Resilience In Family Members Research Articles

Psychological resilience in the relationship between family function and illness uncertainty among family members of trauma patients in the intensive care unit

BackgroundSevere trauma accounts for a main factor inducing mortality for individuals aged < 45 years in China, which requires admission to intensive care unit (ICU) to receive comprehensive treatment. Family members of patients with unanticipated and life-threatening trauma during their ICU stays often experience psychosocial distress due to illness uncertainty. Previous research has shown that family function and psychological resilience are associated with illness uncertainty, respectively. However, little is known about the current situation and interacting mechanism between family function, psychological resilience, and illness uncertainty of family members for ICU trauma patients. Therefore, this study focused on exploring the current situation and relationships between these three factors in family members for ICU trauma patients.MethodsThe convenience sampling approach was adopted in the present cross-sectional survey, which involved 230 family members for ICU trauma patients from 34 hospitals in Chongqing, China. Related data were extracted with self-reporting questionnaires, which included sociodemographic characteristic questionnaire, the Family Adaptability, Partnership, Growth, Affection and Resolve Scale (APGAR), the 10-item Connor-Davidson Resilience Scale (10-CD-RISC) and the Mishel’s Illness Uncertainty Scale for Family Members (MUIS-FM). Pearson correlation analysis was conducted to examine the correlations between various variables. Additionally, a structural equation model was adopted to assess the mediating effect of psychological resilience on family function and illness uncertainty.ResultsAccording to our results, family members for ICU trauma patients experienced high illness uncertainty with moderate family dysfunction and low psychological resilience. Family function directly affected illness uncertainty and indirectly affected illness uncertainty through psychological resilience in family members of ICU trauma patients.ConclusionsFamily function and psychological resilience are the protective factors for reducing illness uncertainty. Healthcare providers should take effective measures, including family-functioning improvement and resilience-focused interventions, for alleviating illness uncertainty in family members of ICU trauma patients.

The Effects of Psychological Interventions on Fostering Resilience in Family Members of Pediatric Cancer Patients

The Effects of Psychological Interventions on Fostering Resilience in Family Members of Pediatric Cancer Patients

N-ECCO Grant Supporting psychosocial and emotional well-being and resilience in family members of people with IBD: an intervention co-design and feasibility study

Abstract Background and Aims This ongoing PhD project seeks to develop a person-centred, evidence-based, theoretically informed prototype intervention to support psychosocial and emotional well-being and resilience in people with IBD’s family members (FMs). PhD project focuses on the intervention development and feasibility testing. The development phase has already been undertaken using a co-design approach informed by Design Thinking. A systematic review and qualitative research have been conducted and published, and co-design workshops have been held with people with IBD (n=4), FMs (n=9), and IBD nurses (n=2), revealing a preference for online-based intervention. Therefore, the aim of this study is to translate the paper-based intervention prototype into electronic format. The online prototype will be a) tested for acceptability and b) effect signal. The feasibility of the study design will be evaluated. Methods A sequential mixed methods approach, based on the UK Medical Research Council (MRC) Evaluation Framework. The intervention feasibility study will test the acceptability of content and delivery of the intervention and ascertain active feedback. The feasibility of the study design will be evaluated the recruitment, data collection, retention, and analysis strategies. A two-arm feasibility RCT with nested qualitative evaluation will be used to evaluate the newly developed intervention among 60 FMs. Participants will be recruited via Crohn’s &amp; Colitis UK and Bowel Research UK charities. The 60 participants will be randomly allocated into intervention and control groups using 2:1 randomisation. The qualitative component will use purposive sampling from the intervention arm to elicit feedback on the content and format with up to 20 participants. Anticipated Impact Results from this intervention development and feasibility study will help revise the intervention, incorporate changes to the study protocol (if necessary), and develop a large-scale RCT for efficacy trailing of a complex intervention to benefit service users.

Caregiver Burden and Resilience in Family Members of Alcohol Dependent Patients: Observations from Eastern India

Caregiver Burden and Resilience in Family Members of Alcohol Dependent Patients: Observations from Eastern India

Mental condition and function of resilience among families of frontline medical workers during COVID-19: Potential influencing factors and mediating effect

