keeping alive.
Highlights
Resumo O objetivo do presente artigo é analisar as discrepâncias e lacunas informacionais que produzem uma versão duplamente negligenciada da leptospirose humana na política pública de saúde brasileira
Our analysis shows that the arbitrariness of criteria for assigning health priorities, the invisibility of the population profile of human leptospirosis in official data and its mimetic character in clinic corroborate the production of a version of human leptospirosis that is invisible and, because of that, doubly neglected by the Brazilian public health policy
We conclude that these discrepancies and informational gaps are related to the fact that human leptospirosis affects a population which the State has no interest in keeping alive
Summary
O presente estudo fez uso de três estratégias metodológicas pautadas na análise de múltiplas fontes de pesquisa[13]: uma análise comparativa dos dados de morbidade, mortalidade e custos financeiros e sociais da dengue e da leptospirose humana na rede de saúde, seguida de uma análise comparativa das características populacionais e dos determinantes sociais de ambas as enfermidades e, por fim, um estudo de caso sobre ca-. De forma a cumprirmos a última estratégia metodológica, buscamos compreender como se produz uma lacuna nas informações sobre a leptospirose humana na prática de saúde por meio de um estudo de tipo etnográfico no qual acompanhamos a recepção, diagnóstico e tratamento de casos de pessoas que tiveram leptospirose em um hospital especializado em doenças infecciosas, com destaque a um estudo de caso sobre um usuário que teve dengue e leptospirose ao mesmo tempo. Em virtude desse último procedimento, a pesquisa foi submetida ao comitê de ética da Pontifícia Universidade Católica de São Paulo (PUC) e foi aprovada
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