Web-based Communities Research Articles

Family Social Capital and Sustainable Well-Being: Navigating Chinese Adolescents’ Well-Being During COVID-19 Lockdown

ABSTRACT The COVID-19 pandemic caused widespread disruption as governments took actions to limit the spread of the virus. Measures such as physical distancing and lockdowns changed living conditions, leading to challenges such as social isolation and reduced connectedness. This study explores COVID-19’s impact on adolescents’ well-being, emphasising family social capital, which refers to supportive adult-child relationships that foster well-being and enhance remote learning. Quantitative data was collected through an online survey from August 2022 to August 2023, involving 4008 students and 3511 parents. Semi-structured interviews with six students and their parents (either the mother or the father) provided in-depth insights into the perceived role of family social capital in shaping adolescents’ well-being during quarantine. Quantitative data revealed that parental education level significantly influenced adolescents’ self-reported well-being and resilience, and family income influenced parents’ perceptions of their children’s well-being. Qualitative data highlighted the importance of strong family bonds, effective parent-child relationships, and robust family support in mitigating the adverse effects of prolonged home quarantine. The research also discovered the role of adolescents’ agency in building social capital through web-based communities. The study contributes to understanding Chinese adolescents’ well-being during the COVID-19 pandemic, providing implications for supporting their well-being in the post-pandemic era.

Differences in Fear and Negativity Levels Between Formal and Informal Health-Related Websites: Analysis of Sentiments and Emotions.

Searching for web-based health-related information is frequently performed by the public and may affect public behavior regarding health decision-making. Particularly, it may result in anxiety, erroneous, and harmful self-diagnosis. Most searched health-related topics are cancer, cardiovascular diseases, and infectious diseases. A health-related web-based search may result in either formal or informal medical website, both of which may evoke feelings of fear and negativity. Our study aimed to assess whether there is a difference in fear and negativity levels between information appearing on formal and informal health-related websites. A web search was performed to retrieve the contents of websites containing symptoms of selected diseases, using selected common symptoms. Retrieved websites were classified into formal and informal websites. Fear and negativity of each content were evaluated using 3 transformer models. A fourth transformer model was fine-tuned using an existing emotion data set obtained from a web-based health community. For formal and informal websites, fear and negativity levels were aggregated. t tests were conducted to evaluate the differences in fear and negativity levels between formal and informal websites. In this study, unique websites (N=1448) were collected, of which 534 were considered formal and 914 were considered informal. There were 1820 result pages from formal websites and 1494 result pages from informal websites. According to our findings, fear levels were statistically higher (t2753=3.331; P<.001) on formal websites (mean 0.388, SD 0.177) than on informal websites (mean 0.366, SD 0.168). The results also show that the level of negativity was statistically higher (t2753=2.726; P=.006) on formal websites (mean 0.657, SD 0.211) than on informal websites (mean 0.636, SD 0.201). Positive texts may increase the credibility of formal health websites and increase their usage by the general public and the public's compliance to the recommendations. Increasing the usage of natural language processing tools before publishing health-related information to achieve a more positive and less stressful text to be disseminated to the public is recommended.

Web-based Community Health Monitoring Information System (SIP-UKGM) for Pregnant Women

Web-based Community Health Monitoring Information System (SIP-UKGM) for Pregnant Women

Needs Expressed in Peer-to-Peer Web-Based Interactions Among People With Depression and Anxiety Disorders Hospitalized in a Mental Health Facility: Mixed Methods Study.

