Youth Research Research Articles

Clinical Characteristics and Care Trajectories of Transgender and Gender Diverse Patients With Cancer Seen in a Pediatric Gender Clinic.

There is very little information on the experiences of transgender and gender diverse (TGD) youth with cancer. To examine clinical characteristics and care trajectories of TGD youth a history of cancer. This case series reviewed records of 2790 pediatric gender clinic patients seen between 2007 and 2022 to identify 14 with a history of cancer diagnosis. Demographics, clinical characteristics, disclosure of gender identity to oncology teams, oncology teams' use of correct names and pronouns, documented interprofessional communication between gender health and oncology teams, and course of medical gender affirmation were reviewed. Of 14 TGD youth with a history of cancer, 11 (78.6%) were diagnosed prior to presenting to the gender clinic (mean [SD]=8.2 [4.7] years), three following initial gender care (mean [SD]=1.1 [0.2] years). Six (42.9%) patients were engaged in annual survivorship care when presenting, and 8 (57.1%) were seen concurrently by both clinics. Nine (64.3%) patients had documented communication between teams. Three-quarters of patients who were seen concurrently by both clinics had documented interprofessional communication. Eight (57.1%) patients received gender affirming hormones, after cancer treatment concluded. TGD youth with cancer experiences present for gender affirming care and merit clinical attention. There was variability in (1) patients' and families' disclosure of TGD identities to oncology teams, (2) whether oncology documentation consistently used patients' correct name and pronouns, and (3) whether there was documented interprofessional consultation between teams. There is need for ongoing improvement in research and clinical protocols for TGD youth with cancer.

Gereja Katolik dan Pengentasan Pengangguran Pemuda di Era Bonus Demografi

Youth unemployment in Indonesia remains notably high at 9.25%, posing a potential threat to the optimal utilization of the demographic dividend anticipated to peak by 2030. This research seeks to explore how the Catholic Church can contribute to addressing youth unemployment during this critical period. By employing the theoretical framework of Catholic social teaching—focusing on the principles of human dignity, solidarity, and integral justice—the study examines the Church's role, potential, and concrete opportunities in mitigating youth unemployment, and provides recommendations for key programs. A qualitative approach is used, involving a literature review of Catholic social teaching documents and analysis of secondary data. The study's findings suggest that the Catholic Church holds strategic potential through its extensive network of parishes and institutions to assist in resolving the youth unemployment issue. Suggested priority programs include skills training, educational scholarships, job fairs, the establishment of youth empowerment institutions, vocational schools, research centers, and business incubators. Effective cross-sector collaboration is crucial to ensuring that these Church-initiated programs function efficiently and offer long- term benefits to Indonesian youth, helping them seize the opportunities presented by the 2030 demographic bonus. This research adds to the understanding of the potential contributions of religious institutions in addressing contemporary socio-economic challenges and opens avenues for further study on the intersection of religion, public policy, and economic development within the framework of Indonesia‘s demographic dividend.

Participatory research with youth with disabilities: Experiences from sub-Saharan Africa.

Disability inclusive youth research, involving youth with disabilities in the design, implementation and dissemination of study data, is still limited in Africa. To describe and reflect on the experiences of involving youth with disabilities in an exploratory research study, focused on disability-inclusive education and employment in 7 African countries. 12 youths with different impairments, aged 18 to 35, were employed as researchers in Ethiopia, Ghana, Kenya, Nigeria, Rwanda, Senegal and Uganda. Youth researchers contributed to the data collection and analysis of interviews with 210 youth with disabilities. 24 youth advisors with disabilities formed two youth advisory groups (YAG) of 12 advisors each in the regional hub countries Ghana and Uganda. The YAGs met 4 times during the project and contributed to the study design, data collection, data analysis and dissemination activities. In addition, 4 workshops were held with the Ugandan YAG to develop a participatory film. Together with the youth participants, we reflected on the experiences of involving youth with disabilities and conducting research with, by and on youth with disabilities. We highlighted ethics and safeguarding, recruitment and representation, exploring experiences and data quality, participatory dissemination, accessibility, capacity building and networking as key areas of consideration and benefit in this project. Participatory research with youth with disabilities is feasible, enriching, and key to inclusive research that informs education and employment policy and practices. Lessons learned from youth involvement in a disability inclusive research programme, focused on education and employment in 7 African countries.

