Abstract
more people show an interest in knowing their predisposition to disease [8]. Increased expectations and interest among the public may result in more support for, or at least no opposition to, the offer of new genetic tests and services, and their implementation in healthcare. But will this also lead to more use of testing? Although individuals increasingly demand services or products that are customized to their needs and choices, so far, only few people have taken the initiative to buy a (direct-to-consumer) genetic test themselves [9]. We also know that interest or genetic testing intentions are often not related to uptake. A classic example is predictive genetic testing for Huntington’s disease; although, initially, 57–84% of at-risk people reported to be interested in presymptomatic testing, the actual uptake was only 2–16% [10]. Moreover, some public concerns over genetic testing remain, for example, with regard to discrimination and privacy issues, confidentiality (access to data) and broader societal issues [2,5,8].
Published Version
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