Hospitalization in psychiatric wards is a necessary step for many individuals experiencing severe mental health issues. However, being hospitalized can also be a stressful and unsettling experience. It is crucial to understand and address the various needs of hospitalized individuals with psychiatric disorders to promote their overall well-being and support their recovery. Our objectives were to identify and describe individual needs related to mental hospitals through peer-to-peer interactions on Polish web-based forums among individuals with depression and anxiety disorders and to assess whether these needs were addressed by peers. We conducted a search of web-based forums focused on depression and anxiety and selected samples of 160 and 176 posts, respectively, until we reached saturation. A mixed methods analysis that included an in-depth content analysis, the Pearson χ2 test, and φ coefficient was used to evaluate the posts. The most frequently identified needs were the same for depression and anxiety forums and involved informational (105/160, 65.6% and 169/393, 43%, respectively), social life (17/160, 10.6% and 90/393, 22.9%, respectively), and emotional (9/160, 5.6% and 66/393, 16.8%, respectively) needs. The results show that there is no difference in the expression of needs between the analyzed forums. The needs were directly (42/47, 89% vs 98/110, 89.1% of times for depression and anxiety, respectively) and not fully (27/47, 57% vs 86/110, 78.2% of times for depression and anxiety, respectively) addressed by forum users. In quantitative analysis, we found that depression-related forums had more posts about the need for informational support and rectification, the expression of anger, and seeking professional support. By contrast, anxiety-related forums had more posts about the need for emotional support; social life; and information concerning medications, hope, and motivation. The most common co-occurrence of expressed needs was between sharing own experience and the need for professional support, with a strong positive association. The qualitative analysis showed that users join web-based communities to discuss their fears and questions about psychiatric hospitals. The posts revealed 4 mental and emotional representations of psychiatric hospitals: the hospital as an unknown place, the ambivalence of presumptions and needs, the negative representation of psychiatric hospitals, and the people associated with psychiatric hospitals. The tone of the posts was mostly negative, with discussions revolving around negative stereotypes; traumatic experiences; and beliefs that increased anxiety, shock, and fright and deterred users from hospitalization. Our study demonstrates that web-based forums can provide a platform for individuals with depression and anxiety disorders to express a wide range of needs. Most needs were addressed by peers but not sufficiently. Mental health professionals can benefit from these findings by gaining insights into the unique needs and concerns of their patients, thus allowing for more effective treatment and support.

P-326 Improving quality of life and awareness of endometriosis patients using personalized web app with indications about non pharmacological support and lifestyle changes

Abstract Study question Is it possible to improve quality of life of endometriosis patients using a personalized web app suggesting non-pharmacological interventions and lifestyle changes ? Summary answer A personalized web app is useful to improve awareness and quality of life of endometriosis patients What is known already Our project is based on four main considerations: first, there is a lack of information and awareness about endometriosis symptoms and possible treatments among affected patients; second, there is no definitive cure yet and nor medications nor surgery can be considered as definitive solution; third, web instruments and social media are useful nowadays to spread knowledges about the disease; fourth, non-pharmacological support is a real instrument to better deal with the symptoms and improve quality of life. Our web app is located in this context. Study design, size, duration This is a pilot study structured on one year follow-up of symptoms and quality of life of patients with confirmed endometriosis, giving them non-pharmacological suggestions and lifestyle changes useful to better face the pathology using a personalized web app. So far, we collected data from 50 patients. Preliminary results will be based on six months followup. The project started in December 2023 Participants/materials, setting, methods Participants are patients with diagnosis of endometriosis -ultrasound,mri and surgery - between 24-45 years old, using a personalized web app in which suggestions about non-pharmacological support/lifestyle changes, given by a multidisciplinary team, are contained. Indications received are based on pelvic symptoms - dysmenorrhea, dyspareunia, chronic pelvic pain- and main systemic symptoms - chronic fatigue syndrome, migraine, bowel implications/endobelly, urinary disfunctions. Quality of life before and after the indications received was measured using EHP-30 questionnaire. Main results and the role of chance A multidisciplinary team - specialists in gynaecology, infertility, urology, pelvic floor, nutrition, chronic pain, acupuncture, psychology, yoga/pilates, law- created a web app in which indications about non-pharmacological treatments/lifestyle changes to face endometriosis symptoms are contained. We divided the indications based on main pelvic symptoms of endometriosis - dysmenorrhea, dyspareunia, chronic pelvic pain- and main systemic symptoms - chronic fatigue syndrome, migraine, bowel implications/endobelly, urinary disfunctions. For each protocol, in validation by Italian ministry of health and structured in six months indications to be followed, we gave correct informations about the pathophysiology of endometriosis, related symptoms and how to recognize them, which specialist patients should consult, what kind of supplements are useful to reduce chronic inflammation in addition/without medical therapy, implications on fertility, nutrition indications, psycological support, physical activity, when surgery should be considered or where to refer to have a proper treatment. We also created the first online community formed by specialists and patients: patients web groups are useful to share experiences, but there is risk of misinformation. The presence of specialists in a web-based community with patients could also make the difference. So far, following our indications, 50 patients reported a significant improvement in quality of life Limitations, reasons for caution Limitation in patients selection is the difference in methods of diagnosis, not always performed by specialists. We do not find reasons for caution: non-pharmacological support exists. Correct informations in unique source raise awareness, the role of supplements, pelvic floor treatments, acupuncture, nutrition, psycological support are widely recognized in literature Wider implications of the findings We aim to properly support patients in management of endometriosis. With easily wide-spreading instruments such a web app created by specialists, supported by social media and online community, we also aim to reduce the diagnostic delay. Results so far indicate improvement in quality of life among the participants. Trial registration number not applicable

