Abstract
Although extensive research has investigated the benefits of physical activity in cystic fibrosis, minimal exploration of the experiences for individuals from a qualitative, phenomenological perspective has been carried out. The aim of this study was to explore the subjective experiences of physical activity for individuals with cystic fibrosis. The health-care team, at an Adult Cystic Fibrosis Unit in the United Kingdom, recruited 12 participants to take part. Interview data were analysed using interpretative phenomenological analysis. A central theme of 'self-monitoring' emerged from the accounts and was embedded in the three super-ordinate themes.
Highlights
Cystic Fibrosis (CF) is the most common life-limiting autosomal recessively inherited disease in Caucasian populations (Bradley and Morgan, 2011), affecting over 10,000 people in the UK (Cystic Fibrosis Trust, 2013)
There seemed to be a divide within the group to the extent to which they monitored their social environment when engaging in physical activity and the impact this had on their feelings and behaviour
This study explored the subjective accounts of physical activity for 12 participants with CF
Summary
Cystic Fibrosis (CF) is the most common life-limiting autosomal recessively inherited disease in Caucasian populations (Bradley and Morgan, 2011), affecting over 10,000 people in the UK (Cystic Fibrosis Trust, 2013). The disease expresses as a result of a single cell mutation that disrupts salt and water transportation across cell membranes. This leads to the production of thick mucus, which can affect both the digestive and respiratory systems (Gjengedal et al, 2003). Harrop (2007) reported that the average life expectancy was around 32 years. Four years later in 2011, the median predicted survival reported by the Cystic Fibrosis Trust was 41.5 years (Cystic Fibrosis Trust, 2011b). Based on the current patterns the projected number of adults living with CF seems set to continue rising
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