니트(NEET)청년 관련 연구동향 및 도전과제

Objectives This study aims to analyze recent research trends related to NEET (Not in Education, Employment, or Training) youth and to provide implications for future research and support for NEET youth. Methods To analyze research trends related to NEET youth, a total of 58 papers, consisting of 43 domestic journal articles and 15 dissertations related to NEET youth published over 17 years from 2008 to 2024, were selected for analysis. The criteria for analyzing research trends were set in four areas: basic information, research subjects, research methods, and research topics. Results The study showed a significant increase in the number of journal articles and dissertations after 2015. Second, in terms of research subjects, studies focusing on non-job-seeking NEETs accounted for about 63%, followed by studies on mixed-type NEETs and job-seeking NEETs. Third, in terms of research methods, quantitative research was most commonly used in both journal articles and dissertations. The most frequently used analysis methods were overall scale estimation using statistical data and quantitative analysis of determinants leading to NEET status. Finally, regarding research topics, studies on the causes and influencing factors of NEET occurrence and the types and characteristics of NEET youth were the most common in both journal articles and dissertations. However, there is a greater need for research on support programs for NEET youth and measures for preventing and overcoming NEET status. Conclusions Based on the results of this study, discussions and implications for follow-up research and support for NEET youth were described, and recommendations for future research were made.

Building locally anchored implementation science capacity: the case of the adolescent HIV implementation science alliance-supported local iS alliances.

The Fogarty International Center-led Adolescent HIV Implementation Science Alliance (AHISA) supports region-/country-specific implementation science (IS) alliances that build collaborations between research, policy, and program partners that respond to local implementation challenges. AHISA supported the development of seven locally-led IS alliances: five country-specific (i.e., Kenya, South Africa, Tanzania, Uganda, and Zambia), one in Central and West Africa, and one with youth researchers. This article outlines the aims, activities, and outcomes of local alliances, demonstrating how they enhance sustainable IS activities to address local challenges. We conducted a desk review of each alliance's funding applications, reports, and data from the initial findings of a larger AHISA evaluation. The review analyzes common approaches, highlights their local relevance, and summarizes initial outcomes. The local alliances have a common goal: to expand implementation of successful interventions to improve adolescent HIV. We identified four overarching themes across the local alliances' activities: capacity building, priority setting, stakeholder engagement, and knowledge dissemination. Research capacity building activities include long-term mentorship between junior and senior researchers and short-term training for non-research partners. Setting priorities with members identifies local research needs and streamlines activities. Alliances incorporate substantial engagement between partners, particularly youth, who may serve as leaders and co-create activities. Dissemination shares activities and results broadly. Local IS alliances play a key role in building sustainable IS learning and collaboration platforms, enabling improved uptake of evidence into policy and programs, increased IS research capacity, and shared approaches to addressing implementation challenges.

Racial Microaggressions in U.S. High Schools: An Illustration of the Full YPAR Process From the Youth Research Council

In 2021, the Youth Research Council (“YRC”) was formed to bring together high school students in the Northern Virginia region of the United States to conduct research on topics important to those youth (“YRC Fellows”). In its inaugural year, YRC Fellows designed a multi-method study to explore the effects of racial microaggressions on the mental health of their peers and to better understand how young people resist racial microaggressions and their often-deleterious effects on mental health. This article details the YRC’s full process, from formation of research questions to sharing findings in critical and participatory ways, as a model of youth participatory action research (YPAR). In addition to describing the ways in which the YRC embodies a YPAR epistemology, we are also showing our methods. To do this, we have built the article around a transcribed conversation held in July 2023 with the intention of teasing out and sorting through the implications of the YRC’s findings based on our first two years of research. The authors of this article include YRC Fellows and university-based researchers who facilitate the YRC.

