Abstract
We linked the 2001 Scottish Census, which contains ethnicity, socio-economic and demographic data to health and death records, creating an anonymised retrospective cohort study of 4.65 million people to assess the association between ethnicity and health outcomes in Scotland. The databases contain data mostly from hospital discharge and mortality records, but also from other registers. The databases are stored in a safe haven at the National Records of Scotland (NRS). NRS is currently exploring the feasibility of making Scottish Health and Ethnicity Linkage Study (SHELS) data open access while ensuring that the same level of confidentiality is maintained. If SHELS becomes open access it could be reused, with the appropriate approvals, to assess the influence of other socio-economic or demographic measures on the Scottish population’s health.
Highlights
May 1st 2001 to April 30th 2008 for cardiovascular diseases, cancer, breast cancer screening, mental health and maternal and child health
We used computerised probability matching of names, sex, addresses and dates of birth to link the 2001 census for Scotland, to the Scottish Community Health Index (CHI), which is a register of patients using the NHS (National Health Service)
Dataset creators A person independent of the core data analysis team linked the 2001 census numbers held by National Records of Scotland (NRS) to the CHI held by Information Services Division (ISD), creating the Scottish Health and Ethnicity Linkage Study (SHELS) look-up table with encrypted numbers
Summary
We linked the 2001 Scottish Census, which contains ethnicity, socio-economic and demographic data to health and death records, creating an anonymised retrospective cohort study of 4.65 million people to assess the association between ethnicity and health outcomes in Scotland. The databases contain data mostly from hospital discharge and mortality records, and from other registers. The databases are stored in a safe haven at the National Records of Scotland (NRS). NRS is currently exploring the feasibility of making Scottish Health and Ethnicity Linkage Study (SHELS) data open access while ensuring that the same level of confidentiality is maintained. If SHELS becomes open access it could be reused, with the appropriate approvals, to assess the influence of other socio-economic or demographic measures on the Scottish population’s health. Overview Spatial coverage The data were collected for all Scotland
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