Stakeholder Consultation Process Research Articles

Evidence-informed stakeholder consultations to promote rights-based approaches for children with disabilities.

To strengthen the translation of evidence to actionable policy, stakeholder engagement is necessary to synthesize, prioritize and contextualize the academic research content into accessible language. In this manuscript we describe a multi-level evidence-based stakeholder consultation process and related outcomes proposed to promote awareness of and foster cross-sectorial collaborations towards human rights-based approaches for children with disabilities. Mixed-methods participatory action research done in three steps: (1) A literature review of peer-reviewed evidence on rights-based approaches in childhood disabilities; (2) Consultation with researchers in diverse fields, grassroot organizations, caregivers, and youth with disabilities; (3) A constructive dialogue with decision makers at federal and provincial levels in Canada to discuss consultations results. Stakeholders value human rights approaches that can have a direct impact on practical aspects of their daily living. Organizations give high importance to adopting rights-based approaches to measure policy outcomes, while parents value service provision and youth emphasize accessibility. The implementation of rights-based approaches in childhood disabilities can support policy, services, and daily lives of children with disabilities and the ecosystems around them. It can also guide research priorities, and create a common language to foster collaborations across sectors and interested parties.

Imperialism and social movement unionism in South African responses to the Just Transition

In November 2021, South Africa signed the first international Just Energy Transition Partnership (JETP). This unlocked 8.5 billion USD in donor funding (primarily loans) to decarbonise its economy. The processes and substance of this decarbonisation have been criticised by unions and by civil society. This article traces the stakeholder consultation process through which civil society encouraged marginal improvements while broadly legitimising the JETP, and it details the causes and implications of South African unions’ decreased engagement with the Just Transition. The article argues that the specifics of civil society’s engagement with multistakeholder consultations, and organised labour’s disengagement, work towards legitimising a donor- and market-led transition. In partially explaining why a powerful civil society and the labour movement have not demanded more radical change, the article highlights tensions between the ‘professional class’ that dominates responses to climate change and a workers’ movement where political power is deeply tied to identarian mobilisation.

The EMPOWER Occupational e-Mental Health Intervention Implementation Checklist to Foster e-Mental Health Interventions in the Workplace: Development Study.

Occupational e-mental health (OeMH) interventions significantly reduce the burden of mental health conditions. The successful implementation of OeMH interventions is influenced by many implementation strategies, barriers, and facilitators across contexts, which, however, are not systematically tracked. One of the reasons is that international consensus on documenting and reporting the implementation of OeMH interventions is lacking. There is a need for practical guidance on the key factors influencing the implementation of interventions that organizations should consider. Stakeholder consultations secure a valuable source of information about these key strategies, barriers, and facilitators that are relevant to successful implementation of OeMH interventions. The objective of this study was to develop a brief checklist to guide the implementation of OeMH interventions. Based on the results of a recently published systematic review, we drafted a comprehensive checklist with a wide set of strategies, barriers, and facilitators that were identified as relevant for the implementation of OeMH interventions. We then used a 2-stage stakeholder consultation process to refine the draft checklist to a brief and practical checklist comprising key implementation factors. In the first stage, stakeholders evaluated the relevance and feasibility of items on the draft checklist using a web-based survey. The list of items comprised 12 facilitators presented as statements addressing "elements that positively affect implementation" and 17 barriers presented as statements addressing "concerns toward implementation." If a strategy was deemed relevant, respondents were asked to rate it using a 4-point Likert scale ranging from "very difficult to implement" to "very easy to implement." In the second stage, stakeholders were interviewed to elaborate on the most relevant barriers and facilitators shortlisted from the first stage. The interview mostly focused on the relevance and priority of strategies and factors affecting OeMH intervention implementation. In the interview, the stakeholders' responses to the open survey's questions were further explored. The final checklist included strategies ranked as relevant and feasible and the most relevant facilitators and barriers, which were endorsed during either the survey or the interviews. In total, 26 stakeholders completed the web-based survey (response rate=24.8%) and 4 stakeholders participated in individual interviews. The OeMH intervention implementation checklist comprised 28 items, including 9 (32.1%) strategies, 8 (28.6%) barriers, and 11 (39.3%) facilitators. There was widespread agreement between findings from the survey and interviews, the most outstanding exception being the idea of proposing OeMH interventions as benefits for employees. Through our 2-stage stakeholder consultation, we developed a brief checklist that provides organizations with a guide for the implementation of OeMH interventions. Future research should empirically validate the effectiveness and usefulness of the checklist.