BackgroundStudying the role of psychological resilience in self-perceived stress and mental disorders among family members of medical workers can help us understand its importance in mental health care and guide us to develop psychological intervention strategies for family members of medical workers. MethodsA total of 671 family members of medical workers were enrolled. Self-perceived stress, resilience, depression symptoms, anxiety symptoms, and post-traumatic stress disorder (PTSD) symptoms were measured in our research. ResultsThe prevalence of anxiety, depression, and PTSD symptoms among relatives of medical workers were 49.0 %, 12.2 %, and 20.3 % respectively during the COVID-19 epidemic. According to the Multivariate regression model, compared with family members of doctor, family members of nurse and medical technologists were more likely to report anxiety symptoms. Female members of medical staff were more likely to have PTSD symptoms than male counterparts; and family members of medical technologist appeared to less likely have PTSD symptoms than family members of either doctor or nurse. The mediation analysis confirmed that mental resilience mediated the relationship between self-perceived stress and anxiety symptoms. LimitationsSingle cross-sectional study design without the follow-up comparative analysis, only self-reported measurements were adopted, and inadequate pre-set demographic variables. ConclusionsTo the best of our knowledge, our study firstly demonstrated the risk of psychological distress present in the family members of medical providers during the COVID-19 epidemic. Meanwhile, our findings highlighted the importance of mental resilience in family members of frontline medical workers as it mediated the relationship between self-perceived stress and anxiety symptoms.

Anxiety, depression, resilience and coping among the family members of substance use disorder

Substance Use Disorder (SUD) is an increasing concern in India and it adversely affects the mental health and interpersonal relationships of the families. This research aims to study and assess the mental health of the families of concerned individual and establish the need for more attention and care towards this population. The present study was an attempt to find how coping influences anxiety, depression and resilience among the family members of substance use disorder. Adults ranging from the age of 18 years and above who are family members of SUD diagnosed individuals were taken for the study. The total sample of the study consisted of 100 adults out of which 50 were from Coimbatore District of Tamil Nadu and remaining 50 from various other states. Three scales namely, DASS, BRIEF-COPE and Resilience scale was used for data collection on four variables. Results showed that coping style adapted by the family member impacts the psychological wellbeing of that individual. Similarly, it showed that avoidance coping is associated with anxiety and depression. However, there was no gender difference in anxiety, depression, coping and resilience in family members in relation to the SUD of another member in their family.

Testing a Model of Resilience in Family Members of Relatives with Traumatic Brain Injury vs Spinal Cord Injury: Multigroup Analysis

ObjectiveTo test a model comprising explanatory (neurologic impairment, coping, personality) and mediating (resilience, self-efficacy, hope, social support) variables on psychological adjustment and burden among family caregivers of individuals with traumatic brain injury (TBI) vs spinal cord injury (SCI). DesignStructural equation modeling with multigroup analysis. SettingSix rehabilitation centers across New South Wales and Queensland, Australia. ParticipantsA total of 181 family members (N=181; 131 TBI, 50 SCI). InterventionsNot applicable. Main Outcome MeasuresConnor-Davidson Resilience Scale, Eysenck Personality Questionnaire, Ways of Coping Questionnaire, General Self-Efficacy Scale, Herth Hope Scale, Medical Outcome Study Social Support Survey; and 4 measures of psychological adjustment including: Caregiver Burden Scale, Medical Outcomes Survey Short Form-36 (SF-36), General Health Questionnaire-28, and Positive and Negative Affect Scale. ResultsThe model for the aggregated sample demonstrated a very good model fit (χ2=47.42, df=39, ρ=0.167, normed fit index=.962, incremental fit index=.993, Tucker-Lewis index=.985, comparative fit index=.993, root-mean-squared error of approximation=.035). Multi-group analysis found significant commonalities in the pattern of relationships among variables across the 2 groups. In the only differences found, neuroticism was significantly more influential on burden in family members supporting individuals with TBI than family members of individuals with SCI. Furthermore, problem-focused coping was statistically more influential on positive affect in family members of individuals with TBI when compared with family members of individuals with SCI. ConclusionsThe study found significant similarities in the patterns of resilience and psychological adjustment among family caregivers of individuals with TBI and SCI.

Mindfulness-based practices with family carers of adults with learning disability and behaviour that challenges in the UK: Participatory health research.

BackgroundFamily carers of adults with learning disability and behaviours that challenge lead complex and stressful lives. Their caring role can leave them isolated and unsupported. In the UK, effective services designed to build resilience for people in long‐term caring roles are lacking. There are none (to our knowledge) designed using a participatory health research (PHR) approach with family carers and professionals.ObjectiveWith positive behaviour support (PBS) and mindfulness and acceptance and commitment therapy (ACT) as key elements, a PHR approach was used to understand the basis for a successful course that supported the capabilities and resilience of family members in long‐term caring roles.DesignThe research was guided by the principles of PHR with participation as the defining principle throughout. Central to the research were reflexive conversations (communicative spaces) where diverse knowledges were shared and critiqued.FindingsMindfulness/ACT can change long‐standing response behaviours and build personal resilience and improve mental health. Elements enabling positive change included a facilitation approach for collaborative reflexivity and the complementary, interactive approach to collaborative enquiry for learning and decision making afforded by PHR.DiscussionThe use of PHR accessed knowledges that would have been lost to more traditional, professional‐expert driven processes and facilitated change in constructs for action for both professionals and family carers. Findings challenge service providers to consider how experiential knowledge has agency in professional practice and service design. Reflection on the PHR process across the FaBPos project led to a re‐consideration of quality issues in relation to PHR and participation.

