Abstract
Background Compliance with ethical, regulatory, and scientific guidelines does not always guarantee consideration of external stakeholders’ concerns in research. In 2007, UNAIDS and AVAC: Global Advocacy for HIV Prevention developed the Good Participatory Practice (GPP) Guidelines to ensure community and stakeholder engagement in biomedical HIV prevention research. In 2010-2011, the International AIDS Vaccine Initiative (IAVI) and AVAC conducted the first comprehensive evaluation of perceptions, practices and recommendations for improvement of participatory practice at eight IAVI-sponsored research centers (RCs) in Eastern and Southern Africa.
Highlights
Compliance with ethical, regulatory, and scientific guidelines does not always guarantee consideration of external stakeholders’ concerns in research
A total of 234 pre- and post-workshop questionnaires, 20 focus group discussions (FGD), and nine interviews with research staff, community advisory board members and other stakeholders were administered by AVAC staff primarily, to eliminate potential bias
Support increased for all 16 Good Participatory Practice (GPP) areas post-workshop with statistical significance levels varying between p
Summary
Compliance with ethical, regulatory, and scientific guidelines does not always guarantee consideration of external stakeholders’ concerns in research. In 2007, UNAIDS and AVAC: Global Advocacy for HIV Prevention developed the Good Participatory Practice (GPP) Guidelines to ensure community and stakeholder engagement in biomedical HIV prevention research. In 2010-2011, the International AIDS Vaccine Initiative (IAVI) and AVAC conducted the first comprehensive evaluation of perceptions, practices and recommendations for improvement of participatory practice at eight IAVI-sponsored research centers (RCs) in Eastern and Southern Africa
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