Abstract
Introduction: Congenital heart disease (CHD) is the most prevalent birth defect globally. The purpose of this study was to describe parents’ perspectives of financial stressors related to having a child with CHD using a descriptive qualitative approach. Methods: Qualitative data were obtained from parents of children with CHD in a cross-sectional web-based survey study. An iterative data analysis was used to develop essential themes that enabled a rich description of 147 parents’ perspectives. Results: Parents identified five financial stressors: perpetual worries about health insurance, facing the dilemma of “making too much money,” struggling to balance work, worrying over having an emerging adult with CHD, and constant constraints due to financial needs. Discussion: As experts in pediatric care, pediatric advanced practice providers need to work with policymakers to provide further financial assistance and sufficient insurance coverage for families that struggle to balance finance for the whole family and children with CHD.
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