Newborn and child health national and provincial clinical practice guidelines in South Africa, Nigeria and Malawi: a scoping review

BackgroundLow and middle-income countries remain disproportionately affected by high rates of child mortality. Clinical practice guidelines are essential clinical tools supporting implementation of effective, safe, and cost-effective healthcare. High-quality evidence-based guidelines play a key role in improving clinical management to impact child mortality. We aimed to identify and assess the quality of guidelines for newborn and child health published in South Africa, Nigeria and Malawi in the last 5 years (2017–2022).MethodsWe searched relevant websites (June–July 2022), for publicly available national and subnational de novo or adapted guidelines, addressing newborn and child health in the three countries. Pairs of reviewers independently extracted information from eligible guidelines (scope, topic, target population and users, responsible developers, stakeholder consultation process, adaptation description, assessment of evidence certainty). We appraised guideline quality using the Appraisal of Guidelines for Research & Evaluation (AGREE II) instrument.ResultsWe identified 40-guidelines from the three countries. Of these, 8/40 reported being adopted from a parent guideline. More guidelines (n = 19) provided guidance on communicable diseases than on non-communicable diseases (n = 8). Guidelines were most often developed by national health ministries (n = 30) and professional societies (n = 14). Eighteen guidelines reported on stakeholder consultation; with Nigeria (10/11) and Malawi (3/6) faring better than South Africa (5/23) in reporting this activity. The Grading of Recommendations, Assessment, Development, and Evaluations (GRADE) approach was used in 1/7 guidelines that reported assessing certainty of evidence. Overall guidelines scored well on two AGREE II domains: scope and purpose median (IQR) score 68% (IQR 47–83), and clarity of presentation 81% (67–94). Domains critical for ensuring credible guidance scored below 20%: rigour of development 11% (4–32) and editorial independence 6% (0–27).ConclusionNational ministries and professional societies drive guideline activities in Malawi, Nigeria and South Arica. However, the methods and reporting do not adhere to global standards. We found low AGREE II scores for rigour of guideline development and editorial independence and limited use of GRADE or adaptation methods. This undermines the credibility of available guidelines to support evidence-informed care. Our findings highlight the importance of ongoing efforts to strengthen partnerships, capacity, and support for guideline development.

Implementing decision aids for cardiovascular disease prevention: stakeholder interviews and case studies in Australian primary care.

Australian cardiovascular disease (CVD) prevention guidelines recommend absolute CVD risk assessment, but less than half of eligible patients have the required risk factors recorded due to fragmented implementation over the last decade. Co-designed decision aids for general practitioners (GPs) and consumers have been developed that improve knowledge barriers to guideline-recommended CVD risk assessment and management. This study used a stakeholder consultation process to identify and pilot test the feasibility of implementation strategies for these decision aids in Australian primary care. This mixed methods study included: (1) stakeholder consultation to map existing implementation strategies (2018-20); (2) interviews with 29 Primary Health Network (PHN) staff from all Australian states and territories to identify new implementation opportunities (2021); (3) pilot testing the feasibility of low, medium, and high resource implementation strategies (2019-21). Framework Analysis was used for qualitative data and Google analytics provided decision support usage data over time. Informal stakeholder discussions indicated a need to partner with existing programs delivered by the Heart Foundation and PHNs. PHN interviews identified the importance of linking decision aids with GP education resources, quality improvement activities, and consumer-focused prevention programs. Participants highlighted the importance of integration with general practice processes, such as business models, workflows, medical records and clinical audit software. Specific implementation strategies were identified as feasible to pilot during COVID-19: (1) low resource: adding website links to local health area guidelines for clinicians and a Heart Foundation toolkit for primary care providers; (2) medium resource: presenting at GP education conferences and integrating the resources into audit and feedback reports; (3) high resource: auto-populate the risk assessment and decision aids from patient records via clinical audit software. This research identified a wide range of feasible strategies to implement decision aids for CVD risk assessment and management. The findings will inform the translation of new CVD guidelines in primary care. Future research will use economic evaluation to explore the added value of higher versus lower resource implementation strategies.

