Abstract

Introduction: Children born with certain anorectal malformations, spinal anomalies, and other conditions may require rectal enemas as a non-surgical bowel management option. The purpose of this study was to explore benefits and problems using Peristeen® transanal irrigation for bowel management, and to determine factors that influence whether Peristeen® is preferred over previous methods used as a non-surgical method for bowel management. Methods: An IRB-approved cross-sectional survey was conducted. Children and their caregivers, trained on use of Peristeen®, were invited to participate via MyChart® and mail to reflect on their experience with bowel management programs. Participants completed a 33-item confidential online survey. Results: Of the 49 eligible participants invited to participate, 13 completed the survey. The mean age child for children was 12.2 years. Most frequently identified diagnoses were imperforate anus (39%) and spina bifida (31%). Ninety-two percent used gravity enemas prior to switching to Peristeen®. Most frequently identified barriers for use of gravity enemas were taking too long (61%) and pain or cramping (54%). These barriers were reported less frequently related to Peristeen® use. Barriers reported most frequently for Peristeen® included holding balloon in rectum (31%) and bathroom space or layout (31%). Median time to administer Peristeen® was 45 min compared to 60 min with gravity enema. Discussion: Overall, Peristeen® users were satisfied with the system and reported barriers less frequently. Cost and use of Peristeen® was reported as a significant barrier. Further studies are needed to compare various options for transanal irrigations.

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