Predicting criminal offence in adolescents who exhibit antisocial behaviour: a machine learning study using data from a large randomised controlled trial of multisystemic therapy.

Accurate prediction of short-term offending in young people exhibiting antisocial behaviour could support targeted interventions. Here we develop a set of machine learning (ML) models that predict offending status with good accuracy; furthermore, we show interpretable ML analyses can complement models to inform clinical decision-making. This study included 679 individuals aged 11-17 years who displayed moderate-to-severe antisocial behaviour, from a controlled trial of Multisystemic-therapy in England. The outcome was any criminal offence in the 18 months after study baseline. Four types of ML algorithms were trained: logistic regression, elastic net regression, random forest, and gradient boosting machine (GBM). Prediction models were developed (1) using predictors readily available to clinicians (e.g. sociodemographics, previous convictions), and (2) with additional information (e.g. parenting). Model agnostic feature importance values were calculated and the most important predictors identified. Nested cross-validation with 100 iterations of random data splits and 10-fold cross-validation within each iteration was employed, and the average predictive performance was reported. Among the ML models using readily available predictors, the GBM is the strongest model (AUC 0.85, 95% CI 0.85-0.86); the other models have average AUCs of 0.82. This performance was better than using only the total number of previous offences as the predictor (0.67, 0.66-0.68), and the model simply assuming past offending status as the prediction (0.81, 0.80-0.81). Additional predictors slightly increased the performance of logistic regression and random forest models but decreased the performance of elastic net regression and gradient boosting machine-based models. The potential utility of ML approaches for accurately predicting criminal offences in high-risk youth is demonstrated. Interpretable ML-based predictive models could be utilised in youth services or research to help develop and deliver effective interventions.

'Is It Safe? Is it not?' A Youth-Led Photovoice Study of Youth Perspectives of COVID-19 Vaccine Confidence.

Youth have been uniquely affected by the COVID-19 pandemic. Despite high rates of COVID-19 infection, youth had one of the lowest vaccine uptake rates. Certain characteristics can affect vaccine uptake, such as mental health and substance use, but it is important to understand uptake for an effective response to pandemics. This study examined the perspectives of youth with mental health or substance use concerns on COVID-19 vaccine confidence, hesitancy and overall COVID-19 vaccine perspectives. Using photovoice, a community-based participatory research method, a sample of 27 youth aged 14-24 years participated in a series of photography workshops and focus groups. Participants submitted final photographs for discussion. Focus groups were recorded, transcribed and thematically analysed. Four themes were generated: (1) Youth deciphered the vaccine discourse in a changing information landscape; (2) mixed perspectives of families, friends and loved ones influenced the vaccine journey; (3) complex societal influences affected views and decisions around the COVID-19 vaccine; and (4) youth navigated their vaccine journeys through first- and second-hand experiences. The four themes and subthemes highlight the evolution of youth's journeys with the COVID-19 vaccine over the course of the pandemic and into the late-pandemic period. Youth with mental health or substance use challenges navigated a complex environment during the COVID-19 pandemic. The wide variety of factors influencing vaccine perspectives should be taken into account in public health messaging and future research on youth vaccine uptake. Youth-led and youth-engaged research can help solicit rich and meaningful perspectives of young people on important public health issues. This was a youth-led study. A youth research analyst conducted the study activities together with the support of a youth advisory group, an adult photographer with lived experience, and a scientific team.

Minoritised youth’s environmental justice priorities in a gentrifying context: brokenness and repair

ABSTRACT Youth engagement in urban planning research and practice can help reveal their distinct experiences, priorities, and provide direction for future action. Environmental justice scholarship has documented critical insights learned from youth co-researchers. This article adds to this tradition by exploring how youth in Austin, Texas, experience environmental injustice within the context of gentrification. Using photovoice methods, youth researchers identify and discuss these dual challenges. We illustrate how their emphasis on brokenness links and builds on environmental justice, repair and maintenance, and reparative literatures. Findings also highlight how youth actively work to improve their communities, challenging planning scholarship’s tendency to frame youth action as aspirational or as happening in structured, programmatic ways.

