Модель організації надання паліативної допомоги дітям

Abstract

Purpose - to substantiate and develop a functional and organizational model to improve the paediatric palliative care. Materials and methods. It was conducted surveys of 372 relatives of seriously ill children and 578 medical workers in Ivano-Frankivsk region. Results. The inability of the existing organizational forms of children’s palliative care to meet the medical and non-medical needs of seriously ill children and their families has been established. The functional and organizational model of improving the paediatric palliative care is offered. The innovations of the model were: the department of organizational-methodical and consultative care at the regional center of medical rehabilitation and palliative care for children; register of children in need of palliative care; individual program of palliative care for a child. The results of peer review demonstrated the feasibility and predicted efficiency of the model. Conclusions. To recommend the proposed functional and organizational model of improving the paediatric palliative care for implementation in the practice of health care facilities in Ukraine. The research was carried out in accordance with the principles of the Helsinki Declaration. The study protocol was approved by the Local Ethics Committee of the participating institution. The informed consent of the patient was obtained for conducting the studies. No conflict of interests was declared by the authors.