Implementasi Sistem Informasi Desa Berbasis Web Menggunakan OpenSID di Desa Ngraket Kecamatan Balong Kabupaten Ponorogo

The Village Information System is an integral part of the implementation of the Village Law. Village Law Article 86 concerning Village Development Information Systems and Rural Area Development clearly requires that villages have the right to access information through information systems developed by the Regency or City Regional Government. Together with the rapid development of technology, the need for fast, accurate, easy and practical data processing has become a demand. This also applies to data management in village government institutions, where each village is required to provide the best service to the community in various fields such as writing letters, population data collection, and other needs related to services at the village office. However, most of the service processes still use conventional methods. Therefore, we propose the use of a web-based community service application in Ngraket Village. This application is designed using a web platform so that it can be accessed online, allowing the people of Ngraket Village to enjoy Village services more quickly and easily. The implementation of this Village website must be carried out actively and the content must be in accordance with the menu available on the website. The implication of implementing a website-based village information system is to increase transparency, community participation and information accessibility. With this application, it is hoped that the quality of the service process to the people of Ngraket Village can increase significantly.

Web-Based Community Data Collection Information System at the Central Statistics Agency of Sragen Regency

The community data collection information system is a technological solution designed to efficiently collect, manage, and analyze information from various layers of the community. The main objective of this system is to support data-driven decision-making by facilitating the collection of accurate, fast, and measurable information. The limitation of manual community data collection at the Central Statistics Agency (Badan Pusat Statistik) in Sragen Regency has led to data damage, loss of data, and ambiguity in data due to the information being written on questionnaire papers using pencils. Due to the abundance of population data that needs to be stored and to support the performance of officers, there is a need for a computerized web-based system as a tool for officers to carry out their activities. The aim of this research is to design a Web-Based Community Data Collection Information System at the Central Statistics Agency in Sragen Regency. The researcher uses the Waterfall method in the system development process and the PHP programming language, along with the MySQL database. The system designed by the researcher is expected to produce an application that can accommodate all community data accessible via the web by administrators and field officers at the Central Statistics Agency in Sragen Regency.

Effect of Prosocial Behaviors on e-Consultations in a Web-Based Health Care Community: Panel Data Analysis.

Patients using web-based health care communities for e-consultation services have the option to choose their service providers from an extensive digital market. To stand out in this crowded field, doctors in web-based health care communities often engage in prosocial behaviors, such as proactive and reactive actions, to attract more users. However, the effect of these behaviors on the volume of e-consultations remains unclear and warrants further exploration. This study investigates the impact of various prosocial behaviors on doctors' e-consultation volume in web-based health care communities and the moderating effects of doctors' digital and offline reputations. A panel data set containing information on 2880 doctors over a 22-month period was obtained from one of the largest web-based health care communities in China. Data analysis was conducted using a 2-way fixed effects model with robust clustered SEs. A series of robustness checks were also performed, including alternative measurements of independent variables and estimation methods. Results indicated that both types of doctors' prosocial behaviors, namely, proactive and reactive actions, positively impacted their e-consultation volume. In terms of the moderating effects of external reputation, doctors' offline professional titles were found to negatively moderate the relationship between their proactive behaviors and their e-consultation volume. However, these titles did not significantly affect the relationship between doctors' reactive behaviors and their e-consultation volume (P=.45). Additionally, doctors' digital recommendations from patients negatively moderated both the relationship between doctors' proactive behaviors and e-consultation volume and the relationship between doctors' reactive behaviors and e-consultation volume. Drawing upon functional motives theory and social exchange theory, this study categorizes doctors' prosocial behaviors into proactive and reactive actions. It provides empirical evidence that prosocial behaviors can lead to an increase in e-consultation volume. This study also illuminates the moderating roles doctors' digital and offline reputations play in the relationships between prosocial behaviors and e-consultation volume.

