Abstract

This chapter describes the shifting role of parents and families. Over the past 50 or more years, parents and other family members of people with disabilities have assumed or been pressed into many different roles, both in their relationship to their family members with disabilities and in regard to the parts they have played within the disability service system. This system, which once essentially ignored the family or actively sought disruption of family ties, has come to view people with disabilities as members of families, and recognizes families as having expertise, wisdom, and rights in regard to the needs of their family members and the services they encounter. Today, progressive professionals acknowledge that a well-informed family member, including their members with disabilities, changes the shape of services in the near and more distant future. This change has come about because parents and other family members have actively sought changes in the relationship between themselves and the rehabilitation system.

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