Stress In Caregivers Of Children Research Articles

The mediation role of hope in the relationship of resilience with depression, anxiety, and stress in caregivers of children and adolescents with cancer

This study aimed to determine the mediation role of hope in the relationship of resilience with depression, anxiety, and stress in caregivers of children and adolescents with cancer. This cross-sectional study was conducted on 200 caregivers of children and adolescents with cancer. Adult Hope Scale, Connor-Davidson Resilience Scale, and Depression, Anxiety and Stress (DAS) scales were used for data collection. The mediator and moderator model was tested using the SPSS macro PROCESS (Model 4, and 5). The mediator model (model 4) indicated that DAS significantly correlated with resilience (β = − 0.54, t-value = − 5.01, p < 0.001), and hope (β = − 0.84, t-value = − 3.45, p = 0.0007). Hope mediated the relationship between resilience and DAS among caregivers of children and adolescents with cancer (Effect = − 0.18, SE = 0.06, 95% CI − 0.33 to − 0.06). The mediator and moderator model (model 5) showed that female caregivers had a stronger correlation between resilience and DAS when compared to their male counterparts (β = − 0.56, t-value = − 3.90, p-value = 0.0001); also, hope mediated the relationship between resilience and DAS among caregivers of children and adolescents with cancer (Effect = − 0.20, SE = 0.08, 95% CI − 0.37 to − 0.04). In conclusion, hope was a mediator, and female caregivers were a moderator in the relationship of resilience with depression, anxiety, and stress, and its promotion might be effective among caregivers of children and adolescents with cancer. It seems that resilience, female caregivers, and hope may provide good protection against depression, anxiety, and stress in caregivers of cancer patients.

Do Virtual Reality Relaxation Experiences Alleviate Stress in Parents of Children with Autism? A Pilot Study

Psychotherapeutic interventions such as cognitive training and psychoeducation tend to be effective for alleviating stress in caregivers of children with autism. However, these interventions are often time consuming and take place outside the home, posing challenges for accessibility. Technology, especially virtual reality (VR) technology, can be used to support a range of digital interventions at home. VR headsets, when used to simulate relaxing experiences, have already been linked with stress relieving effects for some caregiving groups. This study builds on this, exploring whether VR simulated relaxing environments engender positive psychological changes for caregivers of children with autism. A total of 18 caregivers were exposed to VR simulated natural environments (e.g., beach, forest) for 15 min in a single session. State mood, captured with POMS, was measured at baseline and immediately post intervention. Perceived stress (PSS) was captured at baseline and, to explore intervention effectiveness, at three- and seven-days post intervention. POMS scores for tension, anger, depression, fatigue and confusion were lower, and scores for vigour higher, immediately post intervention. PSS scores at three-and seven-days post intervention, while comparable with one another, were lower compared with baseline. Interacting with simulated natural environments in VR seems effective for improving caregivers’ state mood and reducing their perceived stress for up to seven days. Future research should aim to consolidate and expand on these findings with larger samples and longer follow up periods.

Interventions to address parenting stress among caregivers of children with chronic diseases: An umbrella review.

Caregivers of children with chronic diseases suffer from great parenting pressure, which directly affects the treatment and rehabilitation of children, reduces the quality of life of caregivers and damages family functioning. Existing reviews have not systematically summarized and evaluated interventions for parenting stress in caregivers of children with chronic diseases. Embase, PubMed, Web of Science, OVID, CNKI, CBM, Wan Fang and Cochrane Library were searched for eligible reviews in November 2021 and October 2022. Two reviewers independently screened titles and abstracts, reviewed full texts of articles for eligibility, and appraised the quality of reviews using JBI. The quality of the evidence was assessed using GRADE. Findings are reported in accordance with PRISMA checklist. Narrative summaries grouped findings by intervention types. Out of 2632 records, we included 21 systematic reviews for a synthesis. Interventions for parenting stress in children with chronic diseases were divided into seven categories. Cognitive behavioural interventions, psychosocial interventions, child behavioural and/or developmental parent interventions and synthesized interventions have shown high-level evidence in reducing parenting stress for caregivers of children with chronic diseases. Furthermore, outcome measures and intervention protocols were highly heterogeneous across interventions. This umbrella review suggest that reducing the parenting stress of caregivers of children with chronic diseases can directly target caregivers' parenting stress through cognitive behavioural interventions/psychosocial interventions and/or provide guidance to parents on the behavioural and developmental problems of children with chronic diseases. A more standardized approach to outcome measures is essential to assess efficacy and compare interventions across studies. The findings provide information and evidence for reducing parenting stress among caregivers of children with chronic diseases to guide the development of comprehensive intervention strategies. Patient or public contribution does not apply to this study.

