Abstract
BackgroundLung Cancer is the leading cause of cancer deaths in Aotearoa New Zealand. Māori communities in particular have higher incidence and mortality rates from Lung Cancer. Diagnosis of lung cancer at an early stage can allow for curative treatment. This project aimed to document the barriers to early diagnosis and treatment of lung cancer in secondary care for Māori communities.MethodsThis project used a kaupapa Māori approach. Nine community hui (focus groups) and nine primary healthcare provider hui were carried out in five rural localities in the Midland region. Community hui included cancer patients, whānau (families), and other community members. Healthcare provider hui comprised staff members at the local primary healthcare centre, including General Practitioners and nurses. Hui data were thematically analysed.ResultsBarriers and enablers to early diagnosis of lung cancer were categorised into two broad themes: Specialist services and treatment, and whānau journey. The barriers and enablers that participants experienced in specialist services and treatment related to access to care, engagement with specialists, communication with specialist services and cultural values and respect, whereas barriers and enablers relating to the whānau journey focused on agency and the impact on whānau.ConclusionsThe study highlighted the need to improve communication within and across healthcare services, the importance of understanding the cultural needs of patients and whānau and a health system strategy that meets these needs. Findings also demonstrated the resilience of Māori and the active efforts of whānau as carers to foster health literacy in future generations.
Highlights
Lung Cancer is the leading cause of cancer deaths in Aotearoa New Zealand
community hui (CH) were led by Māori members of the Hā Ora team (JK and AR) and occurred at local meeting rooms or marae (Māori meeting houses), whereas primary healthcare provider hui (HCP) was facilitated by RL, and took place at local General Practitioner (GP) practices
Data analysis generated two key themes relating to secondary care settings: “specialist services and treatment”, and “whānau journey”, which will be discussed of this article
Summary
Lung Cancer is the leading cause of cancer deaths in Aotearoa New Zealand. Māori communities in particular have higher incidence and mortality rates from Lung Cancer. This project aimed to document the barriers to early diagnosis and treatment of lung cancer in secondary care for Māori communities He tino honore mātou e whakanui We are very honoured to ana mātou te kaupapa Hā Ora ki acknowledge those who shared their ngā iwi e whakatinana, e whakaora stories and brought to life Hā Ora. ai tēnei kaupapa ā Hā Ora ki a. For talking the te kōrero e hīkoi ana te hīkoi ki talk and walking the walk To those tēnei huarahi, kahuri kia rātou hoki who have passed on, who reside e wehi atu ki rangi whetu ma ki tua among the many stars of the o te ārai ano kia rātou e ora tonu heavens, to those living who remain ai me ngā uri e heke mai nei, with us, and for the generations to nōreira he honore ano i a mātou ki come. May rātou kōrero kia tau te rangimarie, peace, love and faith keep you safe
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