Innovative Youth Research and Study Education Model and the Cultivation of Future Talent in the United States

This paper explores the innovative youth research and study education model and its significance in the cultivation of future talent in the United States. In the era of globalization, the United States needs to cultivate future talent with innovative and practical abilities. The innovative education model emphasizes practice, inquiry, and innovation, and integrates technological methods such as Virtual Reality, Artificial Intelligence, and online learning platforms. It focuses on project-based learning, cultivates problem-solving skills, and encourages students’ independent inquiry and teamwork. This model provides a richer learning experience, helping students develop innovative thinking, technological literacy, and practical abilities. It also promotes the development of related industries such as culture, education, and science and technology innovation. Implementation strategies include formulating policies, strengthening promotion, establishing cooperation mechanisms, and developing curriculum resources. To fully leverage the potential of this model, investment and support from governments, schools, and society are necessary.

From opportunity gap to opportunity yield: The benefits of out-of-school authentic mentored research for youth from historically marginalized communities in STEM

Our longitudinal, mixed methods study explores the experiences of over five hundred youth in long-term mentored research experiences outside of school, paired with data on their reports of plans to pursue STEM. Our participants, youth from historically marginalized communities, represent the most promise for diversifying STEM: 81% are students of color, and almost half are multilingual. This paper shares an analysis of a cross-section of quantitative data collected from this large-scale study as well as qualitative data in the form of participant interviews. Drawing from our quantitative data, we find that in stark contrast to the opportunity gaps that youth like our participants encounter, participating in out of school research generates a ‘yield’ of opportunities to engage in science practices–significantly more than in school– and to contribute meaningfully to a science community of practice. Our qualitative data suggests that this ‘opportunity yield’ may also contribute to their continued pursuit of STEM. Taken together, these findings underscore the critical role that learning in out-of-school mentored research settings can play for students revealing its important, complementary role in a STEM ecosystem.

Toilet talk: using a students as researchers approach to problematize and co-construct school toilet policy and practice

ABSTRACT School toilets, globally and historically, have been problematic as places of shame and bullying, often providing pupils with inadequate facilities. This participatory student research project sought to develop political agency with youth researchers, equipping them with research skills to develop a project about school toilets, and to help challenge and shape their school’s policy and practice. By applying Sara Ahmed’s concepts of willful subjects (2014) and complaint (2021) to the data, we begin to question who can use school toilets as expected. Often fear, disgust and restrictions encourage, if not force, disabled, menstruating, transgender and gender diverse students, to contravene toilet norms, and be considered willful. We worked with student researchers to problematize issues and explore the potential for more effective policies. We argue it is imperative to use feminist pedagogy to challenge toilet policy and practice, with children and young people, to achieve wider social justice in education.

Integrating youth participatory action research and health communication to inform youth and young adult covid-19 vaccine communication research.

COVID-19 vaccination rates remain lower among adolescents compared with adults. Youth participatory action research (YPAR) offers opportunities to inform youth vaccine communication at the local and population level. However, few studies have integrated systematic health communication research with YPAR. In the current study, a diverse team of paid high school interns, undergraduate student mentors and communication researchers in West Philadelphia YPAR programs developed a theory-informed communication survey to measure teen COVID-19 vaccine beliefs, information sources and behavior. The survey was distributed locally and informed youth-created vaccine campaign messages. In addition, YPAR-derived survey measures complimented a qualitative online elicitation survey with US young adults. Responses were coded using inductive content analysis, informing measures for a subsequent population-level study of young adults. This research followed protocols approved by an Institutional Review Board. Applying a YPAR framework elevated youth voices in the study development process. Communication theory and methods aided the development of survey studies to advance both local YPAR program objectives and population-level research. Future implications are discussed.

