Abstract

To investigate the perception of family members regarding linguistic conditions and social participation of children and adolescents with speech and language impairments using the International Classification of Functioning, Disability and Health - Children and Youth Version (ICF-CY). Quali-quantitative approach research, in which a survey of medical records of 24 children/adolescents undergoing speech-language therapy and interviews with their family members was conducted. A descriptive analysis of the participants' profiles was performed, followed by a categorization of responses using the ICF-CY. All family members mentioned various aspects of speech/language categorized by the ICF-CY. Initially, they approached it as an organic issue, categorized under the component of Body Functions and Structures. Most reported different repercussions of the speech-language impairments on the domains, such as dealing with stress and speaking, qualified from mild to severe. Participants reported Environmental Factors categorized as facilitators in the immediate family's attitudes and as barriers in the social attitudes. These findings, according to the use of the ICF-CY, demonstrate that the children/adolescents' speech-language impairments, from the families' perception, are primarily understood in the body dimension. However, guided by a broader approach to health, the findings in the Activities and Participation and Environmental Factors demonstrate a broader understanding of the participants of the speech-language impairments. The results corroborate the importance of using the ICF-CY as a health care analysis tool, by incorporating functionality and participation aspects and providing subsidies for the construction of unique therapeutic projects in a broader approach to the health of the group studied.

Highlights

  • Today, the emergence of new discourses in health care is seen from a perspective of thorough care and health promotion[1,2]

  • A paradigm shift based on care and health promotion, in which the impacts of language impairments on the life of this population group are taken into consideration focusing their ability to compromise other areas - namely, education, social and family, requires a theoretical conception that contemplates these different contexts present in the daily life of children and adolescents with speech and language impairments

  • Other responses were categorized under the Activities and Participation component of the ICF-CY, when they involved the child’s behavioral issues (n=7) or other aspects related to cognitive functions (n=4)

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Summary

Introduction

The emergence of new discourses in health care is seen from a perspective of thorough care and health promotion[1,2]. It is important to recognize and value the discourse of these social actors in caring for these individuals, welcoming them and contemplating the diversity of practical and technical knowledge brought by family members and health professionals, respectively. When faced with children and adolescents with speech and language impairments in different conditions, such as stuttering, language delay, phonetic and phonological deviations etc., it is possible to observe a predominance of therapeutic approaches based on the biomedical model. From this perspective, objectives and goals are constructed from the deficit, i.e. the organic or pathological aspects[4]. A paradigm shift based on care and health promotion, in which the impacts of language impairments on the life of this population group are taken into consideration focusing their ability to compromise other areas - namely, education, social and family -, requires a theoretical conception that contemplates these different contexts present in the daily life of children and adolescents with speech and language impairments

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