Abstract
Research into the albinism condition remains largely focused on the medical aspects and management of the functional limitations associated with this genetic condition. Social sciences research suggests that the physical attributes of albinism still mediate social and personal interactions. This study explored psychosocial factors and health care satisfaction on a sample of individuals with albinism. Participants were recruited through the National Organization for Albinism and Hypopigmentation in the United States. A total of 58 individuals provided their responses to the online survey. Results of this study suggest that individuals with albinism participants of this study identified social participation and albinism self-concept as the two factors that challenge their psychosocial adaptation process the most. These individuals also reported satisfaction with their current health care. A better understanding of the psychological and social aspects related to albinism should lead helping professionals to a more comprehensive picture of the implications of albinism as a medical condition.
Published Version
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