Facing power: navigating power dynamics in a youth participatory action research project situated within a healthcare setting

ABSTRACT Youth Participatory Action Research (YPAR) is oftentimes cited as a method guided by social justice principles to uplift youth voice and pursue youth priorities in research. However, to uphold these principles, YPAR researchers must address how youth and adults alike negotiate power differentials to be equal partners in research and scholarship. We explore YPAR power sharing through a reflexive thematic analysis of in-depth, semi-structured interviews (n = 42) and focus groups (n = 2) conducted at three timepoints (baseline, mid-point, and exit) with youth (n = 8) and adult (n = 6) researchers engaged in a YPAR exploring health equity at a large, safety-net hospital. Our analyses suggest that both youth and adult researchers negotiate power dynamics in a YPAR at every stage of the project. YPAR researchers made four recommendations to negotiate power: 1) preserve time for relationship building, 2) structure group expectations, 3) require training for adults working with youth of color, and 4) designate youth-only spaces. This study provides an in-depth analysis of youth and adult reflections on power across a YPAR project. Our findings indicate that YPAR requires significant investment in resources, including time to reflect on and process power, transparent and structured expectations, and ongoing training to uphold principles of YPAR.

An interdisciplinary framework of youth participatory action research informed by curricula, youth, adults, and researchers.

Rarely are youth voices incorporated into program and policy development. Youth participatory action research (YPAR) is an opportunity for adolescents to develop research skills by completing projects relevant to their lives and allows participation and decision-making at systems and organizational levels. Attention to YPAR implementation detail, especially a curricular focus, is lacking in the literature. Specifically absent is an all-encompassing YPAR framework, a gap the current study addresses. The current study includes a review of existing YPAR curricula to develop the Youth Researcher Empowerment Framework, including research components, social emotional competencies, and assumptions necessary for completing a YPAR project that centers youth voice and shared power. The study includes a quantitative assessment of the YPAR curricula and qualitative reviews by adult practitioners. In addition, focus group data from youth and teacher audiences across multiple settings confirmed and clarified terms and concepts related to the framework. The study provides empirical evidence to support a revised framework for YPAR curricular implementation. Implications are discussed in terms of aspects of the research process needed for YPAR projects, attention to specific youth developmental skills as outcomes, and underlying principles needed to create a welcoming, contextual space allowing for empowerment, youth voice, and choice.

Doing youth in time? A relational perspective on the temporal constructions of youth

Temporality is a key principle of the constitution of youth as a life phase. Historically, ,invented‘ and institutionalized as moratorium, youth has been reserved for preparation for adulthood, thus contributing to the sequential order of the modern life course. Institutional age marks in school, youth welfare or citizenship claim to explicitly demarcate beginning and ending of youth in a linear way. Not only but most lately in the context of the activating welfare state, temporal normativities and normalities of growing up seem to have lost consistency. Consequently, young people have to position themselves with regard to chrononormative markers of the ‘right age’ reflected by distinctions from, ‘too young for …’ or, ‘too old for …’. The article analyses blurring temporalities of the youth phase by relating changes of the temporal regime(s) of young people's growing up and their individual and collective time work from a doing transitions perspective. The complexity and paradox of these temporalities are illustrated by three exemplary empirical case vignettes: Coping with suspended transitions in the pandemic; Fridays for Future as intergenerational struggle for future; and youth cultural practices expressing attempts of slowing down. In these constellations tensions of temporality emerge: the tension between moratorium and acceleration, between orientation towards the future and orientation towards the present, between simultaneity and linear sequentiality. A relational approach to the temporalities of youth is developed along with concepts like relative time and asynchronicity while young people's time work is reinterpreted in terms of doing youth in time. The paper concludes by discussing the implications of relational temporality for conceptualizing young people's agency and consequences for youth research.

