Abstract
BackgroundHuman genome editing is an area of growing prominence, with many potential therapeutic applications.Sources of dataA project by two UK charities, whose participants included fertility sector patients and practitioners and also people affected by genetic disease and rare disease. Scientific research into, and wider discussion of, genomics and genome editing.Areas of agreementThere is a need for improved public and professional understanding of genome editing.Areas of controversyThe way genome editing is discussed is often inconsistent and confusing. Simply defining and explaining the term ‘genome’ can present challenges.Growing pointsThere are approaches that lend themselves to achieving greater clarity and coherence in discussion of genome editing.Areas timely for developing researchPeople’s understanding should ideally be able to withstand and evolve alongside current developments in genome editing, rather than being tied firmly to specific aspects of genome editing (which may in future be supplanted).
Highlights
Human genome editing is an area of growing prominence, with many potential therapeutic applications.Sources of data: A project by two UK charities, whose participants included fertility sector patients and practitioners and people affected by genetic disease and rare disease
It is neither possible nor desirable to convey all of the nuances of the term ‘genome’ when discussing genome editing in public, but it is helpful to be cognisant of and attentive to these nuances
In the same way that confusing alternatives to the term ‘genome’ currently impede understanding of genome editing, so the same is true of alternatives to the term ‘editing’
Summary
Human genome editing is an area of growing prominence, with many potential therapeutic applications.Sources of data: A project by two UK charities, whose participants included fertility sector patients and practitioners and people affected by genetic disease and rare disease. Medical practitioners in the fertility sector and more generally will increasingly require an understanding of, and clear vocabulary with which to discuss, genome editing.
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