Perspectives of People with Stroke, Caregivers and Healthcare Professionals on an Adaptive mHealth Intervention for Physical Activity in the Prevention of Secondary Stroke: A Qualitative Study.

Engaging in regular physical activity (PA) is associated with lower mortality following stroke, and PA reduces the chance of recurrent stroke. Despite recent guidelines to optimise PA following stroke, people with stroke are known to be less active than their age-matched counterparts. Given the heterogenous nature of stroke, adaptive PA interventions are recommended for people with stroke. Empirical data is lacking on adaptive PA or behavioural change interventions following stroke. Suggested strategies in the prevention of stroke recommend the use of mobile health (mHealth) interventions in the primary prevention of stroke. A structured stakeholder consultation process is key to successful implementation of complex interventions. This paper reports the findings of our consultation process to inform the development of an adaptive mHealth PA. We used a qualitative study design to explore the perspectives of key stakeholders on the development of an adaptive PA intervention delivered via mHealth post-stroke. Healthcare workers, carers and people with stroke participated in semi-structured one-to-one or focus group interviews. A reflexive thematic analysis was undertaken on transcribed interviews; key themes and sub-themes were developed using coding and summarised by two researchers, then reviewed by the full research team. Twenty-eight stakeholders were interviewed and three main themes were identified; Key feature of a mHealth intervention, delivering a mHealth intervention, Challenges to development and use. There was widespread agreement across stakeholder groups that an adaptive mHealth PA intervention following stroke would be beneficial to people with stroke, following discharge from acute care. Our consultation supports the development of an adaptive PA programme that addresses specific impairments that can hinder exercise participation after stroke.

UK Net Zero policy design and deep uncertainty – The need for an alternative approach

The majority of global emissions scenarios compatible with holding global warming to less than 2 °C depend on the large-scale use of Greenhouse Gas Removal (GGR) technologies. Recent critiques have highlighted the concerns of building long-term climate policy on such speculative technological scenarios emerging from orthodox modelling approaches – including integrated assessment modelling prominently assessed by the IPCC. Through a stakeholder consultation process with the UK modelling and policy community, we critically examine the integration of GGR technologies into UK Net Zero scenarios and the decision-making philosophy underlying the use of orthodox modelling to inform UK climate policy. We identify a number of features of orthodox modelling approaches which are unable to manage the pervasive extent of deep uncertainty in possible UK climate and energy futures. We further argue that a more fundamental issue lies in the way that the models are used by UK climate policy makers: that the handling of uncertainties which pervade the integration of GGR into Net Zero policy are resulting in substantial distortions in net-zero policy design and associated decision-making. Drawing on the principles of decision-making under deep uncertainty techniques, exemplified by Robust Decision Making, we recommend an alternative approach that explicitly embraces uncertainty, multiple values and diversity among stakeholders and viewpoints, and in which modelling exists in an iterative exchange with policy development rather than separate from it. We advocate that such an approach would provide more relevant and robust information to near-term policymaking and enable an inclusive societal dialogue about the appropriate role of GGR within UK climate policy.

Building a European One Health workforce for prevention and preparedness to health threats

Abstract Background The Quadripartite has elaborated the One Health Joint Plan of Action (2022-2026) (OH JPA) to promote health sustainably and prevent the next pandemic through the One Health (OH) approach. One of the action track of the OH JPA is to create a training program for environment, medical and veterinary sector professionals. Objectives The Italian National Institute of Health is developing a training curriculum about OH prevention and preparedness to health threats within the European Region to promote the OH workforce capacities and capabilities and to support the OH JPA execution. The training curriculum would be developed through a literature review and a stakeholder consultation process, validated by a steering committee and presented during a workshop. Results A modular training curriculum about OH prevention and preparedness to health threats within the European Region is developed and it includes modules to strengthen soft and hard skills around 5 OH domains (OH thinking, OH design, OH implementation, OH evaluation, OH cross-cutting competences) with case studies encompassing different threats. The curriculum would be further developed into a training hybrid course for National Public Health Institutes, decision and policy-makers at all level, International and European organizations and agencies, Academia, professionals working in the area of environmental and agricultural sciences, social sciences, human and animal health. Conclusions The training curriculum would contribute to build a European OH workforce by strengthening OH prevention and preparedness skills and competences and networking opportunities. It would support OH action and practice at national, regional and global level and the execution of the OH JPA. Key messages • A training curriculum for OH prevention and preparedness to health threats within Europe has been elaborated. • The OH workforce, OH action, and the OH JPA execution are strengthened and supported.

