96 The going digital study: the views and perceptions of children and young people, parents, and staff before and after electronic patient record implementation – trust-wide survey findings

Abstract

<h3>Background</h3> In April 2019, Great Ormond Street Hospital (GOSH) transitioned to an electronic patient record (EPR) system, including a patient portal (MyGOSH), which enables patients aged 12 years or older and their parents to access digital health data. This includes access to results, documentation, appointments, and facilitates communication with their care team. <h3>Aims</h3> To explore, as part of a longitudinal study, the views and experiences of children and young people (CYP), parents, and staff related to EPR implementation in a paediatric tertiary hospital, comparing pre and post findings. <h3>Methods</h3> Surveys were developed from workshops with each stakeholder group, piloted, and distributed Trust-wide to all participant groups before and after EPR implementation. Anonymised responses were collected in REDCap; data were analysed using SPSS. <h3>Results</h3> Pre/post-implementation views were captured from <i>n</i>=6137 survey respondents. Concerns about the implications of using MyGOSH were greater for both CYP and parents before compared to after implementation, with anticipation worse than reality. However, their information and support needs were not always met post-implementation, with CYP not always understanding health information on MyGOSH. Barriers existed for some families in accessing and using MyGOSH for a variety of reasons including digital poverty, English not being their first language, or having a physical or intellectual impairment or disability. Staff found meeting the needs and expectations of families whilst managing a new EPR system more difficult at six months post-transition than at 18 months, with most response scores returning to baseline at this point. <h3>Conclusion</h3> Ongoing commitment is required to meeting the individual needs of families; bridging the digital divide and overcoming barriers to accessing or using MyGOSH. The initial post-implementation phase demands the most support for staff, and all stakeholder groups require ongoing support for an extended period (&gt;18 months) after transitioning to EPR for successful implementation and system utility.