Communicative and Methodological Challenges Related to Collecting Data with Older Adults with Dementia in Senior Living Communities During the COVID-19 Pandemic.

Abstract

The COVID-19 pandemic presented significant challenges to researchers collecting data with older adults, particularly older adults with Alzheimer's disease and related dementias (ADRD). The goal of this article is to articulate the communicative and methodological challenges and lessons learned from collecting data with older adults in senior living communities with mild cognitive impairment and ADRD and their adult children (who were geographically separated) during the pandemic. Communication was much more than what we were studying; it was essential to the success and ethical implementation of our research. We were working with a vulnerable population during a pandemic where recruitment, consent, and data collection required heightened and adapted communication strategies to reduce confusion, promote safety, and ensure data could be collected in an effective manner. The way we communicated with the participants, their networks, and the senior living communities was crucial to establishing strong human connections and subsequently successful data collection.