Web-based Participation Research Articles

The Role of Anxiety and Prosocial Behaviors on Adherence Behaviors to Prevent COVID-19 in University Students in the United States: Cross-Sectional Study.

In situations of acute stress, individuals may engage in prosocial behaviors or risk-taking self-oriented behaviors. The COVID-19 pandemic created large stress-promoting conditions that impacted individuals' decisions to adhere to COVID-19 preventative behaviors. The study aimed to examine the relationship between anxiety during the pandemic and adherence behaviors to prevent the spread of COVID-19, and the moderating influence of prosocial behaviors. We hypothesized that individuals with high anxiety during COVID-19 would adhere more to preventive COVID-19 behaviors than ones with low anxiety and that this relationship would be stronger in those individuals with higher prosocial behaviors. A web-based survey was administered through the SONA web-based participant tool of the psychology department of a university in the Northeastern United States. A final sample of 54 undergraduate students completed web-based questionnaires during the second wave of the COVID-19 pandemic, from January to May 2021, which included demographic measures and surveys on prosocial behaviors, anxiety, and COVID-19 preventive behaviors. Moderation analyses were conducted using PROCESS in SPSS. Participants reported high levels of trait and state anxiety symptoms, most of them meeting or exceeding the cutoff criteria to be clinically meaningful (state anxiety: 47/54, 87%; trait anxiety: 38/44, 86%), and over 50% highly adhered to the COVID-19 preventive behaviors of wearing a face mask, using hand sanitizer, handwashing, coughing/sneezing into their elbow or a tissue, self-quarantining, maintaining social distance, avoiding social gatherings, and avoiding nonessential travel. No significant associations were observed between prosocial behavior, anxiety types, and adherence to COVID-19 preventive behaviors. However, when moderation analyses were conducted between anxiety types and adherence to COVID-19 preventive behaviors, results demonstrated a statistically significant interaction of public prosocial behavior with state anxiety (β=-.17, t53=-2.60; P=.01), predicting engagement in COVID-19 preventative behaviors. At high levels of anxiety, low levels of prosocial public behaviors were associated with higher engagement in COVID-19 preventative behaviors. In contrast, high levels of public prosocial behavior were associated with low engagement in COVID-19 preventative behaviors at higher levels of anxiety. These results provide information that can aid in the creation of interventions that could increase adherence to COVID-19 preventative behaviors (Reviewed by the Plan P #PeerRef Community).

From Lab-Testing to Web-Testing in Cognitive Research: Who You Test is More Important than how You Test.

The transition to web-testing, although promising, entails many new concerns. Web-testing is harder to monitor, so researchers need to ensure that the quality of the data collected is comparable to the quality of data typically achieved by lab-testing. Our study yields a novel contribution to this issue, by being the first to distinguish between the impact of web-testing and the impact of sourcing individuals from different participant pools, including crowdsourcing platforms. We presented a fairly general working memory task to 196 MTurk participants, 300 Prolific participants, and 255 students from the University of Geneva, allowing for a comparison of data quality across different participant pools. Among university students, 215 were web-tested, and 40 were lab-tested, allowing for a comparison of testing modalities within the same participant pool. Data quality was measured by assessing multiple data characteristics (i.e., reaction time, accuracy, anomalous values) and the presence of two behavioral benchmark effects. Our results revealed that who you test (i.e., participant pool) is more important than how you test (i.e., testing modality). Concerning how you test, our results showed that web-testing incurs a small, yet acceptable loss of data quality compared to lab-testing. Concerning who you test, Prolific participants were almost indistinguishable from web-tested students, but MTurk participants differed drastically from the other pools. Our results therefore encourage the use of web-testing in the domain of cognitive psychology, even when using complex paradigms. Nevertheless, these results urge for caution regarding how researchers select web-based participant pools when conducting online research.

REDCap Delivery of a Web-Based Intervention for Patients With Voice Disorders: Usability Study.

