Abstract
New challenges and priorities are given in the EU Health programme 2007–2013 [...]
Highlights
New challenges and priorities are given in the EU Health pro- lications, grant, teaching and training activities
If challenges and priorities have been defined globally for rare diseases by Results and Discussion the European Commission, persons involved in rare anaemias have ly taken the opportunity to contribute to the empowerment of patients with rare anaemias
We thought that e with those results it could realistically help to define a consensus s regarding the criteria to be recognised as a centre of expertise for haemoglobinopathies and very rare anaemias
Summary
New challenges and priorities are given in the EU Health pro- lications, grant, teaching and training activities. Expert services for rare anaemias across Europe Beatrice Gulbis Hôpital Erasme, Université Libre de Bruxelles, European Network for Rare Congenital Anaemias, Bruxelles, Belgium Introduction chronic events, criteria (Proof) of expertise i.e. availability of specialised services, specific treatments, patients services, decision supports and registries, a link with research and existence of pub-
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