Compassionate love parenting training to reduce stress in caregivers of children with special needs: An experimental study

Caregivers of children with special needs experience a high workload, which causes stress and low quality of life. A compassionate love attitude amongst caregivers is needed to improve the quality of parenting. This study aims to develop a compassionate love parenting training program to reduce stress among children with special needs caregivers. The method employed was Pre-experimental Design, with One-group Pre-test-Post-test. The research participants were 40 care­givers identified using the purposive sampling technique. In the pre-test, the stress level of the caregivers was measured using the Parental Stress Scale with 24 items (α = .828). The data were analyzed using the Wilcoxon test to observe the differences between the pre-test and post-test of two dependent samples. The results show that the stress score decreased significantly, with Z = -2.023 and with a significance level of .043 .05. It is demonstrated that regular training in compassionate love parenting reduced the stress felt by caregivers of children with special needs. The implementation of compassionate love parenting training in special needs therapeutic centers is important, as it is one of the intervention methods that has been proven to reduce the level of stress to optimize the growth of the child.

How do autistic severity and family functioning influence parental stress in caregivers of children with autism spectrum disorder in China? The important role of parental self-efficacy.

Parental stress among primary caregivers of children with autism spectrum disorder (ASD) is a significant concern. While previous research indicates that both family and child factors substantially influence parental stress, a few studies have comprehensively examined these factors from family, parent, and child perspectives. Moreover, the psychological mechanisms underlying parental stress remain underexplored. This study obtained a valid sample of 478 primary caregivers of children diagnosed with ASD in China and employed mediation and moderated mediation analyses to investigate the relationships between family adaptability and cohesion (FAC), ASD severity, parental self-efficacy, and parental stress. Results revealed that higher FAC was linked to reduced parental stress through increased parental self-efficacy. The indirect effect of parental self-efficacy was more substantial for caregivers of children with severe symptoms than those with mild symptoms. These findings offer insights into how FAC influences parental stress and underscore the importance of parental self-efficacy as a coping resource for mitigating parental stress. This study provides valuable theoretical and practical implications for understanding and addressing parental stress, particularly in families raising children with ASD.

Biomarkers of stress in caregivers of children with special health care needs: A protocol for systematic review.

Children with Special Health Care Needs (CSHCN) require greater attention from family caregivers as they present temporary or permanent physical, developmental, behavioral, or emotional issues. This demand for care generates overload and stress among family caregivers. So far, there is no study that gathers the available literature regarding the use of biomarkers to assess stress among caregivers of CSHCN. Hence, we aimed to synthetize and to assess the scientific evidence on biomarkers associated with stress in caregivers of CSHCN. This systematic review and meta-analysis protocol was elaborated following the Preferred Reporting Items for Systematic Reviews and Meta-Analyses Protocols (PRISMA-P). The search strategy will be undertaken through 7 electronic bibliographic databases: Embase, MEDLINE/PubMed, Cochrane Library, Web of Science, CINAHL, Scopus, and PsycINFO. In addition, secondary searches in other sources, such as Clinical trials.gov-NIH, The British Library, Pro Quest Dissertations Database, Google Scholar, and medRXiv will be also carried out. The reference section of the included studies will be hand searched for additional relevant studies. There will be no restriction regarding the publication dates or languages for this systematic review. Moreover, in an independently manner, 2 investigators will select studies, perform data extraction, as well as perform a critical appraisal of the risk of bias and overall quality of the selected studies, based on their designs. The heterogeneity among the studies will be assessed using the I2 statistic test. According to the results of this test, we will verify whether a meta-analysis is feasible. If feasibility is confirmed, a random-effect model analysis will be carried out. For data analysis, the calculation of the pooled effect estimates will consider a 95% CI and alpha will be set in 0.05 using the SPSS version 23.0. This systematic review and meta-analysis will provide better insights regarding the biomarkers associated with stress in caregivers of CSHCN. Hence, consistent data and robust evidence will be provided to help practitioners and decision-makers in this area. To the best of our knowledge this study, will be the first to synthetize and critically evaluate the scientific evidence on biomarkers associated with stress in caregivers of CSHCN.