Implementation of Web Based (Sisrute) Application Patient Referral From Public Health Center in Pamekasan

Health service referrals are a form of health service that regulates the delegation of duties and responsibilities for health services with the aim of healing and restoring the patient's health status. One important aspect in human life is health referrals which require fast, practical, efficient and accurate and reliable information. The purpose of this study was to determine to what extent the implementation of the web-based community health center patient referral application (SISRUTE) in Pamekasan can overcome obstacles in medical referrals, making it easier for health workers to optimize health services. The method used in this research is a qualitative approach which is defined as a research procedure that produces descriptive data which aims to reveal the in-depth meaning behind a phenomenon. Data were collected using Purposive Sampling with in-depth interview techniques by asking 13 questions consisting of 8 nurses and 5 midwife accompanied by 1 Triangulator, head of the Pamekasan district referral department. Data collection techniques use observation, interviews, documentation and case studies. From the results of this research it is known that the implementation of the use of the integrated referral system application (SISRUTE) in Pamekasan district for individual health service referrals can improve the quality, coverage, effectiveness and efficiency of integrated health services with the help of supporting facilities and infrastructure as well as the ability of human resources to operate, and with the web referral application, health workers feel that it is very helpful in speeding up patient referrals to the next level of health facilities.

The Impact of Social Media Use on Mental Health and Family Functioning Within Web-Based Communities in Saudi Arabia: Ethnographic Correlational Study.

In recent years, increasing numbers of parents, activists, and decision-makers have raised concerns about the potential adverse effects of social media use on both mental health and family functioning. Although some studies have indicated associations between social media use and negative mental health outcomes, others have found no evidence of mental health harm. This correlation study investigated the interplay between social media use, mental health, and family functioning. Analyzing data from 314 users, this study explores diverse mental health outcomes. The study places particular emphasis on the Saudi Arabian sample, providing valuable insights into the cultural context and shedding light on the specific dynamics of social media's impact on mental well-being and family dynamics in this demographic context. We collected data through a subsection of an anonymous web-based survey titled "The Effect of COVID-19 on Social Media Usage, Mental Health, and Family Functioning." The survey was distributed through diverse web-based platforms in Saudi Arabia, emphasizing the Saudi sample. The participants indicated their social media accounts and estimated their daily use. Mental health was assessed using the General Health Questionnaire and family functioning was evaluated using the Family Assessment Device Questionnaire. In addition, 6 mental health conditions (anxiety, self-esteem, depression, body dysmorphia, social media addiction, and eating disorders) were self-reported by participants. The study demonstrates a pattern of frequent social media use, with a significant portion dedicating 3-5 hours daily for web-based activities, and most of the sample accessed platforms multiple times a day. Despite concerns about social media addiction and perceived unhealthiness, participants cited staying connected with friends and family as their primary motivation for social media use. WhatsApp was perceived as the most positively impactful, whereas TikTok was considered the most negative for our Saudi sample. YouTube, Instagram, and Snapchat users reported poorer mental health compared with nonusers of these platforms. Mental health effects encompassed anxiety and addiction, with age and gender emerging as significant factors. Associations between social media use and family functioning were evident, with higher social media quartiles correlating with a greater likelihood of mental health and unhealthy family functioning. Logistic regression identified age and gender as factors linked to affected mental health, particularly noting that female participants aged 25-34 years were found to be more susceptible to affected mental health. In addition, multivariable analysis identified age and social media use quartiles as factors associated with poor family functioning. This study examined how social media affects mental health and family functioning in Saudi Arabia. These findings underscore the need for culturally tailored interventions to address these challenges, considering diverse demographic needs. Recognizing these nuances can guide the development of interventions to promote digital well-being, acknowledging the importance of familial connections in Saudi society.