Youth and climate crisis: participation and learning in complex, adaptive systems

AbstractThe Friday for Future school strikes have vividly demonstrated young people’s concern for the rapidly deteriorating life and survival chances of future generations of human and nonhuman beings. The young people’s ambivalence between despair and hope, feelings of powerlessness and empowerment challenge us to recognise the complexity and dynamic not only of ecosystems but of socio-ecological systems and to question the mechanistic and linear thinking often prevalent in youth research and education science. This thinkbite invites readers to consider young people’s experiences with the climate crisis and (climate change) education through the perspective of Complex Adaptive System Theory to open up learning space for more wholesome and creative responses to the challenge.

The Effects of Gender-Affirming Hormone Therapy on Quality of Life: The Importance of Research on Youth.

Gender-affirming hormone therapy (GAHT) plays a significant role in the medical care of transgender individuals, helping to align their physical characteristics with their gender identity. While numerous studies have investigated the impact of GAHT on adults, research focusing on its effects on the quality of life (QoL) of transgender youth is limited. In this opinion paper, we aim to address selected challenges associated with gender-affirming medical care, such as (1) the necessity for evidence-based youth gender-affirming medical care, (2) the urge to explore different approaches to gender-affirming medical care diversely in transgender youth research, and (3) understanding the challenges of the detransition process (which refers to stopping or reversing gender-affirming medical or surgical treatments), as well as suggest possible solutions for meaningful progress. Notably, the available evidence underlines a positive impact of GAHT on various aspects of QoL of transgender youth, such as mental health and social functioning, by alleviating gender dysphoria, improving body satisfaction, and facilitating appearance congruence (the degree to which an individual's physical appearance represents their gender identity). However, challenges related to methodological limitations, as well as ethical considerations, and several sociocultural factors highlight the need for further research to better understand the long-term effects of GAHT on the QoL of transgender youth. Ethical considerations, such as ensuring informed consent and weighing potential benefits against risks, are pivotal in guiding healthcare decisions. Additionally, navigating these ethical responsibilities amid sociocultural contexts is crucial for providing inclusive and respectful care to transgender youth. Addressing these research gaps is, therefore, crucial to developing successful healthcare programmes, raising awareness, and promoting the holistic well-being of transgender youth through comprehensive and affirming care.

Keeping young researchers out of harm's way: conducting youth participatory action research with young people experiencing homelessness.

Youth Participatory Action Research (YPAR) is an approach to conducting research with youth populations in order to effectively engage youth in research that impacts their lives. Young people experiencing homelessness (YEH) are vulnerable to power and social environments in ways that call attention to their experiences in research. The context for this paper was a qualitative YPAR project to incorporate youth voice into the operations of a larger research study that hired youth as researchers. Participant-researchers provided feedback and consultation with senior staff in order to improve their access to resources, safety, and stability. Themes that emerged from thematic analysis of reflections, discussions, and meetings showed the need for consistent access to food, the risk of environmental violence targeting youth researchers, the structural and experiential barriers to professional engagement, and the benefits that young researchers experienced as part of their work in the study. Recommendations and lessons learned are described, notably to ensure that youth are paid and provided food, to construct effective safety plans during fieldwork, and to provide a flexible, inclusive, trauma-responsive approach to supervision of project tasks.

On caring and a love ethic to address the effects of structural violence on adolescent health

Youth care webs and interactions with caring systems are evaluated using Youth Participatory Action Research (YPAR) methods. This qualitative study used photovoice and interviewing technics with a group of emerging adults to reveal details about their interactions with systems of care, and their nuanced perceptions of the care they receive and give. The variety of settings that youth turn to for care when traditional caring systems fail, and their nuanced understandings of both interpersonal and systemic care were explored. The isolation that structural violence and neoliberal systems of care have had on their communities was revealed in explicit detail. The integral role that YPAR researchers play within youth care networks was discovered through supportive interactions between youth participants and researchers. Using a love ethics approach to YPAR built on trust uncovers participant knowledge that could be missed through non-collaborative approaches.