Trait resilience as a moderator between personality dysfunction and caregiving stress in caregivers of children and adults with developmental disabilities

Background Long-term care of a relative with a disability is associated with negative consequences on the caregiver’s mental health. Therefore, investigating how some personality traits, such as resilience, protect caregivers with dysfunctional personality traits from caregiving stress is necessary. This study examines the moderating role of resilience in the relationship between caregiver’s personality dysfunction and care stress. Methods A total of 224 family caregivers of children and adults with developmental disabilities participated in this cross-sectional research. They completed self-report measures of resilience, personality dysfunction, and care stress. Results The results show that medium and high levels of resilience protect familial caregivers from the adverse effects of personality dysfunction on stress. The relationship is maintained for three of the five dysfunctional personality traits (antagonism, disinhibition, and psychoticism). Conclusions From a theoretical point of view, the results show the contribution of the dimensional personality model to the study of caregiving stress. From a practical standpoint, the results can be used to optimise the resilience of familial caregivers, providing them with tools to take better care of their relatives.

Anxiety, depression, and stress in caregivers of children and adolescents with mental disorders in Ghana and implications for medication adherence.

This study assessed levels of anxiety, depression, and stress among family caregivers of children and adolescents with mental disorders in Ghana and the implication on medication adherence. A cross-sectional study. The study was conducted at the outpatient departments of the three main public psychiatric hospitals in Ghana. Two hundred and ten non-paid family caregivers of children and adolescents with mental disorders were recruited for this study. The study assessed symptoms of anxiety, depression and stress among the caregivers and estimated caregiver-reported medication adherence. About 56.2%, 66.2% and 78% of the caregivers experienced severe anxiety, severe depression and moderate to severe stress symptoms respectively. From the multiple logistic regression model, while anxiety was significantly affected by religion and education, depression was influenced by sex, age, marital status, proximity to facility, and employment status. Female caregivers had about four times higher odds of being depressed compared to male caregivers (aOR: 3.81, 95% CI: 1.66 - 8.75). The caregiver-reported medication adherence was 11.9%. Anxiety was significantly predictive of medication adherence. Most family caregivers of children and adolescents with mental disorders experienced symptoms of anxiety, depression and stress with anxiety having implications for medication adherence. The study findings underscore the need to consider psychological characteristics of caregivers and the provision of mental health support for them, as part of the routine health care for children and adolescents with mental disorders. None indicated.

Acceptance and Commitment Therapy for Caregivers of Children with Neurodevelopmental Disabilities: a Systematic Review

This systematic review examined research on acceptance and commitment therapy (ACT) for caregivers of children with neurodevelopmental disabilities (NDDs). Specifically, we examined ACT delivery format, inclusion of treatment fidelity, facilitator/intervention acceptability measures, and effectiveness of the intervention immediately after ACT and at follow-up. We also summarized the type of outcome measures most commonly used. ACT has been shown to increase psychological flexibility and decrease stress in caregivers of children with NDDs, which is important because this population often reports high stress. A variety of strategies were used to facilitate ACT, including experiential exercises, role-playing, and discussions. Three articles discussed treatment fidelity, and two articles included facilitator/intervention acceptability measures. All articles that met inclusion criteria (N = 11) employed indirect outcome measures (e.g. questionnaires) to assess impacts of ACT on caregivers, with only one study also including direct outcomes. Findings are discussed in relation to future research directions.

Externalizing Behaviors are Associated with Increased Parenting Stress in Caregivers of Young Children with Autism.

Parents of children diagnosed with autism spectrum disorder (ASD) report higher levels of stress than parents of typically developing children. Few studies have examined factors associated with parental stress in early childhood. Even fewer have investigated the simultaneous influence of sociodemographic, clinical, and developmental variables on parental stress. We examined factors associated with stress in parents of young children with ASD. Multiple regression models were used to test for associations between socioeconomic indices, developmental measures, and parental stress. Externalizing behaviors, communication, and socialization skills accounted for variance in parental stress, controlling for ASD diagnosis. Results highlight the importance of interventions aimed at reducing externalizing behaviors in young children as well as addressing stress in caregivers of children with ASD.