Development of Website-Based Accounting Information Systems of Comprehensive Income Reports for Citizen Water Management

The current management of community water businesses still uses a manual or conventional system. The conventional system that occurs is that the officer manually records the use of water made in a recap, and then the financial section has no accounting information system, so it still uses Google Spreadsheets and accounting processes that refer to the accounting standards designed. Based on existing problems, a website-based accounting information system for comprehensive income reports for citizen water management is needed. The research objective is to build a website-based Citizen Water Management Comprehensive Income Report Accounting Information System. The research method used was descriptive survey research, in which the author describes a situation or phenomenon systematically in a clear and detailed manner, including processes and components that occur, to find solutions to the problems found. The population in the study is the financial details of the water fund in 2022, and the sample is the financial details of the water report for October 2020. The types of data collection methods are interviews, observation, and library research. In research, the type of design used is descriptive analysis with primary data. One of the system methods is the waterfall method. The result of his research was the design of a comprehensive income reporting accounting information system for web-based community water management so that it facilitates the process of recording transactions and producing accurate financial reports for citizen water management.

Sustained Effectiveness of the Walk Across Texas Program: A Follow-up Study

Objectives: In this study, we used a follow-up assessment to determine the sustained effectiveness of Walk Across Texas, a web-based community physical activity program. Methods: We recruited a sample of adult participants (N=291) who completed program assessments across 3 time periods (pre-, post-, follow-up) in 2018. We assessed changes in self-reported physical activity (days/week). Statistical analysis incorporated paired-samples t-tests, repeated measures ANOVA, and an assessment of participants' overall physical activity changes during the program and follow-up. Results: Overall, there were statistically significant differences (p &lt; .05) between self-reported physical activity pre-program (4.12 ± 2.10), post-program (5.06 ± 2.04), and at follow-up (4.40 ± 1.98). Notably, a defined Low Active pre-program activity group significantly increased from pre- (1.21 ± 0.87) to post-program (4.29 ± 2.06). Despite a decrease from post-program to follow-up (3.06 ± 1.86; δ = -1.24 days), the difference remained higher and statistically significant from pre-program. Further analysis explored limitations associated with estimating one's physical activity change in behavior. Conclusions: The results support the sustained effectiveness of the Walk Across Texas program. Overall, participants showed increased and maintained physical activity for up to 150 days from pre-program.

CONNECTING THE HEALTH CARE WORKFORCE THROUGH A VIRTUAL LEARNING COMMUNITY

Abstract The COVID-19 pandemic highlighted the need for online and virtual educational opportunities and resources. While many healthcare organizations, hospitals and academic medical institutions were forced to quickly pivot from face-to-face training modalities, the Virtual Learning Community (VLC) of the Geriatric Scholars Program, was ahead of the curve. Established in 2014 by the VA Geriatric Scholars Program and the VHA’s Office of Rural Health, the VLC is the primary outlet for information on geriatrics and gerontology for healthcare professionals and staff. The VLC provides webinars, discussion forums, case studies, continuing education accredited programs, and resource materials on a myriad of topics related to aging. During the pandemic, the VLC provided up-to-date information on COVID and continued to augment its virtual offerings, which was vital to providers and staff working remotely. The VLC currently has approximately 5,000 registered users, with 1700 users registering since the pandemic began in March 2020. Many of these users come from rural and highly rural areas, where there is often a lack of geriatric knowledge and expertise. The presentation will present findings about the connections and impact made possible by a pre-existing web-based virtual learning community.

BERTs of a feather: Studying inter- and intra-group communication via information theory and language models.

