An exploration of significant others’ experience with ongoing vestibular disorders

Abstract

Objective: To understand the lived experiences of Significant Others (SOs) of people with ongoing vestibular symptoms.Design: Qualitative semi-structured interviews were conducted and analysed using thematic analysis.Study sample: Ten SOs of people with ongoing vestibular symptoms were interviewed. Maximum variation sampling was used.Results: Four predominant themes were identified from the data: (1) Journey The progression of learning to understand, cope and adapt with a family member’s vestibular condition is a unique journey; (2) Ownership Participants reported varying levels of ownership of their family member’s vestibular condition. Those who considered the vestibular condition as a joint problem were often more burdened by feelings of guilt and redundancy; (3) Intangibility Participants reported inconsistent advice from healthcare professionals, struggles with understanding, and challenges obtaining a shared understanding with their own support networks; (4) Disempowerment SOs were left feeling powerless due to not knowing what to do for a family member when they experienced vestibular symptoms, and not having a comprehensive understanding of the vestibular condition.Conclusions: Ongoing vestibular symptoms have significant and diverse impacts on SOs. This study reveals a need for tailored support of SOs and supports the practice of family-centred care in this population.