Psychometric properties of the Kingston Caregiver Stress Scale in Romanian caregivers of children and adults with disabilities

BackgroundThe Kingston Caregiver Stress Scale (KCSS) was designed to measure stress in caregivers of people with dementia, but empirical studies have used this instrument to measure stress in caregivers of children and adults with disabilities, without investigating its psychometric properties. AimsThis study analysed the factor structure, reliability, and validity of the KCSS in Romanian caregivers of children and adults with disabilities. Methods and proceduresA total of 276 familial caregivers of children and adults with various disabilities completed measures of caregiver stress and related concepts. After 3 months, 72 participants were retested. Outcomes and resultsA new bifactorial model with eight items was compared against the originally proposed trifactorial model and a previously proposed bifactorial model with 10 items.The bifactorial eight-item model had the best fit indices (χ2 = 41.4, df = 19, p = .002, CFI = .981, TLI = .971, RMSEA = .065 [90 % CI = .038, .092]), along with good test-retest reliability and convergent, divergent, and predictive validity of anxiety and depression. Conclusions and implicationsThe KCSS is a reliable instrument for assessing caregiver stress among caregivers of children and adults with disabilities. Implications, limitations, and future research suggestions are discussed.

Corrigendum

Corrigendum

The Influence of Race and Ethnicity on the Relationship between Family Resilience and Parenting Stress in Caregivers of Children with Autism.

We examined the relationship between family resilience and parenting stress among parents of children with autism spectrum disorder, with a specific focus on race/ethnicity as amoderator. Multivariate models indicated that family resilience was associated with parenting stress. Race/ethnicity significantly moderated the relationship between family resilience and parenting stress. The effects of family resilience on parenting stress were significantly different among parents of African American, Hispanic, and white children. These effects were strongest for parents of African American children. Compared to white and Hispanic children, parents of African American children with low levels of family resilience had 60-82% higher probability of parenting stress; while those with high levels of family resilience had 15-18% lower probability for parenting stress.

Stress in caregivers of children with strabismus and amblyopia.

Stress in caregivers of children with strabismus and amblyopia.

Affiliate stigma, perceived social support and perceived stress in caregivers of children with autism spectrum disorder: A multiple mediation study

BackgroundAffiliate stigma negatively predicts social support, and positively predicts psychological distress, in caregivers of children with ASD. Whether the affiliate stigma-distress relationship occurs indirectly via social support however has not been explored. MethodsA correlational design was used. A sample of n = 124 caregivers of children with ASD completed an online survey assessing affiliate stigma, perceived support from family, friends and significant others, and perceived stress. ResultsThe relationship between greater affiliate stigma and increased perceived stress occurred indirectly via lower perceived support from family, but not from friends or significant others. ConclusionsThese findings underscore the importance of increasing caregivers' perceived family support. Whether interventions that alleviate affiliate stigma are beneficial for reducing perceived stress, and whether this effect is mediated by increased perceived availability of support, might be the subject of future research.

Backing the backbones—A feasibility study on the effectiveness of dance movement psychotherapy on parenting stress in caregivers of children with Autism Spectrum Disorder

Dance Movement Psychotherapy (DMP) utilises the therapeutic power of dance within a psychotherapeutic frame to both alleviate distress as well as promote overall wellbeing. The effectiveness of an integrative approach to DMP was explored on the parenting stress experienced by the caregivers of children on the autism spectrum. The present study was conducted in India. Twelve caregivers of children on the autism spectrum from different regions of India were recruited from a special education setting. They were divided into experimental (intervention) and control groups (waiting list) and were evaluated before and after six DMP group sessions. Parenting Stress Index-Short Form (PSI-SF) and Hamilton Depression Rating Scale (HAM-D) were the tools used for assessment. The comparisons of pre and post intervention assessments indicate reduction in parenting stress scores after DMP intervention. The results suggest that integrative approach to DMP may be an effective option to support the caregivers of children on the autism spectrum to maintain their state of wellbeing. Difficulty in recruiting the participants and to assign them randomly were the limitations of this study. However, the findings of the study merit further explorations with larger samples and in-depth study of the therapeutic process.

Parenting stress in caregivers of children with chronic physical condition-A meta-analysis.