Association between resilience, acute stress symptoms and characteristics of family members of patients at early admission to the intensive care unit

ObjectivesResilience in family members of patients in the intensive care unit (ICU) suppresses their severe stress and post-traumatic stress symptoms (PTSS). However, little is known about the experiences of family members of patients admitted to the ICU. This study aimed to determine the level of resilience in family members of patients admitted to the ICU and to examine the association between resilience and family member and patient characteristics. MethodsIn this cross-sectional study, we approached family members (N = 144) of patients admitted to an ICU in the previous 24 h. We obtained demographic data from all participants as well as the patients clinical characteristics, and all participants completed the Impact of Event Scale-Revised (IES-R) and the Connor-Davidson Resilience Scale (CD-RISC). ResultsThe mean CD-RISC score was 48.5 (standard deviation = 16.1). Twenty-three of the 77 (29.9%) family members had an IES-R score of 25 or higher. In multiple regression analysis, a significant negative relationship was observed between resilience and PTSS (B = –11.98, β = –0.27; p = .01), and the variables correlated with the CD-RISC were age of participant (B = 4.752, β = 0.26; p = .021), sex of the patient (B = 10.09, β = 0.25; p = .015) and participants with a history of mental disorder (B = –23.41, β = –0.25; p = .024). Multiple regression analysis also showed that this model explained 28.3% of the variance in total CD-RISC scores as resilience. ConclusionsLow resilience predicted PTSS among family members of ICU patients. This may indicate that resilience reduces the onset of PTSS.

Resilience across the Continuum of Care

Resilience across the Continuum of Care

Promoting Resilience among Parents and Caregivers of Children with Cancer

Promoting resilience is an aspect of psychosocial care that affects patient and whole-family well-being. There is little consensus about how to define or promote resilience during and after pediatric cancer. The aims of this study were (1) to review the resilience literature in pediatric cancer settings; (2) to qualitatively ascertain caregiver-reported perceptions of resilience; and (3) to develop an integrative model of fixed and mutable factors of resilience among family members of children with cancer, with the goal of enabling better study and promotion of resilience among pediatric cancer families. The study entailed qualitative analysis of small group interviews with eighteen bereaved parents and family members of children with cancer treated at Seattle Children's Hospital. Small-group interviews were conducted with members of each bereaved family. Participant statements were coded for thematic analysis. An integrative, comprehensive framework was then developed. Caregivers' personal appraisals of the cancer experience and their child's legacy shape their definitions of resilience. Described factors of resilience include baseline characteristics (i.e., inherent traits, prior expectations of cancer), processes that evolve over time (i.e., coping strategies, social support, provider interactions), and psychosocial outcomes (i.e., post-traumatic growth and lack of psychological distress). These elements were used to develop a testable model of resilience among family members of children with cancer. Resilience is a complex construct that may be modifiable. Once validated, the proposed framework will not only serve as a model for clinicians, but may also facilitate the development of interventions aimed at promoting resilience in family members of children with cancer.

Resilience in Family Members of Persons with Autism Spectrum Disorder: A Review of the Literature

Worldwide, caregivers find caring for children with Autism Spectrum Disorder (ASD) challenging. Family members must manage many aspects of care giving, which is demanding, overwhelming, and can affect the family members’ mental health. However learning how to be resilient may help family members overcome the stress and burden associated with caring for a person with ASD. A search was completed in Medline, PsycINFO, Proquest, Web of Science, and CINAHL using the key words “autism,” “caregivers,” “mothers,” and “fathers,” alone and in combination. Inclusion criteria were English language articles reporting studies with samples of children with ASD, as distinct from children with other intellectual or developmental disabilities. Fifty-eight articles that met these inclusion criteria were summarized and, from those, the authors selected 22 articles that included indicators of resilience. This integrative review highlights current research on resilience in adult family members of persons with ASD. Indicators of resilience, risk factors, protective factors, and outcomes of resilience were identified. The review indicates that parents of children with ASD who possess indicators of resilience are better able to manage the adversity associated with caring for children with ASD. Thus, enhancing resilience among family members of persons with autism may be beneficial to both the caregivers and care recipients.