BackgroundWeb-based health interventions are increasingly common and are promising for patients with voice disorders because web-based participation does not require voice use. To address needs such as Health Insurance Portability and Accountability Act compliance, unique user access, the ability to send automated reminders, and a limited development budget, we used the Research Electronic Data Capture (REDCap) data management platform to deliver a patient-facing psychological intervention designed for patients with voice disorders. This was a novel use of REDCap.ObjectiveWe aimed to evaluate the usability of the intervention, with this intervention serving as a use case for REDCap-based patient-facing interventions.MethodsWe used REDCap survey instruments to develop the web-based voice intervention modules, then conducted usability evaluations using (1) heuristic evaluations by 2 evaluators, and (2) formal usability testing with 7 participants, consisting of predetermined tasks, a think-aloud protocol, ease-of-use measurements, a product reaction card, and a debriefing interview.ResultsHeuristic evaluations found strengths in visibility of system status and real-world match, and weaknesses in user control and help documentation. Based on this feedback, changes to the intervention were made before usability testing. Overall, usability testing participants found the intervention useful and easy to use, although testing revealed some concerns with design, content, and terminology. Some concerns were readily addressed, and others required adaptations within REDCap.ConclusionsThe REDCap version of a complex web-based patient-facing intervention performed well in heuristic evaluation and formal usability testing. REDCap can effectively be used for patient-facing intervention delivery, particularly if the limitations of the platform are anticipated and mitigated.

Feasibility and Preliminary Efficacy of Web-Based and Mobile Interventions for Common Mental Health Problems in Working Adults: Multi-Arm Randomized Pilot Trial.

BackgroundThere is growing interest in digital platforms as a means of implementing scalable, accessible, and cost-effective mental health interventions in the workplace. However, little is known about the efficacy of such interventions when delivered to employee groups.ObjectiveThis study aims to evaluate the feasibility and preliminary efficacy of a digital mental health platform for the workplace, which incorporates evidence-based practices such as cognitive behavioral therapy and acceptance and commitment therapy. A total of 3 brief, unguided interventions designed to address stress, anxiety, and resilience, respectively, are evaluated. The primary aim is to determine the feasibility of the study methods and interventions in preparation for a definitive randomized controlled trial.MethodsThe study used a fully remote, parallel, multi-arm, external pilot randomized controlled trial, with 3 intervention arms and a no-intervention control group. Participants were working adults representative of the general UK population with respect to age, sex, and ethnicity who were recruited from a web-based participant platform. Primary outcomes included objective and self-report measures of feasibility, acceptability, engagement, transferability, relevance, and negative effects. Secondary outcomes included 4 self-report measures of mental health and well-being, completed at baseline (time point 0 [t0]), postintervention (time point 1 [t1]), and the 1-month follow-up (time point 2 [t2]). Secondary outcomes were analyzed via linear mixed-effects models using intention-to-treat principles. Preregistered criteria for progression to a definitive trial were evaluated.ResultsData were collected between January and March of 2021. A total of 383 working adult participants meeting trial eligibility were randomized, of whom 356 (93%) were retained at t2. Objective engagement data showed that 67.8% (196/289) of participants randomized to an intervention arm completed their intervention. Overall, 87.1% (203/233) of participants reported being satisfied or very satisfied with their intervention and rated the quality of their intervention as good or excellent. All intervention groups reported significantly greater improvements than the control group on at least one secondary outcome at t1, with between-group Hedges g effect sizes for the pooled interventions ranging from 0.25 (95% CI 0.05-0.46) to 0.43 (95% CI 0.23-0.64). All the improvements were maintained at t2.ConclusionsThe study methods were feasible, and all preregistered criteria for progression to a definitive trial were met. Several minor protocol amendments were noted. Preliminary efficacy findings suggest that the study interventions may result in improved mental health outcomes when offered to working adults.Trial RegistrationISRCTN Registry 80309011; http://www.isrctn.com/ISRCTN80309011

EP437: Recruitment of Veterans Affairs patients improves the diversity of precision medicine research participation

Access to clinical trials and other research opportunities is important to discovering new disease treatments and better ways to detect, diagnose, and reduce disease risk. The WISDOM (Women Informed to Screen Depending on Measures of risk) Study is a multi-site, pragmatic trial with web-based participation based at the University of California at San Francisco (UCSF). The study aims to move breast cancer screening away from its current one-size-fits-all approach to one that is personalized based on each woman’s individual risk assessed by personal and family history and genetic testing for monogenic hereditary cancer syndromes and polygenic risk for breast cancer.

