Abstract

A national neonatal alloimmune thrombocytopenia (NAIT) registry has recently been established through a collaboration between the Australian Red Cross Blood Service, Monash University Department of Epidemiology and Preventive Medicine, and interested clinicians. There is no current consensus regarding the incidence of NAIT in Australia, its optimal management, or standardisation of laboratory assessments. The low frequency of this condition, and lack of national data on clinical outcomes and complications, makes research in individual institutions difficult, while lack of data hampers the design of clinical studies and laboratory testing. The national NAIT registry aims to more accurately define the incidence and clinical outcomes of NAIT, the range of treatment approaches used and to explore clinical and laboratory factors that may influence outcome in Australia. This presentation will provide information about the rationale for and design of the NAIT registry and progress to date.

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