A qualitative investigation of the experiences of people with learning disabilities who have used inpatient psychiatric services

Abstract

Objective:Policy directives (e.g. Valuing People, 2001) require service users, including those with learning disabilities, to be consulted about their experiences of accessing health care services. However, people with learning disabilities are less likely to be asked about their experiences and find it more difficult to use traditional methods of feedback (e.g. written forms) than people without a learning disability. Furthermore, people with a learning disability who also experience mental health problems are doubly disadvantaged in terms of contributing their feedback to services. The current study aimed to explore the experiences of people who have used psychiatric inpatient services for people with learning disabilities. This would facilitate service developments and allow service users an experience of giving detailed feedback and of being listened to. It would also increase our knowledge and skills around using qualitative research methodologies with people with learning disabilities and mental health difficulties.Methods:This is a retrospective, qualitative study using data collected through semi-structured interviews. Interview transcripts were analysed using Interpretative Phenomenological Analysis.Results:Participants’ responses focused on seven super-ordinate themes: (i) Reason for Admission; (ii) Staff; (iii) Communication; (iv) The Institution; (v) Illness Framework; (vi) Interventions; and (vii) Ideas for Improvements.Conclusions:Participants contributed a range of valuable feedback that has implications for service practice and development. Participants were able to use this methodology, and further qualitative research with participants with learning disabilities and mental health difficulties should be encouraged. Suggestions for further research are outlined.