EPS2.05 The challenge of living with cystic fibrosis - short form - challenges experienced by parents/caregivers of children with Cystic Fibrosis in Ireland: the Irish Comparative Outcomes study (ICOS)

R Bhatnagar,N Bhardwaj,B Linnane,M Herzig,M Ni Chroinin,D Mullane,D Cox,P Mcnally,S Javadpour,B Elnazir,P Greally,L Kirwan,G Lancaster,C Glasscoe,R Segurado,K.W Southern,P Fitzpatrick

doi:10.1016/s1569-1993(23)00306-5

EPS2.05 The challenge of living with cystic fibrosis - short form - challenges experienced by parents/caregivers of children with Cystic Fibrosis in Ireland: the Irish Comparative Outcomes study (ICOS)

R Bhatnagar, N Bhardwaj + Show 15 more

https://doi.org/10.1016/s1569-1993(23)00306-5

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Journal: Journal of Cystic Fibrosis	Publication Date: Jun 1, 2023
Citations: 1

Affiliation: University College Dublin, University Hospital Limerick, University Hospital Galway, Cork University Hospital, Children's Health Ireland at Crumlin, Cystic Fibrosis Ireland, University of Liverpool

#Cystic Fibrosis #Short Form #Fibrosis In Ireland #Informal Care #Considerable Care #Newborn Screening #Burden Of Parents #Comparative Outcomes Study #CF Screening #Caregiving Burden

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Objectives: Caring for children with Cystic Fibrosis (CwCF) involves considerable informal care, posing significant burden on caregivers who are required to adapt rapidly to their role. This study evaluates caregiving burden of parents of CwCF recruited to the Irish Comparative Outcomes Study of CF (ICOS). Newborn CF Screening began in 2011.

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EPS2.05 The challenge of living with cystic fibrosis - short form - challenges experienced by parents/caregivers of children with Cystic Fibrosis in Ireland: the Irish Comparative Outcomes study (ICOS)