Abstract

BackgroundIn academic research contexts, eHealth interventions for caregivers of people with dementia have shown ample evidence of effectiveness. However, they are rarely implemented in practice, and much can be learned from their counterparts (commercial, governmental, or other origins) that are already being used in practice.ObjectiveThis study aims to examine a sample of case studies of eHealth interventions to support informal caregivers of people with dementia that are currently used in the Netherlands; to investigate what strategies are used to ensure the desirability, feasibility, viability, and sustainability of the interventions; and to apply the lessons learned from this practical, commercial implementation perspective to academically developed eHealth interventions for caregivers of people with dementia.MethodsIn step 1, experts (N=483) in the fields of dementia and eHealth were contacted and asked to recommend interventions that met the following criteria: delivered via the internet; suitable for informal caregivers of people with dementia; accessible in the Netherlands, either in Dutch or in English; and used in practice. The contacted experts were academics working on dementia and psychosocial innovations, industry professionals from eHealth software companies, clinicians, patient organizations, and people with dementia and their caregivers. In step 2, contact persons from the suggested eHealth interventions participated in a semistructured telephone interview. The results were analyzed using a multiple case study methodology.ResultsIn total, the response rate was 7.5% (36/483), and 21 eHealth interventions for caregivers of people with dementia were recommended. Furthermore, 43% (9/21) of the interventions met all 4 criteria and were included in the sample for the case study analysis. Of these 9 interventions, 4 were found to have developed sustainable business models and 5 were implemented in a more exploratory manner and relied on research grants to varying extents, although some had also developed preliminary business models.ConclusionsThese findings suggest that the desirability, feasibility, and viability of eHealth interventions for caregivers of people with dementia are linked to their integration into larger structures, their ownership and support of content internally, their development of information and communication technology services externally, and their offer of fixed, low pricing. The origin of the case studies was also important, as eHealth interventions that had originated in an academic research context less reliably found their way to sustainable implementation. In addition, careful selection of digital transformation strategies, more intersectoral cooperation, and more funding for implementation and business modeling research are recommended to help future developers bring eHealth interventions for caregivers of people with dementia into practice.

Highlights

  • BackgroundA recent systematic review [1] showed that very few evidence-based eHealth interventions for informal caregivers of people with dementia have been implemented in practice. eHealth, defined by the World Health Organization as “the use of information and communication technologies (ICT) for health” [2], has the potential to help many people living with physical and mental health issues, including informal caregivers of people with dementia

  • These findings suggest that the desirability, feasibility, and viability of eHealth interventions for caregivers of people with dementia are linked to their integration into larger structures, their ownership and support of content internally, their development of information and communication technology services externally, and their offer of fixed, low pricing

  • The origin of the case studies was important, as eHealth interventions that had originated in an academic research context less reliably found their way to sustainable implementation

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Summary

Introduction

BackgroundA recent systematic review [1] showed that very few evidence-based eHealth interventions for informal caregivers of people with dementia have been implemented in practice. eHealth, defined by the World Health Organization as “the use of information and communication technologies (ICT) for health” [2], has the potential to help many people living with physical and mental health issues, including informal caregivers of people with dementia. EHealth interventions for caregivers of people with dementia have shown ample evidence of effectiveness. They are rarely implemented in practice, and much can be learned from their counterparts (commercial, governmental, or other origins) that are already being used in practice. Emails with an invitation to provide examples of interventions that met the 4 inclusion criteria were sent to a diverse sample of experts (N=483). Each of these experts was known to the research team through their own professional networks. Data were collected on the description, current use, and business model of the interventions and are represented in an extraction table (refer to the Results section)

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