The Global Biodata Coalition: Towards a sustainable biodata infrastructure

Progress in life and biomedical sciences depends absolutely on biodata resources—databases comprising biological data and services around those databases. Supporting scientists in data operations and spanning management, analysis and publication of newly generated data and access to pre-existing reference data, these biodata resources together comprise a critical infrastructure for life science and biomedical research. Familiar scientific infrastructures—for example the Conseil Européen pour la Recherche Nucléaire (CERN) or the Square Kilometer Array, are distinct, constructed, physical entities that are centrally funded and managed at one or more identifiable locations. By contrast, the primary infrastructure of the life sciences—comprised of databases and other biological data resources—is globally distributed, virtually connected, funded from multiple sources, and is not managed as a coordinated entity. While this configuration supports innovation, it lends itself poorly to the long-term sustainability of individual biodata resources and of the infrastructure as a whole. The Global Biodata Coalition (GBC) brings together life science research funding organisations that recognise these challenges and acknowledge the threat that the lack of sustainability poses. They agree to work together to find ways to improve sustainability. In the presentation, we will provide an overview of the global biodata resource infrastructure, focusing in particular on challenges to providing sustained long-term funding to the resources that comprise the infrastructure. This will provide a global context to other presentations in the session, which focus on biodata resources in Australia. Covering some of the work that GBC has carried out to understand and classify biodata resources and the entire biodata resource infrastructure, we will outline the Global Core Biodata Resource programme and Inventory project and also introduce the stakeholder consultation processes around approaches to sustainability and open data. Finally, we will lay out the path GBC is taking to engage researchers, informaticians, funding organisations and other stakeholders in moving towards greater sustainability for these critical resources

Collaboratively crafting learning standards for tertiary education for environment and sustainability

Purpose The aim of this paper is to outline the collaborative approach used to craft national learning standards for tertiary programs in the field of environment and sustainability in Australia. The field of environment and sustainability is broad and constituted by diverse stakeholders. As such, articulating a common set of learning standards presents challenges. Design/methodology/approach The authors developed and used a staged collaborative curriculum design methodology to engage more than 250 stakeholders in tertiary environmental education, including discipline scholars, students, professional associations and employers and other environmental educators. The approach was adaptive, to ensure underrepresented stakeholders’ perspectives were welcomed and recognised. The project was commissioned by the Australian Council of Environmental Deans and Directors (ACEDD) and funded by the Federal Government’s Office for Learning and Teaching. Findings The collaborative approach developed and used for this work facilitated an inclusive process that valued diversity of perspectives, rather than marginalise diversity in favour of a perspective representing a minimum level of agreement. This is reflected in the standards themselves, and is evidenced by participant feedback, piloting of the standards and their subsequent application at multiple universities. Achieving this required careful planning and facilitation, to ensure a democratisation of the stakeholder consultation process, and to build consensus in support of the standards. Endorsement by ACEDD formalised the standards’ status. Originality/value Collaborative curriculum design offered the opportunity to foster a shared sense of common purpose amongst diverse environmental education stakeholders. This approach to curriculum design is intensive and generative but uncommon and may be usefully adapted and applied in other contexts. The authors note one subsequent instance where the approach has been further developed and applied in transforming a generalist science program, suggesting the methodology used in this case may be applied across other contexts, albeit with appropriate adjustments: the authors offer it here in the spirit of supporting others in their own complex curriculum design challenges.

