Abstract
Abstract Objective: To describe the development of care for children with special health needs in Paraná services of homecare. Method: Quantitative, descriptive, exploratory, and multiple case study was applied. Data were collected by telephone and e-mail, with professionals from the eight services of homecare of Parana, from October 2016 to January 2017. The data was treated with descriptive statistics analysis. Results: Among 35 children in homecare, 25.7% had cerebral palsy, 60% had a tracheostomy. The care provided by the services includes a management of tubes, administration of medication, changing dressings, caregiver guidance for tracheostomy suctioning and a management of diet. Conclusions and implications for practice: Services weaknesses were mainly related to low utilization of the singular therapeutic project and the counter-reference to primary care. The flow of successful practices are developed in the municipality of an isolated manner. Showing positive experiences promotes reflection and improvement of the work process of caring for children with special health needs in homecare.
Highlights
In the last years, a group of Children with Special Health Care Needs (CSHCN) emerged in Brazil due to technological development and health professionals qualification, influencing the rise of CSHCN survival rates.[1,2]These children are clinically fragile and need continuous care, sometimes, as a result of a chronic condition that requires special care in health services.[3]
A survey developed in the United States showed the following profile of CSHCN: those who were receiving care provided by family caregiver were 49.7%; the children's age ranged from 0 to 5 years represented 61.5%
The number of people assisted on Home Care Service (HCS) is variable, due to new admissions, discharges, and deaths of each period
Summary
A group of Children with Special Health Care Needs (CSHCN) emerged in Brazil due to technological development and health professionals qualification, influencing the rise of CSHCN survival rates.[1,2]These children are clinically fragile and need continuous care, sometimes, as a result of a chronic condition that requires special care in health services.[3]. A group of Children with Special Health Care Needs (CSHCN) emerged in Brazil due to technological development and health professionals qualification, influencing the rise of CSHCN survival rates.[1,2]. The group of children that were identified as other races were 53.2% versus 48.3% of non-Hispanic white children. They lived below poverty line (52.8%).[4] A chronic disease were responsible for 42% of costs in health for this population.[5]
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