Abstract
Background: Early detection and advanced treatment increases the five-year survival rate of patients with cancer. However, long-term cancer therapy, such as chemotherapy and radiotherapy, can have negative effects, such as infertility. This study aimed to develop a standardized Indonesian questionnaire, which would be used to assess the quality of health care providers' knowledge, attitude, and practice regarding fertility preservation in patients with cancer. Methods: A pilot study was performed in January and February 2018 at Dr. Cipto Mangunkusumo Hospital, Jakarta, Indonesia. An existing questionnaire was translated from English to Indonesian using forward translation, back translation, expert panel, pretesting, and cognitive interviewing. Ten subspecialists in the following departments made up an expert panel, who were involved in pretesting and cognitive interviewing: pediatric hematology-oncology, hematology-oncology/internal medicine, gynecologic oncology, gynecologic immune-endocrinology, radiology-oncology, and surgical oncology. Results: The questionnaire was successfully translated. The ten respondents stated that the maximum age for women's fertility preservation is 40 years of age (60%), 45 years of age (30%), or had no maximum age (10%). Additionally, the respondents stated that the maximum age for men's fertility preservation is 40 years of age (30%), 50 years of age (20%), or had no maximum age (50%). The respondents' knowledge stated that > 50% of them were aware but do not know enough about fertility preservation. The respondents stated that more than 50% of them give feedback agreeing to fertility preservation, and they always give advice about fertility preservation to their patients. Conclusion: The translation of the questionnaire followed translation steps from the World Health Organization and was adjusted based on the expert panel's comments concerning fertility preservation. This validated questionnaire tool in Indonesian can be used for research purposes and clinical evaluation of fertility preservation among health care providers in Indonesia.
Highlights
Based on data from the US Cancer Statistics Working Group, the five most common cancers in 2014 were breast, prostate, lung and respiratory tract, colon and rectum, and uterine and ovary[1]
Because there are no fertility preservation questionnaires available in Indonesia, this study aimed to develop a standardized Indonesian questionnaire that can be used to assess quality of health care providers’ knowledge, attitude, and practice regarding fertility preservation in patients with cancer
The World Health Organization proposes various steps to achieve different language versions of English instruments that are equivalent in each target country/culture: forward translation, expert panel, back translation, pretesting and cognitive interviewing, leading to a final version[12]
Summary
Based on data from the US Cancer Statistics Working Group, the five most common cancers in 2014 were breast, prostate, lung and respiratory tract, colon and rectum, and uterine and ovary[1]. Few patients are offered treatment choices based on fertility preservation due to lack of knowledge on optimal time, methods, and counselling approaches[7]. This study aimed to develop a standardized Indonesian questionnaire, which would be used to assess the quality of health care providers’ knowledge, attitude, and practice regarding fertility preservation in patients with cancer. An existing questionnaire was translated from English to Indonesian using forward translation, back translation, expert panel, pretesting, and cognitive interviewing. The ten respondents stated that the maximum age for women’s fertility preservation is 40 years of age (60%), 45 years of age (30%), or had no maximum age (10%). The respondents stated that the maximum age for men’s fertility preservation is 40 years of age (30%), 50 years of age (20%), or had no maximum age (50%).
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