When communicating, individuals alter their language to fulfill a myriad of social functions. In particular, linguistic convergence and divergence are fundamental in establishing and maintaining group identity. Quantitatively characterizing linguistic convergence is important when testing hypotheses surrounding language, including interpersonal and group communication. We provide a quantitative interpretation of linguistic convergence grounded in information theory. We then construct a computational model, built on top of a neural network model of language, that can be deployed to measure and test hypotheses about linguistic convergence in "big data." We demonstrate the utility of our convergence measurement in two case studies: (1) showing that our measurement is indeed sensitive to linguistic convergence across turns in dyadic conversation, and (2) showing that our convergence measurement is sensitive to social factors that mediate convergence in Internet-based communities (specifically, r/MensRights and r/MensLib). Our measurement also captures differences in which social factors influence web-based communities. We conclude by discussing methodological and theoretical implications of this semantic convergence analysis.

Preliminary Evaluation of a Web-Based International Journal Club for Ketamine in Psychiatric Disorders: Cross-Sectional Survey Study.

The use of novel rapid-acting antidepressants for psychiatric disorders is expanding. The web-based Ketamine and Related Compounds International Journal Club (KIJC) was created during the COVID-19 pandemic by UK academic psychiatrists and trainees for interested global professionals to discuss papers related to the topic of ketamine for the treatment of psychiatric disorders. The KIJC aimed to facilitate bidirectional discussions, sharing of ideas, and networking among participants. The aim of this study is a preliminary evaluation of the journal club's format for satisfaction and impact after the first year of running. A website, email, and word of mouth were used for recruitment. The journal club was held twice per month using videoconferencing software in 3 parts: a 20-minute presentation, a 15-minute chaired question and answer session, and a 25-minute informal discussion with participants' cameras on. The first 2 parts were recorded and uploaded to the website alongside links to the corresponding papers. In total, 24 speakers presented from 8 countries, typically within 2 (SD 2) months of publication. The average attendance was 51 (SD 20) audience members, and there were 63 (SD 50) views of each subsequent recording. Two anonymous web-based cross-sectional surveys were conducted from November 2021 to February 2022, one for speakers and another for audience members, separately. Various survey statements, 14 for speakers and 12 for the audience, were categorized according to satisfaction and impact, alongside obtaining participants' primary career roles and requesting optional written feedback. Responses were compared between both groups and analyzed, including an inductive thematic analysis and a summary of lessons learned. A total of 30 survey responses were obtained, demonstrating overall agreement with the statements. In total, 12 (50%) out of 24 speakers and 18 (35%) out of an average of 51 (SD 20) audience members regarded the journal club's format as satisfying and impactful. The majority (26/30, 87%) of respondents identified as clinicians (9/30, 30%), researchers (9/30, 30%), and clinician-researchers (8/30, 27%). Additionally, 11 (37%) of the 30 respondents also provided optional written feedback: 3 (10%) speakers and 8 (27%) audience members. From the written feedback, 5 main themes were derived: engagement with the journal club, desire for active participation, improving the platform, positive learning experiences, and suggestions for future sessions. The journal club successfully reached its intended audience and developed into a web-based community. The majority of the participants were satisfied with the format and found it impactful. Overall, the journal club appears to be a valuable tool for knowledge sharing and community building in the field of ketamine use for the treatment of psychiatric disorders. A larger sample size and additional testing methods are required to support the generalizability of the journal club's format.

Social media as a tool supporter in disaster management: Comparative analysis between Türkiye and Iraq

ABSTRACT Public information and early warning are key components of social disaster prevention because they can complement planning, and multi-disciplinary coordination and minimize losses. Social media has increasingly become an important communication channel for users to disseminate useful public and emergency information in these incidents. Communications, including web-based services, between governments, communities, and people involved in the management of disasters are mandatory for the purposes of early warning, rescue services, and recovery. Purpose of this article is exploring how people may use or had used the social media applications during the disaster and provide the advantages of social media in disaster management all over the world but specifically for citizens of Türkiye and Iraq. To get the response of the users, a Google form based survey questionnaire was distributed to the users through the internet. Two hundred and eleven persons, from both genders responded, ages ranged from 17 years to above 45, from different educational levels, inhabiting Türkiye (n = 105, 49.8%), Iraq (n = 88, 41.7%), and other countries (n = 18, 8.5%). The study shows that depending on the culture, social media usage behaviors change for disaster situations. During the disaster, Iraqi citizens preferred to use the Facebook application, meanwhile Türkish citizens prefer to use WhatsApp application to communicate. Both, governments and private sector, are invited to establish and continuously update the infrastructure and facilities of an effective social media communication system, plans should be made to encourage all sectors of society to learn how to use social media in the event of a disaster.

