Abstract
In June 2014, the H3Africa Working Group on Ethics organised a workshop with members of over 40 research ethics committees from across Africa to discuss the ethical challenges raised in H3Africa research, and to receive input on the proposed H3Africa governance framework. Prominent amongst a myriad of ethical issues raised by meeting participants were concerns over consent for future use of samples and data, the role of community engagement in large international collaborative projects, and particular features of the governance of sample sharing. This report describes these concerns in detail and will be informative to researchers wishing to conduct genomic research on diseases pertinent to the African research context.
Highlights
Genomic research in Africa raises a number of unique ethical challenges, arising most prominently from the interplay between vanguard science and traditional communities and research contexts
Conclusion and ways forward There are multiple challenges confronting genomic research in Africa and these have been highlighted in the H3Africa Marker Paper (H3Africa Consortium 2014)
The H3Africa Ethics Consultation Meeting was a critical step in understanding better the range of issues related to H3Africa research, including the question “How will Africa benefit? a point of critical importance to both presenters and meeting participants
Summary
Addressing ethical issues in H3Africa research – the views of research ethics committee members. Jantina de Vries1*, Akin Abayomi, Katherine Littler, Ebony Madden, Sheryl McCurdy, Odile Ouwe Missi Oukem-Boyer, Janet Seeley, Ciara Staunton, Godfrey Tangwa, Paulina Tindana, Jennifer Troyer and The H3Africa Working Group on Ethics
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