Abstract
BackgroundThe Translating Research in Elder Care (TREC) program is a longitudinal partnered program of research in Western Canada that aims to improve the quality of care and quality of life for residents and quality of worklife for staff in long-term care settings. This program of research includes researchers, citizens (persons living with dementia and caregivers of persons living in long-term care), and stakeholders (representatives from provincial and regional health authorities, owner-operators of long-term care homes). The aim of this paper is to describe how we used priority setting methods with citizens and stakeholders to identify ten priorities for research using the TREC data.MethodsWe adapted the James Lind Alliance Priority Setting Partnership method to ensure our citizens and stakeholders could identify priorities within the existing TREC data. We administered an online survey to our citizen and stakeholder partners. An in-person priority setting workshop was held in March 2019 in Alberta, Canada to establish consensus on ten research priorities. The in-person workshop used a nominal group technique and involved two rounds of small group prioritization and one final full group ranking.ResultsWe received 72 online survey respondents and 19 persons (citizens, stakeholders) attended the in-person priority setting workshop. The workshop resulted in an unranked list of their ten research priorities for the TREC program. These priorities encompassed a range of non-clinical topics, including: influence of staffing (ratios, type of care provider) on residents and staff work life, influence of the work environment on resident outcomes, and the impact of quality improvement activities on residents and staff.ConclusionsThis modified priority setting approach provided citizens and stakeholders with an opportunity to identify their own research priorities within the TREC program, without the external pressures of researchers. These priorities will inform the secondary analyses of the TREC data and the development of new projects. This modified priority setting may be a useful approach for research teams trying to engage their non-academic partners and to identify areas for future research.
Highlights
The Translating Research in Elder Care (TREC) program is a longitudinal partnered program of research in Western Canada that aims to improve the quality of care and quality of life for residents and quality of worklife for staff in long-term care settings
Plain English summary Priority setting exercises have become a popular strategy for engaging patients, the public, and care providers, in identifying top priorities for research
The Translating Research in Elder Care (TREC) Program is a partnered program of research in three Western Canadian provinces (British Columbia, Alberta, Manitoba) that aims to improve the quality of care, quality of life, and quality of work life in long-term care homes
Summary
The Translating Research in Elder Care (TREC) program is a longitudinal partnered program of research in Western Canada that aims to improve the quality of care and quality of life for residents and quality of worklife for staff in long-term care settings. Priority setting exercises have become one popular strategy for engaging research end users, typically citizens and care providers, in identifying and shaping relevant research questions They have been increasingly used for identifying research questions related to older adults. Recent examples include priority settings co-led by the James Lind Alliance for the Alzheimer Society of Canada [4], the Canadian Frailty Network [5], and the Dementia Priority Setting Partnership in the United Kingdom [6] While these efforts have helped to highlight the research needs of specific aging-related health issues, research in long-term care (LTC) settings ( known as nursing homes or personal care homes) has not been well represented
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