Abstract
Background: Participation is a major pediatric rehabilitation goal according to The International Classification of Functioning, Disability and Health Children and Youth version (ICF-CY). ICF-based leisure participation measures for Portuguese-speaking children with cerebral palsy are currently not available. The aim of this study is to assess validity and reliability of the Portuguese (European) version of the Children's Assessment of Participation and Enjoyment (CAPE). Methods: CAPE Portuguese version was applied to 170 children with cerebral palsy (n = 69) and typical development (n = 101) aged between 8 and 18 years (mean = 12.5 years; SD = 2.91). Construct validity was assessed by using the know-groups method and the correlation between participation and quality of life. Reliability was determined by internal consistency and test-retest.Results: CAPE discriminates between participation scores of children with cerebral palsy and typical development. A positive correlation was found between participation frequency and physical well-being. Internal consistency was not entirely satisfactory but comparable with that from the original CAPE study. Test-retest reliability was considered good.Conclusions: CAPE Portuguese (European) version showed satisfactory validity and test-retest reliability to assess leisure participation in children with cerebral palsy and typical development aged between 8 and 18 years.
Highlights
Participation in everyday activities contributes to the development of children with and without disabilities
In the Children and Youth ICF version, the activities and participation domain comprise a full range of life areas, such as general tasks and demands, communication, mobility, self-care, interpersonal relations, domestic life, learning and applying knowledge, major life areas and community, social and civic life, including leisure [2]
The relationship between leisure participation and quality of life has been highlighted by a previous systematic review [10]
Summary
Participation in everyday activities contributes to the development of children with and without disabilities. In the International Classification of Functioning, Disability and Health model (ICF), participation is a key element and is considered the result of the interaction between body functions and structures, activity, personal, and environmental factors. Participation is a major pediatric rehabilitation goal according to The International Classification of Functioning, Disability and Health Children and Youth version (ICF-CY). Methods: CAPE Portuguese version was applied to 170 children with cerebral palsy (n = 69) and typical development (n = 101) aged between 8 and 18 years (mean = 12.5 years; SD = 2.91).
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