Defining operational research priorities to improve malaria control and elimination in sub-Saharan Africa: results from a country-driven research prioritization setting process

BackgroundIn order to reignite gains and accelerate progress toward improved malaria control and elimination, policy, strategy, and operational decisions should be derived from high-quality evidence. The U.S. President’s Malaria Initiative (PMI) Insights project together with the Université Cheikh Anta Diop of Dakar, Senegal, conducted a broad stakeholder consultation process to identify pressing evidence gaps in malaria control and elimination across sub-Saharan Africa (SSA), and developed a priority list of country-driven malaria operational research (OR) and programme evaluation (PE) topics to address these gaps.MethodsFive key stakeholder groups were engaged in the process: national malaria programmes (NMPs), research institutions in SSA, World Health Organization (WHO) representatives in SSA, international funding agencies, and global technical partners who support malaria programme implementation and research. Stakeholders were engaged through individual or small group interviews and an online survey, and asked about key operational challenges faced by NMPs, pressing evidence gaps in current strategy and implementation guidance, and priority OR and PE questions to address the challenges and gaps.ResultsAltogether, 47 interviews were conducted with 82 individuals, and through the online survey, input was provided by 46 global technical partners. A total of 33 emergent OR and PE topics were identified through the consultation process and were subsequently evaluated and prioritized by an external evaluation committee of experts from NMPs, research institutions, and the WHO. The resulting prioritized OR and PE topics predominantly focused on generating evidence needed to close gaps in intervention coverage, address persistent challenges faced by NMPs in the implementation of core strategic interventions, and inform the effective deployment of new tools.ConclusionThe prioritized research list is intended to serve as a key resource for informing OR and PE investments, thereby ensuring future investments focus on generating the evidence needed to strengthen national strategies and programme implementation and facilitating a more coordinated and impactful approach to malaria operational research.

Framing a gender transformative post-coal future for just transition: A feminist manifesto

Energy transition for coal-producing countries of the Global South will involve the adoption of policies to phase out coal, and closure of coal-dependent industrial infrastructure will lead to fundamental changes in gender roles and relations as women and men lose their direct and indirect livelihoods from coal mines. This article aims to lay out principles to make energy transition not simply gender-just but gender-transformative to ensure that the transition results in changed gender relations and emergent social outcomes benefit both men and women. Based on an extensive process of stakeholder consultation, the article presents a feminist manifesto to address the gendered impacts of coal sector transition in the major coal-producing countries of the Global South. First, I establish the need for such a manifesto and then collate evidence of the gendered impacts. I then draw out the main themes emerging from the interviews to analyse participants' views on why gender considerations are important, and how gender can be mainstreamed in strategies adopted for transitioning industrial coal extraction and processing for thermal power generation.

Targeted Review and Amalgamation of Unmapped Major Trauma and Ambulance Data in Ireland: TRAUMA Study

Introduction:The trauma care system in Ireland is being re-configured to have major trauma centers for severe injuries and other sites for less severe injuries. This is to ensure patients are brought quickly to the most appropriate hospital to manage their injuries. The National Ambulance Service (NAS) electronic Patient Care Record (ePCR) records what happens to patients before they reach the hospital and the Major Trauma Audit (MTA) captures data on patients’ hospital treatment. These datasets are currently separate and if they could be joined, they would inform important decisions on which hospitals to take patients. This study aims to investigate joining these datasets to create a seamless database of the patient journey from roadside to recovery.Method:Proof of Concept–The ePCR and MTA datasets will be linked on a once-off basis. The combined anonymized dataset will then be analyzed to identify pre-hospital characteristics that determine the need to bypass smaller hospitals and bring patients to a larger major trauma center or trauma unit.Stakeholder input for ongoing dataset combination and utilization–A stakeholder consultation process will explore the best way to make a GDPR-compliant combination of datasets on an on-going basis, including geo-location data and the inclusion of patient reported outcome measures. This will incorporate the requirements of the Data Protection Commissioner, National Office of Clinical Audit, patients, clinicians, NAS, HSE and other stakeholders.Geospatial implications of major trauma services–Once ongoing data combination is approved, we will determine geospatial implications of the trauma network for prehospital care configuration and the patient journey.Results:Study results will inform prehospital service configuration to ensure safe and equitable patient management.Conclusion:The data arising from this study will capture the full trauma patient journey. This data is essential to inform policy and practice for trauma care in Ireland.