Abstract P5-19-05: Successful participation of veterans affairs patients in precision medicine research through passive recruitment efforts

Abstract Background Access to clinical trials and other research opportunities is important to discovering new disease treatments and better ways to detect, diagnose, and reduce disease risk. The WISDOM (Women Informed to Screen Depending on Measures of risk) Study is a multi-site, pragmatic trial with web-based participation based at the University of California at San Francisco (UCSF) that aims to move breast cancer screening away from its current one-size-fits-all approach to one that is personalized based on each woman’s individual risk. We sought to evaluate passive recruitment efforts of Veterans Affairs (VA) patients into a precision medicine research program. Methods We created a hub and spoke recruitment model with the San Francisco VA Medical Center (SFVAMC) serving as the central hub of passive recruitment activities and eligible VA facilities that agreed to participate serving as the spoke recruitment sites. Eligible facilities had at least 3,000 women patients, VA clinical genetic services available, a site lead from the VA Women’s Health-Practice-Based Research Network, and mammography on site. Site participation involved permission for the research team to email eligible patients (women age 40-74 without a prior breast cancer diagnosis) about the WISDOM Study. We evaluated the effectiveness of the recruitment by assessing trends in enrollment and monitoring participation of VA patients in the WISDOM Study. The participating sites were determined to be non-engaged in human subjects research. Results Between May 24th, 2021 and June 30th, 2021, we emailed 29,470 eligible VA patients from seven participating VA facilities. Prior to the VA emailing, 2% of the total WISDOM Study population had served or was currently serving in active duty in any of the United States Armed Forces. After the first month of emails, this percentage increased to 50%. The month following VA emailing was one of the highest accruing months for the study with 2175 women registering, doubling the average of the prior three months, with VA participation accounting for over 50% of total enrollment that month. VA enrollment population was racial and ethnically diverse and changed the demographics of study enrollment. Prior to the VA emailing, the WISDOM Study population (n= 32,3278) included women who are 79% non-Hispanic White, 3% Black/African American and 9% Hispanic/Latina. Between the May 24th, 2021 and June 30th, 2021 emailing period, of the 1665 women enrolled, 64% of which were non-Hispanic White, 16% Black/African American and 12% Hispanic/Latina. Most women veterans enrolled in the study were between the ages of 40-50 (45%), which represented a younger population than the general WISDOM Study population (28%, aged 40-50). Both the VA population and general WISDOM Study population had similar levels education: 72% of the VA population had obtained a college graduate degree compared to 76% of the WISDOM study population with a college graduate degree. Conclusions The VA has recently approved email contact as a method for passively recruiting research participants. Our results demonstrate that there is substantial interest among female veterans in the WISDOM Study, and that emailing VA patients was not only feasible but an effective approach to increased study recruitment and diversity of participants. This data provides a unique opportunity for future trials to engage women veterans as precision medicine becomes a growing area of research in the VA and at academic affiliates. Citation Format: Maren Scheuner, Paloma Sales, Susan M. Frayne, Marcelo Palmieri, Rashna Soonavala, Allison Stover Fiscalini, WISDOM Study/Athena Investigators, Advocate Partners, Laura Esserman. Successful participation of veterans affairs patients in precision medicine research through passive recruitment efforts [abstract]. In: Proceedings of the 2021 San Antonio Breast Cancer Symposium; 2021 Dec 7-10; San Antonio, TX. Philadelphia (PA): AACR; Cancer Res 2022;82(4 Suppl):Abstract nr P5-19-05.

Attentional Harms and Digital Inequalities.

Recent years have seen growing public concern about the effects of persuasive digital technologies on public mental health and well-being. As the draws on our attention reach such staggering scales and as our ability to focus our attention on our own considered ends erodes ever further, the need to understand and articulate what is at stake has become pressing. In this ethical viewpoint, we explore the concept of attentional harms and emphasize their potential seriousness. We further argue that the acknowledgment of these harms has relevance for evolving debates on digital inequalities. An underdiscussed aspect of web-based inequality concerns the persuasions, and even the manipulations, that help to generate sustained attentional loss. These inequalities are poised to grow, and as they do, so will concerns about justice with regard to the psychological and self-regulatory burdens of web-based participation for different internet users. In line with calls for multidimensional approaches to digital inequalities, it is important to recognize these potential harms as well as to empower internet users against them even while expanding high-quality access.

Web-Based Cognitive Testing in Psychiatric Research: Validation and Usability Study.

