Disability-Related Problems of Children and Adolescents with Moebius Sequence and their Mothers' Coping.

Abstract

Moebius syndrome (Online Mendelian Inheritance in Man no. 157900) or Moebius sequence is a rare nonprogressive congenital condition of still not fully understood etiology and pathogenesis, which is usually defined as a combination of facial weakness (uni- or bilateral) with impairment of ocular abduction (uni- or bilateral).[1] Disturbances in psychomotor and speech development are very common, whereas intellectual disability occurs in only 10% of children and adolescents.[1] Therefore, parents of children with Moebius syndrome are confronted with a variety of medical, psychosocial, and economic issues. They are in need of adequate information about disability-related problems and how these might affect their daily life.