A qualitative study exploring experiences of female family caregivers of people with dementia in acceptance and commitment therapy

Abstract

ABSTRACTObjectiveFew studies have explored the experiences of family caregivers of persons living with dementia (PLWD) in acceptance and commitment therapy (ACT). This study aimed for in-depth exploration on experiences of family caregivers of PLWD in ACT.MethodIndividual interviews were conducted with eight family caregivers of PLWD who were women and participated in an eight-week video conferencing ACT program. Data were analysed using interpretative phenomenological analysis.ResultsTwo overarching themes emerged, including improved strategies in responding to emotions and thoughts in challenging caregiving situations and taking better care of myself. Participants perceived that ACT skills training improved their coping strategies and, subsequently, their daily emotions and relationship with their relatives with dementia. Participants also perceived ACT strategies and exercises as helpful and applicable resources for daily use in challenging caregiving situations. In addition, ACT helped participants feel comfortable taking the time to take care of themselves without feeling guilty and acknowledge that they must take care of themselves first to take better care of their relatives with dementia. These changes helped caregivers increase their participation in valued activities.ConclusionsThis study contributes to the literature by exploring experiences of family caregivers of PLWD in ACT, including its perceived benefits on themselves.Trial registration: ClinicalTrials.gov ID: NCT04847986 (https://clinicaltrials.gov/ct2/show/NCT04847986)