BackgroundCognitive impairments are features of many psychiatric disorders and affect functioning. A barrier to cognitive research on psychiatric disorders is the lack of large cross-disorder data sets. However, the collection of cognitive data can be logistically challenging and expensive. Web-based collection may be an alternative; however, little is known about who does and does not complete web-based cognitive assessments for psychiatric research.ObjectiveThe aims of this study are to develop a web-based cognitive battery for use in psychiatric research, validate the battery against the Measurement and Treatment Research to Improve Cognition in Schizophrenia (MATRICS) Consensus Cognitive Battery, and compare the characteristics of the participants who chose to take part with those of the individuals who did not participate.MethodsTasks were developed by The Many Brains Project and selected to measure the domains specified by the MATRICS initiative. We undertook a cross-validation study of 65 participants with schizophrenia, bipolar disorder, depression, or no history of psychiatric disorders to compare the web-based tasks with the MATRICS Consensus Cognitive Battery. Following validation, we invited participants from 2 large ongoing genetic studies, which recruited participants with psychiatric disorders to complete the battery and evaluated the demographic and clinical characteristics of those who took part.ResultsCorrelations between web-based and MATRICS tasks ranged between 0.26 and 0.73. Of the 961 participants, 887 (92.3%) completed at least one web-based task, and 644 (67%) completed all tasks, indicating adequate completion rates. Predictors of web-based participation included being female (odds ratio [OR] 1.3, 95% CI 1.07-1.58), ethnicity other than White European (OR 0.66, 95% CI 0.46-0.96), higher levels of education (OR 1.19, 95% CI 1.11-1.29), diagnosis of an eating disorder (OR 2.17, 95% CI 1.17-4) or depression and anxiety (OR 5.12, 95% CI 3.38-7.83), and absence of a diagnosis of schizophrenia (OR 0.59, 95% CI 0.35-0.94). Lower performance on the battery was associated with poorer functioning (B=−1.76, SE 0.26; P<.001).ConclusionsOur findings offer valuable insights into the advantages and disadvantages of testing cognitive function remotely for mental health research.

Computer-Mediated Communication in Adults With and Without Moderate-to-Severe Traumatic Brain Injury: Survey of Social Media Use.

BackgroundIndividuals with a history of traumatic brain injury (TBI) report fewer social contacts, less social participation, and more social isolation than noninjured peers. Cognitive-communication disabilities may prevent individuals with TBI from accessing the opportunities for social connection afforded by computer-mediated communication, as individuals with TBI report lower overall usage of social media than noninjured peers and substantial challenges with accessibility and usability. Although adaptations for individuals with motor and sensory impairments exist to support social media use, there have been no parallel advances to support individuals with cognitive disabilities, such as those exhibited by some people with TBI. In this study, we take a preliminary step in the development process by learning more about patterns of social media use in individuals with TBI as well as their input and priorities for developing social media adaptations.ObjectiveThis study aims to characterize how and why adults with TBI use social media and computer-mediated communication platforms, to evaluate changes in computer-mediated communication after brain injury, and to elicit suggestions from individuals with TBI to improve access to social media after injury.MethodsWe conducted a web-based survey of 53 individuals with a chronic history of moderate-to-severe TBI and a demographically matched group of 51 noninjured comparison peers.ResultsMore than 90% of participants in both groups had an account on at least one computer-mediated communication platform, with Facebook and Facebook Messenger being the most popular platforms in both groups. Participants with and without a history of TBI reported that they use Facebook more passively than actively and reported that they most frequently maintain web-based relationships with close friends and family members. However, participants with TBI reported less frequently than noninjured comparison participants that they use synchronous videoconferencing platforms, are connected with acquaintances on the web, or use social media as a gateway for offline social connection (eg, to find events). Of the participants with TBI, 23% (12/53) reported a change in their patterns of social media use caused by brain injury and listed concerns about accessibility, safety, and usability as major barriers.ConclusionsAlthough individuals with TBI maintain social media accounts to the same extent as healthy comparisons, some may not use them in a way that promotes social connection. Thus, it is important to design social media adaptations that address the needs and priorities of individuals with TBI, so they can also reap the benefits of social connectedness offered by these platforms. By considering computer-mediated communication as part of individuals’ broader social health, we may be able to increase web-based participation in a way that is meaningful, positive, and beneficial to broader social life.

