Concerns and challenges faced by parents of children with autism spectrum disorder during the coronavirus pandemic in Indian scenario

Abstract

IntroductionThe coronavirus pandemic has prevented children with autism spectrum disorder (ASD) from procuring clinical services which have led to changes in lifestyle and daily routines. Also, the parents of children with ASD were concerned regarding maintaining routines and introducing new experiences to their children during the pandemic. This is a cross-sectional study that explored the concerns and challenges faced by parents of children with ASD during the coronavirus pandemic.AimThe main objectives of this study were to profile the communication difficulties and environmental changes adopted by parents of children with ASD who did not have proper access to healthcare/rehab facilities during the pandemic in Indian scenario.Material and methodsIn total, 51 parents of children with ASD in the age range of 3 to 10 years participated in this study. They were asked to fill in a questionnaire (Google form) that had 20 close ended questions on their children's prelinguistic skills, communication behaviors, behavioral aspects, and emotional variations before and during the pandemic.Results and discussionThe results revealed that children with ASD exhibited significant emotional and behavioral upheaval due to interruptions in routine connected to COVID-19. Depending on the severity of the disorder, children had difficulty in several tasks such as comprehension of simple commands and expression of daily needs. Also, the parents of children with ASD were concerned about maintaining routines and introducing new experiences to their children during the pandemic.ConclusionsIndividuals with ASD are a significant population who may require special assistance during the pandemic and future public health crises.