On the basis of the parenting stress model we compared levels of parenting stress in families with and without a child with a chronic physical condition and analysed correlates of parenting stress in families with a child with a chronic condition. A systematic search through electronic databases identified 547 relevant studies that were included in a random-effects meta-analysis. Parents of children with a chronic condition showed small to moderate elevations of general parenting stress and stress related to the parent-child relationship in particular. They showed moderate to large elevations in health-related parenting stress. Parents of children with cancer, cerebral palsy, HIV infection or AIDS, and spina bifida showed the highest levels of parenting stress. Stress levels also varied by illness severity and duration, child age, parental gender and mental health, marital status, marital quality, and levels of perceived support. Behaviour problems of the child and low parental mental health were the strongest correlates of parenting stress. The present results assist with identifying parents at highest needs for interventions aimed at reducing parenting stress. These interventions should address the reduction of child behaviour problems, the promotion of parental mental health, the increase in marital quality and social support in general, and skills for dealing with stressors.

A longitudinal investigation of parenting stress in caregivers of children with retinoblastoma.

Retinoblastoma is typically diagnosed in young children and may present unique parenting challenges. Qualitative research suggests that parents experience distress related to the initial diagnosis and treatment that subsequently resolves. The objectives were to systematically assess parenting stress over time in parents of young children with retinoblastoma and to examine associations between parenting stress and child outcomes. Parents of children with retinoblastoma completed the Parenting Stress Index (PSI) during serial psychological assessments scheduled based on the child's age (6 months to 5 years). Caregivers of 92 patients (85.9% mothers) completed the assessments. Child outcomes included developmental functioning and parent-reported adaptive functioning. At baseline and age 5, all subscales on the PSI were within normal limits, and most were significantly below normative means (i.e., demonstrating low levels of stress). All domains remained relatively stable over time. Associations between parenting stress and child outcomes were much stronger at age 5 than at baseline. Child-directed parenting stress was a small but significant contributor to declines in child functioning over time. Parents of children with retinoblastoma report normal levels of parenting stress while their children are young. However, baseline parenting stress appears to contribute to changes in child functioning over time. Future studies should assess illness-related aspects of adjustment to further understand the parenting experience of young children with cancer and/or having a visually impaired child.

Child behaviour problems mediate the association between coping and perceived stress in caregivers of children with autism

Coping and child behaviour problems (CBP) predict psychological distress in caregivers of children with autism. Whether CBP mediate the relationship between coping and caregivers’ psychological functioning has yet to be determined. This was the aim of the current study. A sample of 56 caregivers of children with autism completed an electronic survey assessing perceived stress, disengaged and problem focused coping, and CBP. Disengaged and problem focused coping predicted both CBP and perceived stress, albeit in different directions. CBP was also predictive of perceived stress. Data revealed an indirect effect of both disengaged and problem focused coping on perceived stress through CBP. In conclusion, caregivers who use more disengaged coping might be less effective at managing the problematic behaviours of the child with autism, thus resulting in poorer psychological functioning. Conversely, caregivers who use more problem focused strategies might, due to fewer CBP, be relatively protected against the psychological sequelae associated with the caregiving experience. Whether interventions that enhance problem focused coping have adaptive effects for caregivers’ psychological functioning, and whether these effects are mediated by fewer CBP might be the focus of subsequent research.

Comparison of Stress Levels in the Parents of Children with Cerebral Palsy and Parents of Normal Children in Vadodara Region of Gujarat

Background: Parenting is inherently stressful at times and several studies have shown that being a caregiver of a child who is disabled is even more stressful. A number of studies have identified the factors which exacerbate or mediate parenting stress in caregivers of children who are disabled. The aim of this study was to assess the parenting stress levels in parents of children who have cerebral palsy as compared to parents of normal children. Further objectives were to ascertain variables predictive of parenting stress levels.Methods: The Gujarati translated version of Parenting Stress Index/Short Form was first validated and was given to 49 parents of children with cerebral palsy (Group-A) who were attending Varun Mahajan Apang Shishu Mandal, Vadodara and to the 50 parents of normal children(Group-B). Caregivers also completed a demographic questionnaire. 43 questionnaires from Group-A and 45 from Group-B were returned to the researcher. Means and frequencies were used to summarise the demographic data. T-tests were performed to establish whether there was any significant difference between the parenting stress levels in Group-A and Group-B.Results: The parents in Group-A showed clinically significant, and in many cases, pathological levels of parenting stress as compared to the parents in Group-B.Conclusions: The results of this study confirm that parenting stress is complex matter and it is important to predict the parenting stress levels of caregivers of disabled children. Therapists should evaluate the needs of each family individually and follow a family centred approach when managing children with cerebral palsy.