Violence risk assessment practices in Israel: a preliminary survey investigation

Purpose The purpose of this paper is to explore the violence risk assessment practices in Israel by social workers, clinical criminologists, and marriage and family therapists using a Web-based survey. Design/methodology/approach A Web-based survey and participation letter were translated into Hebrew and distributed to members of the Israel Association of Social Workers, the Israel Society of Clinical Criminology and the Israel Association for Marital and Family Therapy following the Dillman Total Design Survey Method. Findings The sample was composed of 34 professionals, who reported using structured instruments to predict and manage the likelihood of violence in over half of their risk assessments over both their lifetime and the past 12 months. Younger female respondents who entered their profession more recently were more likely to use instruments during the risk assessment process. There appeared to be a trend toward decreased use of actuarial instruments and increased use in structured professional judgment instruments. Originality/value The first national survey of violence risk assessment practices by behavioral healthcare professionals in Israel was conducted. This study revealed the risk assessment utility trends in Israel, finding that compared to professionals in North America, South America, Europe, East Asia and Australia, professionals in Israel conducted fewer risk assessments and used structured instruments less often, highlighting concern about the lack of reliance on evidence-based techniques in the country.

A New User Front End for EAST Remote Participation

The Web-based remote participation system for experimental advanced superconducting tokamak (EAST RPS) has been developed to provide a high-efficient and low-cost way to meet international collaboration requirements. The EAST RPS team focused on the extension, update, and optimization for the RPS during last two years. In the first version, EAST RPS has established Apache-Flex based front-end components to provide a platform-independent user interface. However, some Web browsers, such as Firefox, Google Chrome, and Microsoft Edge, and operation systems (iOS and android) stop supporting or disable the flash player plugin by default, and the Flex technology will become less relevant in the future. The purpose of this paper is to provide an update of the RPD in EAST. The front-end migration should be a priority to update the EAST RPS. The open source, cross-platform, maintainability, and life cycle are the key features that the front-end platform must have. The technical solutions for the new user front end for EAST RPS are offered in this paper.

Improving Urban Planning Information, Transparency and Participation in Public Administrations

In recent years, there has been a renewed interest in the involvement of citizens in all public affairs that is also extended to urban planning. Spanish Public Administrations have made important changes and progress trying to get urban and spatial planning closer to the citizen. Firstly, a significant effort has been made to generate knowledge services providing citizen access to urban planning information. Secondly, administrations try to involve citizens in urban planning through participation programmes by using the new channels that information and communication technology offers. This paper analyses different instruments and web-based participation systems implemented in Spain in order to check the result of these developments concluding that there is still a long considerable way to go since information and communications technologies offers a lot of options and tools to improve these processes.

Can a web-based community of practice be established and operated to lead falls prevention activity in residential care?

The aims of this study were to evaluate establishing and operating a web-based community of practice (CoP) to lead falls prevention in a residential aged care (RAC) setting. A mixed methods evaluation was conducted in two phases using a survey and transcripts from interactive electronic sources. Nurses and allied health staff (n = 20) with an interest in falls prevention representing 13 sites of an RAC organization participated. In Phase 1, the CoP was developed, and the establishment of its structure and composition was evaluated using determinants of success reported in the literature. In Phase 2, all participants interacted using the web, but frequency of engagement by any participant was low. Participatory barriers, including competing demands from other tasks and low levels of knowledge about information communication technology (ICT) applications, were identified by CoP members. A web-based CoP can be established and operated across multiple RAC sites if RAC management support dedicated time for web-based participation and staff are given web-based training.

Clinical Effectiveness of Lifestyle Health Coaching: Case Study of an Evidence-Based Program.

We have developed, tested, and successfully implemented an affordable, evidence-based, technology-enabled, data-driven, outcomes-oriented, comprehensive lifestyle health coaching (LHC) program. The LHC program has been used primarily to provide services to employees of larger employers (ie, with at least 3000 employees) but has also been implemented in a variety of other settings, including hospitals, cardiac rehabilitation centers, physician practices, and as part of multicenter clinical trials. The program is delivered mainly using the telephone and Internet. Health coaches are guided by a Web-based participant management and tracking system. Lifestyle management interventions are based on several behavior change models and strategies, especially adult learning theory, social learning theory, the stages of change model, single concept learning theory, and motivational interviewing. The program is administered by nonphysician health professionals whose services are integrated with the care provided by participants' physicians. Outcomes data from published studies, including randomized clinical trials and independent third-party conducted research, have documented the clinical effectiveness of this evidence-based approach in terms of modification of multiple risk factors in healthy persons as well as those with certain common chronic diseases.

