Community Health Workers Working the Digital Archive: A Case for Looking at Participatory Archiving in Studying Stigma in the Context of HIV and AIDS

Abstract

Addressing the issue of HIV-stigma is recognised as essential to reducing the spread of HIV and AIDS, enabling community members to access prevention, treatment and care. Often the very people who are able to contribute to solving the problem, are marginalised and do not see ways to insert themselves into dialogues related to combating stigma. Community health workers in rural South Africa are one such group. At the heart of the research discussed in this article is an intervention based on participatory analysis through participatory archiving ( Shilton and Srinivasan 2008 ). Drawing on participatory work with thirteen community health workers in rural KwaZulu-Natal, we use a digital archive containing HIV-stigma visual data - generated five years earlier by youth in the community - to engage the participants in the analysis. Drawing on such participatory work as Jenkins’ participatory cultures framework, we focus on the idea of re-using, re-coding, and re-mixing visual data. One participant stated that “these pictures talk about the real issues faced by our communities”, highlighting the value of resources generated by community members themselves. They also indicate that they “could use [the resources] to teach the cons of stigmatising”. A key concern in work related to visual images (particularly in projects such as ours where a large amount of visual data is produced) is to consider ways of extending its life through the use of community-based digital archives.