Compilio: A personal health record, for disabled people

Abstract

Compilio is a free and secure personal health record (PHR). It is an Internet based innovative tool for families and health professionals. Compilio aims to improve the coordination of the care course for people having specific needs related to a handicap or a chronic disease. Compilio is a project of the “Agence régionale de Santé Auvergne-Rhone-Alpes” and the NGO network R4P (Regional Network of Pediatric Re-education and Re-adaptation in Rhône-Alpes), developed with the participation of Civil hospices of Lyon and GCS SISRA. Families are confronted with numerous appointments and wish to manage the various resulting documents in a single tool. Professionals waste time searching for information about care course history and treatments of the person. R4P designed Compilio to propose a solution for families and professionals to improve the coordination. Compilio proposes many features, which make possible the storage of important data (medical reports, examination results, videos, socio educational course, life habit, allergies) in a secure way to facilitate the follow-up of its care course. Compilio facilitates the administrative approaches while making possible filling MDPH requests or medical certificate. People themselves or their parents have the choice to decide to create and delete their Compilio PHR, and to give access to professionals according to the rules of the professional secrecy. Who is interested in Compilio? Any person having specific needs related to a handicap or a chronic disease can create a PHR and share it with the health professionals of his choice. Any health professional can create his professional account and then will have access to his patient's PHR if his patient wishes to share them with him.