Abstract

Most individuals with disabilities in the US live in family settings; in some families, siblings are default long-term support providers. Although researchers have explored the roles of parent caregivers, the roles of sibling caregivers need attention. In this study, we examined caregiving processes and outcomes among 322 adult sibling support providers (SSPs) with a range of support roles. Adapting a conceptual model of caregiving processes, we used structural equation modeling to assess relationships among perceived social support, demands, appraisal of caregiving, empowerment, and depression. Results indicate significant associations among most variables. Appraisal of caregiving emerged as a partial mediator, suggesting that the meaning that SSPs make of their experiences exerts influence on their sense of empowerment and depressive symptoms.

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