Five key strategic priorities of integrating patient generated health data into United Kingdom electronic health records.

Anoop Shah,Maria Wolters,Aziz Sheikh,Kathrin M. Cresswell,Brian McKinstry

doi:10.14236/jhi.v25i4.1068

Anoop Shah, Maria Wolters + Show 3 more

Open Access

https://doi.org/10.14236/jhi.v25i4.1068

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Abstract

The integration of patient/person generated health data into clinical applications is a key strategic priority internationally. However, despite agreement on the overall direction of travel, there are still a range of challenges that inhibit progress in this area. These include technology-related factors (such as interoperability), use-related factors (such as data overload) and characteristics of the strategic environment (such as existing standards). Building on important policy deliberations from the United States that aim to navigate these challenges, we here apply emerging policy frameworks to the United Kingdom and outline five key priority areas that are intended to help policy makers make important strategic decisions in attempting to integrate patient/person generated data into electronic health records.

Highlights

There is an increasing focus on digital data to improve healthcare quality, safety and efficiency.[1]
Many portable devices allow the collection of data generated by patients
In the UK, there is a policy drive to have person generated health data (PGHD) linked to electronic health records (EHRs) and facilitate patient access to their personal health records,[12,13,14] national strategic direction to achieve such effective integration is currently lacking focus

Summary

INTRODUCTION

There is an increasing focus on digital data to improve healthcare quality, safety and efficiency.[1]. Many portable devices (such as apps and wearables) allow the collection of data generated by patients Such data are commonly known as patient/person generated health data (PGHD) and may include clinical data (such as blood pressure readings) and a recording of patient/person reported outcome measures, history, activity, preferences and values.[2,3,4]. There is significant potential in learning from other countries who are actively pursuing development of PGHDrelated strategies and infrastructures.[15]

METHODS

CONCLUSIONS