Ensuring VGI Credibility in Urban-Community Data Generation: A Methodological Research Design

In this paper we outline the methodological development of current research into urban community formations based on combinations of qualitative (volunteered) and quantitative (spatial analytical and geo-statistical) data. We outline a research design that addresses problems of data quality relating to credibility in volunteered geographic information (VGI) intended for Web-enabled participatory planning. Here we have drawn on a dual notion of credibility in VGI data, and propose a methodological workflow to address its criteria. We propose a ‘super-positional’ model of urban community formations, and report on the combination of quantitative and participatory methods employed to underpin its integration. The objective of this methodological phase of study is to enhance confidence in the quality of data for Web-enabled participatory planning. Our participatory method has been supported by rigorous quantification of area characteristics, including participant communities’ demographic and socio-economic contexts. This participatory method provided participants with a ready and accessible format for observing and mark-making, which allowed the investigators to iterate rapidly a system design based on participants’ responses to the workshop tasks. Participatory workshops have involved secondary school-age children in socio-economically contrasting areas of Liverpool (Merseyside, UK), which offers a test-bed for comparing communities’ formations in comparative contexts, while bringing an under-represented section of the population into a planning domain, whose experience may stem from public and non-motorised transport modalities. Data has been gathered through one-day participatory workshops, featuring questionnaire surveys, local site analysis, perception mapping and brief, textual descriptions. This innovative approach will support Web-based participation among stakeholding planners, who may benefit from well-structured, community-volunteered, geo-located definitions of local spaces.

Assessing the Effects of Participant Preference and Demographics in the Usage of Web-based Survey Questionnaires by Women Attending Screening Mammography in British Columbia.

BackgroundIncreased usage of Internet applications has allowed for the collection of patient reported outcomes (PROs) and other health data through Web-based communication and questionnaires. While these Web platforms allow for increased speed and scope of communication delivery, there are certain limitations associated with this technology, as survey mode preferences vary across demographic groups.ObjectiveTo investigate the impact of demographic factors and participant preferences on the use of a Web-based questionnaire in comparison with more traditional methods (mail and phone) for women participating in screening mammography in British Columbia, Canada.MethodsA sample of women attending the Screening Mammography Program of British Columbia (SMPBC) participated in a breast cancer risk assessment project. The study questionnaire was administered through one of three modes (ie, telephone, mail, or website platform). Survey mode preferences and actual methods of response were analyzed for participants recruited from Victoria General Hospital. Both univariate and multivariate analyses were used to investigate the association of demographic factors (ie, age, education level, and ethnicity) with certain survey response types.ResultsA total of 1192 women successfully completed the study questionnaire at Victoria General Hospital. Mail was stated as the most preferred survey mode (509/1192, 42.70%), followed by website platform (422/1192, 35.40%), and telephone (147/1192, 12.33%). Over 80% (955/1192) of participants completed the questionnaire in the mode previously specified as their most preferred; mail was the most common method of response (688/1192, 57.72%). Mail was also the most preferred type of questionnaire response method when participants responded in a mode other than their original preference. The average age of participants who responded via the Web-based platform (age 52.9, 95% confidence interval [CI] 52.1-53.7) was significantly lower than those who used mail and telephone methods (age 55.9, 95% CI 55.2-56.5; P<.001); each decade of increased age was associated with a 0.97-fold decrease in the odds of using the website platform (P<.001). Web-based participation was more likely for those who completed higher levels of education; each interval increase leading to a 1.83 increase in the odds of website platform usage (P<.001). Ethnicity was not shown to play a role in participant preference for the website platform (P=.96).ConclusionsIt is beneficial to consider participant survey mode preference when planning to collect PROs and other patient health data. Younger participants and those of higher education level were more likely to use the website platform questionnaire; Web-based participation failed to vary across ethnic group. Because mail questionnaires were still the most preferred survey mode, it will be important to employ strategies, such as user-friendly design and Web-based support, to ensure that the patient feedback being collected is representative of the population being served.

웹 기반 참여형 IoT 서비스 브로커링 플랫폼 개발

웹 기반 참여형 IoT 서비스 브로커링 플랫폼 개발

Automated collection of imaging and phenotypic data to centralized and distributed data repositories.