Web-Based Community Satisfaction System Survey (Case Study in Regional Revenue Management Unit Holy District)

As public service providers, officials have obligations and responsibilities responsible for the quality of services provided to the community. People who receive services from service providers should have a right and authority to provide an opinion or assessment of the service they have received. This research aims to design and build a Survey System Web Based Community Satisfaction (Case Study in Management Unit Kudus Regency Regional Revenue). This website was built with language HTML, PHP, CSS, Java Script and database programming uses MySQL, where this Web Application has 3 access rights, namely admin, surveyor, and visitors/respondents. This survey questionnaire application is integrated with the base data, by utilizing the MySql database, data processing and creation reporting becomes easier. Data collection with survey questionnaires can be more effective and efficient, as well produce relevant information.

Validation of a Brief Internet-Based Self-Report Measure of Maladaptive Personality and Interpersonal Schema: Confirmatory Factor Analysis.

Existing digital mental health interventions mainly focus on the symptoms of specific mental disorders, but do not focus on Maladaptive Personalities and Interpersonal Schemas (MPISs). As an initial step toward considering personalities and schemas in intervention programs, there is a need for the development of tools for measuring core personality traits and interpersonal schemas known to cause psychological discomfort among potential users of digital mental health interventions. Thus, the MPIS was developed. The objectives of this study are to validate the MPIS by comparing 2 models of the MPIS factor structure and to understand the characteristics of the MPIS by assessing its correlations with other measures. Data were collected from 234 participants who were using web-based community sites in South Korea, including university students, graduate students, working professionals, and homemakers. All the data were gathered through web-based surveys. Confirmatory factor analysis was used to compare a single-factor model with a 5-factor model. Reliability and correlation analyses with other scales were performed. The results of confirmatory factor analysis indicated that the 5-factor model (χ2550=1278.1; Tucker-Lewis index=0.80; comparative fit index=0.81; and Root Mean Square Error of Approximation=0.07) was more suitable than the single-factor model (χ2560=2341.5; Tucker-Lewis index=0.52; comparative fit index=0.54; and Root Mean Square Error of Approximation=0.11) for measuring maladaptive personality traits and interpersonal relationship patterns. The internal consistency of each factor of the MPIS was good (Cronbach α=.71-.88), and the correlations with existing measures were statistically significant. The MPIS is a validated 35-item tool for measuring 5 essential personality traits and interpersonal schemas in adults aged 18-39 years. This study introduced the MPIS, a concise and effective questionnaire capable of measuring maladaptive personality traits and interpersonal relationship schemas. Through analysis, the MPIS was shown to reliably assess these psychological constructs and validate them. Its web-based accessibility and reduced item count make it a valuable tool for mental health assessment. Future applications include its integration into digital mental health care services, allowing easy web-based administration and aiding in the classification of psychological therapy programs based on the obtained results. ClinicalTrials.gov NCT05952063; https://www.clinicaltrials.gov/study/NCT05952063.

Patients With Rare Diseases and the Power of Online Support Groups: Implications for the Medical Community.

