Abstract
Evaluation of Home Monitoring for Patients with Cystic Fibrosis: A Feasibility Study
Highlights
Cystic fibrosis (CF) is a systemic life-shortening autosomal recessive disease that mainly affects the respiratory and digestive systems
We aim to explore the validity of equipment for home monitoring of lung functions
The highest values of FEV1 and Forced expiratory volume in six second (FEV6) in litres were collected from the VLM (VLMFEV1VLM ) FEV6 and the highest values of FEV1 and Forced Vital Capacity (FVC) in litres and percent were collected from golden standard equipment (GSE) (GSEFEV1 GSEFVC)
Summary
Cystic fibrosis (CF) is a systemic life-shortening autosomal recessive disease that mainly affects the respiratory and digestive systems. Most patients with CF are seen in the outpatient clinic every 4-6 week, where an experienced physician will evaluate the patient’s general health, nutritional status, diabetes, infections and lung function. In order to monitor patients at home, several studies have investigated the use of small handheld devices for lung function testing at home. We hypothesize that home monitoring could contribute to a more flexible outpatient clinic and increases patient empowerment for patients with CF. We aim to explore the validity of equipment for home monitoring of lung functions. We explore whether administration of intravenous antibiotics caused a change in FEV1 four weeks during and after treatment in their own home. We measure changes in quality of life and health status to explore if home monitoring affects health parameters as health perception and treatment burden
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