Abstract
In this paper, I outline some of the reasons why BRCA “previvors” (i.e., “survivors of a predisposition to cancer”) are different from previvors with other hereditary cancers. I examine how the absence of a standard of care for breast cancer risk for women with a BRCA mutation, coupled with a broad range of genetic penetrance and lower mortality, makes BRCA different than other hereditary cancers that have clear and established guidelines. In addition to these medical differences, social factors like the cultural prominence of breast cancer and the social significance of breasts have engendered a more complicated individual previvor identity for and cultural response to women with a BRCA mutation.
Highlights
Responsabilités des évaluateurs externes Les évaluations des examinateurs externes sont prises en considération de façon sérieuse par les éditeurs et les auteurs dans la préparation des manuscrits pour publication
The BRCA previvor identity has emerged as yet another breast cancer threat with women mistakenly believing that they are at risk for hereditary breast cancer
In order to gain a deeper understanding of the experiences of women with a BRCA mutation, it is useful to be familiar with the previvor identity as well as both the medical and social factors that shape it
Summary
Résumé Dans cet article, je décris quelques-unes des raisons pour lesquelles les « previvors » de BRCA I examine how the absence of a standard of care for breast cancer risk for women with a BRCA mutation, coupled with a broad range of genetic penetrance and lower mortality, makes BRCA different than other hereditary cancers that have clear and established guidelines. In addition to these medical differences, social factors like the cultural prominence of breast cancer and the social significance of breasts have engendered a more complicated individual previvor identity for and cultural response to women with a BRCA mutation. Affiliations des auteurs / Author Affiliations 1 Alden March Bioethics Institute, OBGYN Department, Albany Medical College, Albany, NY, USA
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