An assessment of the scope and comprehensiveness of well-being economy indicator sets: The cases of Iceland, Scotland and New Zealand

Over the last three years, national indicator sets and international coalitions for advancement of the well-being economy's ambitions have begun to be developed. This study applies a capital asset, well-being goals and domains, and Sustainable Development Goals (SDGs) framework to evaluate the scope and comprehensiveness of the indicator sets of Iceland, Scotland and New Zealand. Both national objectives and SDG indicator priorities, determined through each nation's stakeholder consultation process, have greatly shaped the indicator selection process, albeit leading to a narrow concentration in some areas. There is currently more focus on natural capital preservation and environmental performance in the cases of Iceland and New Zealand, whereas Scotland integrates analysis on contributions to human well-being via ecosystem services. Additionally, resources that appear critical to these economies and processes that undermine the productive capacities of the resource base are not represented by indicators. Spatial scale variations are evident too. Domestic phenomena are the focus of Iceland and New Zealand's indicators sets, whilst Scotland's is more internationalist. Despite these inconsistencies, it is evident that the national indicator sets are inclusive and reflective of socio-cultural priorities, including the needs of certain Indigenous peoples, often monitoring criteria that go beyond the limits of the SDGs.

Application of ISO 26000 in digital education during COVID-19

Digital education in schools through artificial intelligence, big data and other technologies is conducive to improving teaching efficiency and promoting teaching progress. Unfortunately, many schools lack a sense of social responsibility when applying digital education. Students are online more than ever before. There are the potential for increased exposure to risks such as exposure to harmful content, cyberbullying, age-inappropriate advertising and data misuse, which affect students’ well-being and undermine their right to privacy. Schools should bear the overall social moral level of social responsibility. This paper focuses on the social responsibility of schools under the new crown epidemic and holds that implanting social responsibility into the value system of the current digital education reform, which can promote the sustainable development of education. This is also a relatively neglected problem in the practice of educational reform. European standard: ISO26000 is adopted as a CEN-standard. 21 October 2020 the stakeholder consultation process in the European Committee for Standardization (CEN) decided that ISO 26000 is approved as a CEN-standard. For businesses and organizations committed to operating in a socially responsible way, there’s ISO 26000. It provides guidance to those who recognize that respect for society and environment is a critical success factor. This paper highlights the school how to take social responsibility by using ISO 26000. Based on the seven subjects of ISO 26000, this paper constructs the social responsibility of digital education frame, focuses on analyzing the main content and core issues of social responsibility of digital education, puts forward some improved strategies and suggestions for the more prominent problems at this stage through the examination and reflection of reality.

Arksey and O'Malley's consultation exercise in scoping reviews: A critical review.

AimsTo explore how consultation exercises were described in a convenience sample of recent scoping reviews.DesignCritical literature review.Data sourcesWe searched PsycINFO, Embase, CINAHL and PubMed in July 2020. Our inclusion criterion was a peer‐reviewed journal article reporting a scoping review in Danish, English, Norwegian or Swedish.Review methodsWe identified a convenience sample of articles (n = 66) reporting a consultation exercise as part of a scoping review. The descriptions of the consultation were charted, summarized and critically discussed.ResultsThe current analysis showed no widely accepted consensus on how to approach and report a consultation exercise in the sample of scoping reviews. The reports of stakeholder consultation processes were often brief and general, and often there were no reports of the effects of the stakeholder consultation processes. Further, there was no discussion of the principal theoretical problems mixing stakeholder voices and review findings.ConclusionThe finding that conventional research ethics and research methods often were suspended could indicate that the stakeholder consultants were in a precarious position because of power imbalances between researchers and stakeholder consultants. We suggest that a consultation exercise should only be included when it genuinely invites participation and reports on the effect of alternative voices.ImpactScoping reviews are common across a range of disciplines, but they often lack definitional and methodological clarity. In their influential approach to scoping studies, Arksey and OʼMalley introduced an optional ‘consultation exercise’, which has been heralded as a valuable tool that can be used to strengthen the process and outcome of a scoping study and to support the dissemination of the studyʼs findings and its implications. However, there is no clear outline on about how to operationalize consultations of stakeholders in scoping studies/reviews. This article includes recommendations for consultation exercises, including encouraging an aspirational move from ‘consultation’ to ‘participation’.

