Abstract

Sexuality in adults with special healthcare requirements is a growing and poorly researched clinical need. The authors should be commended for a cross-sectional institutional study of sexual function and quality of life (QOL) in men with spina bifida (SB). The 47 young men were highly functioning: 72% had lipomeningocele, only 11% were shunted, and 87% were community ambulators. Despite being “the best of the best,” none of them received sexual education specific to SB. Among the 51% who were sexually active in the last month, one third had erectile dysfunction (ED). The authors followed principles that should guide other studies in this area: relying on self-reported outcomes, using standardized (ideally validated) questionnaires, and asking clinically relevant questions with potential impact on patient's well-being and care.

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