Epilepsy on social media in Serbian, Croatian, and Bosnian languages

Abstract

IntroductionThe Internet and social media are becoming increasingly important medical information sources, bringing advantages and disadvantages. The extent of social media use may help to develop a strategy for providing relevant information, enhancing patients’ social status, and the work of medical practitioners in chronic medical conditions such as epilepsy. AimThe aim of this study was to help better understand the factors of social media that may affect patients’ knowledge of the disease, health education, emotional stability, thinking, and decisions in the treatment process. Material and methodsWe studied the representation of epilepsy among social media users in Serbian, Croatian, and Bosnian languages. Our observational study analyzed 1000 randomized posts and videos on Facebook, Twitter, and YouTube, containing the keywords “epilepsy” or “seizure.” Posts were divided into three categories: topics, data sources, and the nature of the engagement. ResultsThe most common topic among social media users was the stigmatization of patients (31%). The most prevalent data source was support groups for PWE (45.4%). The nature of the engagement was most dominant on the occasion of the exchange of information, i.e., advice (40%). ConclusionThe participation of medical professionals on social media is not adequately represented in Serbian, Croatian, and Bosnian language platforms. The presence of medical professionals on social media could increase the credibility of the information available to users, educate patients, and reduce the prevalence of stigma.