Previous studies have shown positive tangible health benefits from using online support communities for informational support, daily living support, and emotional support. The specifics of how these communities can be improved have not been studied in detail. This study will investigate various sources of information that patients with genetic disorders use to learn more about their condition. We will be using patients with Ehlers-Danlos Syndrome (EDS) as a typical representation of the wider group of patients with genetic disorders. This study will also investigate the benefits and disadvantages of web-based platforms and how they can be improved. We used quantitative and qualitative analyses in this study. We undertook a web-based questionnaire survey and semistructured qualitative interviews through Zoom. Questionnaire results were analyzed using descriptive analysis. Thematic coding with constant comparison was used for interview transcript analysis. A total of 436 respondents completed some or all of the survey. The majority of participants are female (386/413, 93.46%), and 24% (99/413) of them are in the age range of 25-34 years. Around 81% (336/413) of the participants have some type of college degree, and 55% (227/413) of them have graduate degrees. About 49.31% (204/413) of them are not currently employed. Most patients stated that their health care providers did not give accurate and complete information to them regarding their health situation (mean 2.87, SD 1.34). Also, patients perceived their providers as not knowledgeable regarding web-based communities that discuss patients' conditions (mean 1.93, SD 1.15). Patients are confident in using health care resources available in web-based health communities (mean 3.78, SD 1.13). We interviewed 30 participants. The demographics of the interviewees were aligned with those of the survey participants. A total of 9 different themes were identified based on the Qualtrics survey and qualitative interviews. Participants shared the pros and cons of different online support groups that they were using and gave suggestions for improvement. They requested a centralized database with different categories of resources classified based on different diseases. They also emphasized the importance of search features and the ability to find relevant information with a hashtag. Furthermore, they elaborated on the privacy and security concerns they have regarding web-based support group platforms. Patients with rare diseases are finding information not available from their health care providers in community support groups. The medical community and web developers have a great opportunity to help these people by engaging with their web-based communities.

Leveraging the Black Girls Run Web-Based Community as a Supportive Community for Physical Activity Engagement: Mixed Methods Study.

About 59%-73% of Black women do not meet the recommended targets for physical activity (PA). PA is a key modifiable lifestyle factor that can help mitigate risk for chronic diseases such as obesity, diabetes, and hypertension that disproportionately affect Black women. Web-based communities focused on PA have been emerging in recent years as web-based gathering spaces to provide support for PA in specific populations. One example is Black Girls Run (BGR), which is devoted to promoting PA in Black women. The purpose of this study was to describe the content shared on the BGR public Facebook page to provide insight into how web-based communities engage Black women in PA and inform the development of web-based PA interventions for Black women. Using Facebook Crowdtangle, we collected posts (n=397) and associated engagement data from the BGR public Facebook page for the 6-month period between June 1, 2021, and December 31, 2021. We pooled data in Dedoose to analyze the qualitative data and conducted a content analysis of qualitative data. We quantified types of posts, post engagement, and compared post types on engagement: "like," "love," "haha," "wow," "care," "sad," "angry," "comments," and "shares." The content analysis revealed 8 categories of posts: shout-outs to members for achievements (n=122, 31%), goals or motivational (n=65, 16%), announcements (n=63, 16%), sponsored or ads (n=54, 14%), health related (n=47, 11%), the lived Black experience (n=23, 6%), self-care (n=15, 4%), and holidays or greetings (n=8, 2%). The 397 posts attracted a total of 55,354 engagements (reactions, comments, and shares). Associations between the number of engagement and post categories were analyzed using generalized linear models. Shout-out posts (n=22,268) elicited the highest average of total user engagement of 181.7 (SD 116.7), followed by goals or motivational posts (n=11,490) with an average total engagement of 160.1 (SD 125.2) and announcements (n=7962) having an average total engagement of 129.9 (SD 170.7). Significant statistical differences were found among the total engagement of posts (χ72=80.99, P<.001), "like" (χ72=119.37, P<.001), "love" (χ72=63.995, P<.001), "wow" (χ72=23.73, P<.001), "care" (χ72=35.06, P<.001), "comments" (χ72=80.55, P<.001), and "shares" (χ72=71.28, P<.001). The majority of content on the BGR Facebook page (n=250, 63%) was focused on celebrating member achievements, motivating members to get active, and announcing and promoting active events. These types of posts attracted 75% of total post engagement. BGR appears to be a rich web-based community that offers social support for PA as well as culturally relevant health and social justice content. Web-based communities may be uniquely positioned to engage minoritized populations in health behavior. Further research should explore how and if web-based communities such as BGR can be interwoven into health interventions and health promotion.