Abstract

BackgroundExisting models of patient-centeredness reveal a lack of conceptual clarity. This results in a heterogeneous use of the term, unclear measurement dimensions, inconsistent results regarding the effectiveness of patient-centered interventions, and finally in difficulties in implementing patient-centered care. The aim of this systematic review was to identify the different dimensions of patient-centeredness described in the literature and to propose an integrative model of patient-centeredness based on these results.MethodsProtocol driven search in five databases, combined with a comprehensive secondary search strategy. All articles that include a definition of patient-centeredness were eligible for inclusion in the review and subject to subsequent content analysis. Two researchers independently first screened titles and abstracts, then assessed full texts for eligibility. In each article the given definition of patient-centeredness was coded independently by two researchers. We discussed codes within the research team and condensed them into an integrative model of patient-centeredness.Results4707 records were identified through primary and secondary search, of which 706 were retained after screening of titles and abstracts. 417 articles (59%) contained a definition of patient-centeredness and were coded. 15 dimensions of patient-centeredness were identified: essential characteristics of clinician, clinician-patient relationship, clinician-patient communication, patient as unique person, biopsychosocial perspective, patient information, patient involvement in care, involvement of family and friends, patient empowerment, physical support, emotional support, integration of medical and non-medical care, teamwork and teambuilding, access to care, coordination and continuity of care. In the resulting integrative model the dimensions were mapped onto different levels of care.ConclusionsThe proposed integrative model of patient-centeredness allows different stakeholders to speak the same language. It provides a foundation for creating better measures and interventions. It can also be used to inform the development of clinical guidance documents and health policy directives, and through this support the shift towards patient-centered health care.

Highlights

  • In recent years, patient-centeredness has gained in importance [1,2], including policy and practice developments to promote patient-centered care on the level of legislation and regulation of health care [3]

  • In the UK, patient-centered care has been encouraged by several policy papers, e.g., the ‘‘Public and patient experience and engagement (PPE)’’ [4], and the ‘‘Liberating the NHS: No decision about me, without me’’ [5] both by the Department of Health

  • The importance of patient-centered care has been stressed by the 2010 Patient Protection and Affordable Care Act [11], which led to the formation of the Patient-Centered Outcomes Research Institute (PCORI) [12]

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Summary

Introduction

Patient-centeredness has gained in importance [1,2], including policy and practice developments to promote patient-centered care on the level of legislation and regulation of health care [3]. In the UK, patient-centered care has been encouraged by several policy papers, e.g., the ‘‘Public and patient experience and engagement (PPE)’’ [4], and the ‘‘Liberating the NHS: No decision about me, without me’’ [5] both by the Department of Health. Existing models of patient-centeredness reveal a lack of conceptual clarity. This results in a heterogeneous use of the term, unclear measurement dimensions, inconsistent results regarding the effectiveness of patient-centered interventions, and in difficulties in implementing patient-centered care. The aim of this systematic review was to identify the different dimensions of patient-centeredness described in the literature and to propose an integrative model of patient-centeredness based on these results

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