Accurate data collection at the ground level is vital to the integrity of neuroimaging research. Similarly important is the ability to connect and curate data in order to make it meaningful and sharable with other investigators. Collecting data, especially with several different modalities, can be time consuming and expensive. These issues have driven the development of automated collection of neuroimaging and clinical assessment data within COINS (Collaborative Informatics and Neuroimaging Suite). COINS is an end-to-end data management system. It provides a comprehensive platform for data collection, management, secure storage, and flexible data retrieval (Bockholt et al., 2010; Scott et al., 2011). It was initially developed for the investigators at the Mind Research Network (MRN), but is now available to neuroimaging institutions worldwide. Self Assessment (SA) is an application embedded in the Assessment Manager (ASMT) tool in COINS. It is an innovative tool that allows participants to fill out assessments via the web-based Participant Portal. It eliminates the need for paper collection and data entry by allowing participants to submit their assessments directly to COINS. Instruments (surveys) are created through ASMT and include many unique question types and associated SA features that can be implemented to help the flow of assessment administration. SA provides an instrument queuing system with an easy-to-use drag and drop interface for research staff to set up participants' queues. After a queue has been created for the participant, they can access the Participant Portal via the internet to fill out their assessments. This allows them the flexibility to participate from home, a library, on site, etc. The collected data is stored in a PostgresSQL database at MRN. This data is only accessible by users that have explicit permission to access the data through their COINS user accounts and access to MRN network. This allows for high volume data collection and with minimal user access to PHI (protected health information). An added benefit to using COINS is the ability to collect, store and share imaging data and assessment data with no interaction with outside tools or programs. All study data collected (imaging and assessment) is stored and exported with a participant's unique subject identifier so there is no need to keep extra spreadsheets or databases to link and keep track of the data. Data is easily exported from COINS via the Query Builder and study portal tools, which allow fine grained selection of data to be exported into comma separated value file format for easy import into statistical programs. There is a great need for data collection tools that limit human intervention and error while at the same time providing users with intuitive design. COINS aims to be a leader in database solutions for research studies collecting data from several different modalities.

Introduction: Adaptation, Transmedia Storytelling and Participatory Culture

Since August 2010, Star Wars Uncut has been available online, a montage of 473 fifteen-second clips that reenact the movie Star Wars Episode IV: A New Hope . ‘Curated’ by Web designer Casey Pugh, the website invited fans to upload collectively an ‘amateur’ collage of the Lucasfilm franchise. ‘Democratically’, the clips that garnered most votes were accepted into the finished movie, generating an enjoyable vernacular or grassroots version of the Hollywood franchise. Star Wars Uncut won the Creative Arts Emmy Award for Outstanding Achievement in Interactive Media in 2010, which makes clear that the low-threshold participation of fans and audiences has by now enormous impact beyond the marketing and public relations offices. Is this ‘crowdsourced’ movie an adaptation, an appropriation, or a remake? How does it use the changing modes of distribution and dissemination of cultural products? How does it relate to its foundational source text, the media franchise? What does it tell us about its Web-based generators, the ‘prosumers’ (Alvin Toffler) that turn cultural reception into cultural performance? What has the user-generated intertextuality of ‘vidding’, ‘mashups’, and ‘Internet memes’ on transient video/text platforms and archives—narratives that have been disregarded by Adaptation Studies until recently—to contribute as new textual modes, cultural phenomena, and social practices to our field of inquiry? How transgressive is mashup culture? And how politically, aesthetically, and culturally valid is the transgression of these fractured works, available in fluid versions within the distributive networks of ‘digital prosumption’? Are these the free and creative variations of ‘cultural jazz’ or merely a playground fostered by Big Bad Media to better situate and flog the products of corporate intertextuality? In what way does the anarchic carnival of Web-based participation create a new dialogic and heteroglossic media aesthetics requiring a different set of research tools?

Decreasing Health Disparities through Technology: Building a Community Health Website

The mission of participatory health communication is to collaborate with communities to provide new information about health knowledge, access to care, and the health needs specific to a community. We present the development of the Community Health Website for communities affected by health disparities in the Southwest United States. The internet is used to effectively engage populations that have been traditionally thought of as unreachable through community-based and culturally-centered research approaches. Specifically, we offer suggestions in working to solve public health problems of underserved communities in the Southwest through web-based health education, interactive kiosks, outreach and participation.