69 A Qualitative Analysis About Family Centred Care (FCC) Experienced in a Children's Hospital

Abstract

Background: families have an important role for the health and well being of patients of all ages, particularly in paediatrics. Family centred care is a model adopted world wide to plan, perform and evaluate care in many paediatric hospitals, such as Bambino Gesú Children's Hospital (OPBG). Aims: to evaluate the experience of FCC at OPBG in its different levels of practice: from the absence of involvement in care to involvement, participation, collaboration and partnership. Methods: for this research question was chosen a qualitative approach. Subjects included in the study werehealth professionals of OPBG (nurses, doctors, allied health professionals), parents of children admitted for more 24 hours at OPBG. Data collection: data was collected through n.10 focus groups (FG). Two first pilot FG were performed to refine the interview questions and the facilitator's role. All FG have been conducted with parents and professionals from different care settings (intensive care, chronic care and acute care). Data analysis: was performed with the method of the long table analysis and NVivo 8 software to define the conceptual categories and themes descriptive of the phenomenon. Ethic: the study was approved by the Ethical Committee of OPBG. Participants subscribed the information consent. Results: the main themes that have emerged relate to parent's presence at the child's bedside, parent's desired involvement in care, nursing perceptions of it and desired parent participation in care, partnership and parent's information and educational needs. Conclusions: the study addresses important iussues to implement FCC in the hospital