Embodying Tourette’s Syndrome in Young Adult Literature

Abstract

The article foregrounds two protagonists with Tourette Syndrome (TS) from contemporary Young Adult (YA) novels written by authors with TS. Grounded in the interdisciplinary field of cultural disability studies in education (CDSE), each protagonist is analyzed for (1) physical manifestations of TS (external depiction), (2) emotional reactions about having TS (internal depiction), and (3) the response of parents and family members, friends, acquaintances, and strangers (societal depiction). Both main characters navigate a world in which they are viewed as abnormal, frequently working through internalized feelings of freakery as they struggle to become more self-accepting during their adolescent years. Such depictions “engage with disability as an isolating, hurtful, and joyful experience” (Bolt 11), allowing for the complexities, tensions, contradictions, and general messiness of embodying TS. These depictions suggest that the authors seek to provide readers with an empathetic understanding of TS, while allowing the simultaneous contemplation of ways in which the embodiment of TS informs us about our culture.