Priority recommendations for the implementation of patient-reported outcomes in clinical cancer care: a Delphi study

PurposeThe aim of this study was to develop priority recommendations for the service level implementation of patient-reported outcomes (PROs) into clinical cancer care.MethodsDevelopment of draft guidance statements was informed by a literature review, the Knowledge to Action (KTA) implementation framework, and discussion with PRO experts and cancer survivors. A two-round modified Delphi survey with key stakeholders including cancer survivors, clinical and research experts, and Information Technology specialists was undertaken. Round 1 rated the importance of the statements and round 2 ranked statements in order of priority.ResultsRound 1 was completed by 70 participants with round 2 completed by 45 participants. Forty-seven statements were rated in round 2. In round 1, the highest agreement items (>90% agreement) included those that focused on the formation of strong stakeholder partnerships, ensuring ongoing communication within these partnerships, and the use of PROs for improvement and guidance in clinical care. Items ranked as the highest priorities in round 2 included assessment of current staff capabilities and service requirements, mapping of workflows and processes to enable collection, and using collected PROs to guide improved health outcomes.ConclusionsThis stakeholder consultation process has identified key priorities in PRO implementation into clinical cancer care that include clinical relevance, stakeholder engagement, communication, and integration within the existing processes and capabilities.Implication for Cancer SurvivorsRoutine adoption of PRO collection by clinical cancer services requires multiple implementation steps; of highest priority is strong engagement and communication with key stakeholders including cancer survivors.

The Drinking Water Tool: A Community-Driven Data Visualization Tool for Policy Implementation.

The Drinking Water Tool (DWT) is a community-driven online tool that provides diverse users with information about drinking water sources and threats to drinking water quality and access due to drought. Development of the DWT was guided by the Community Water Center (CWC) as part of the Water Equity Science Shop (WESS), a research partnership integrating elements of community-based participatory research and the European Science Shop model. The WESS engages in scientific projects that inform policy change, advance water justice, and reduce cumulative exposure and disproportionate health burdens among impacted communities in California. WESS researchers conducted qualitative analysis of 15 stakeholder interviews regarding the DWT, including iterative feedback and the stakeholder consultation process as well as stakeholder perceptions of the tool’s impact on California water policy, organizing, and research. Results indicate that the DWT and the stakeholder engagement process which developed it were effective in influencing policy priorities and in promoting interagency coordination at multiple levels to address water equity challenges and their disproportionate burdens, particularly among rural and low socioeconomic status areas and communities of color.

Towards climate resilient municipal water supply in Bangkok: A collaborative risk informed analysis

Typical top-down approaches to climate change adaptation in the water sector rely on climate models to inform the adaptation design. In view of the inherent uncertainty associated with these models, this study uses a combined top-down and bottom-up approach called Collaborative Risk Informed Decision Analysis (CRIDA). Using the case of the Metropolitan Waterworks Authority, Bangkok, this study demonstrates the application of the approach, which includes (a) identifying critical thresholds that impact the system’s performance, (b) unearthing the system vulnerabilities through a stress test (scenario analysis), and (c) identifying feasible adaptation interventions. Through a stakeholder consultation process, it was found that streamflow, salinity, and turbidity are the key performance metrics of the water supply system. A series of stress tests to the system was conducted by adjusting input variables assuming a wide range of possible future climatic conditions. Frequency curves of the various input variables were developed to facilitate stakeholders’ planning for impending risks and for improving the overall robustness of the water supply system. Based on the stress test results and past studies of the study area, the raw water source of the Metropolitan Waterworks Authority is expected to be more saline in the future with more frequent and severe low flow conditions, for which a number of adaptation actions were formulated and proposed. It is suggested to develop adaptation pathways that can address a range of expected impacts of future climatic conditions on the Bangkok water supply system. The methodology presented is useful for study areas where a model of the system is unavailable, and data limitation is a challenge.

A mixed methods study to develop a tool to assess institutional readiness to conduct knowledge translation activities in low-income and middle-income countries

ObjectiveThis paper describes the development of a tool for assessing organisational readiness to conduct knowledge translation (KT) among academic institutions in low-income and middle-income countries (LMICs).DesignA literature review and stakeholder...