Permanent Physical Impairment Research Articles

Wearable electronic devices in parasports: A focused review on para athlete classification.

Wearable electronic devices are being used to evaluate movement patterns, track workload, prevent injuries, and optimize performance in athletes. Para athletes have unique characteristics to consider separately from the general population. One such difference in competitive parasports includes consideration of athlete classification systems. These sport-specific classification systems consider athletes' eligible medical conditions that lead to permanent physical, visual, and/or intellectual impairments and objectively evaluate the impact of their impairments on sport functions. Para athletes are assigned sport classes and compete with athletes of similar functional levels. This promotes equitable opportunities to compete while minimizing the effect their impairment has on their sport performance. With recent reports of misrepresentation or incorrect and unfair classification providing unfair advantages to some athletes, parasports classification has been controversial. Having an objective, evidence-based, and fair classification system in parasports is critical to maintain the integrity of parasports competition. Wearable electronic devices have potential to provide more objective analysis of movement patterns in para athletes to assist in sport classification. This review identifies and analyzes the available literature on wearable electronic technology and its role in parasports classification. A comprehensive PubMed and Google Scholar search identified six articles included in this review. These studies used inertial sensors, motion capture systems, or surface electromyography in wheelchair basketball, rugby, tennis, sit skiing, and boccia. This review identifies the potential value of wearable electronic devices to assist in parasports classification. Additional studies are needed to create standardized protocols for each sport and sensor type.

Snake venom detoxification potential of selected Nigerian medicinal plants: a review

Snake envenomation is one of the neglected public health problems with high morbidity and mortality rate across the globe. Snakebite has led to several major health complications such as numbness and flaccid paralysis, damage to local tissue which eventually results in temporary and/or permanent physical impairment. In Nigeria however, lack of access to emergency treatment for snake envenomation has in no small measure contributed to the high rate of snake incidence. Though, a lot of drawbacks and limitations associated with the use of standard antisnake venom (ASV) include storage, side effects, expire in short time coupled with short supply. These factors made snake venom detoxification with ASV unaffordable to victims especially to people living in rural areas who are at high risk of snakebites. Therefore, the use of medicinal plants remains the only alternative for snake venom detoxification (SVD) in Nigeria especially in rural areas. This mini review reported the detoxification potentials of different medicinal plants (parts: leaves, stem bark, root, seed) of creeping foxglove (Asystasia gangetica L.), Resurrection plant (Bryophullum pinnatum Lam), Hammattan lily (Crinum jagus) wild custard apple (Annona sengalensis), plantain (Musa paradiasia) and finger root (Uvaria chamate), used to treat snakebite in Nigeria. Majority of these medicinal plants used by herbalists were validated by recent scientific works conducted on snake venom detoxification potentials. Bioactive antivenin compounds such as aristolochic acid, quercetin, kaempferol, resveratrol isolated from common Nigerian medicinal plants show very promising detoxification potential against snakebites. The authors of this review paper suggest that, more ethnomedicinal survey should be done to explore more plants with SVD potential for the development of effective medications.

Medical disputes related to advanced endoscopic procedures with endoscopic retrograde cholangiopancreatography or endoscopic ultrasonography for the management of pancreas and biliary tract diseases.

This study aimed to evaluate the characteristics of endoscopic retrograde cholangiopancreatography (ERCP) or endoscopic ultrasonography (EUS)-related adverse events (AEs) that eventually lead to medical disputes or claims on medical professional liability. Medical disputes for ERCP/EUS-related AEs filed in the Korea Medical Dispute Mediation and Arbitration Agency between April 2012 and August 2020 were evaluated using corresponding medical records. AEs were categorized into three sections: procedure-related, sedation-related, and safety-related AEs. Among a total of 34 cases, procedure-related AEs were 26 (76.5%; 12 duodenal perforations, 7 post-ERCP pancreatitis, 5 bleedings, 2 perforations combined with post-ERCP pancreatitis); sedation-related AEs were 5 (14.7%; 4 cardiac arrests, 1 desaturation), and safety-related AEs were 5 (8.8%; 1 follow-up loss for stent removal, 1 asphyxia, 1 fall). Regarding clinical outcomes, 20 (58.8%) were fatal and eventually succumbed to AEs. For the types of medical institutions, 21 cases (61.8%) occurred at tertiary or academic hospitals, and 13 (38.2%) occurred at community hospitals. The ERCP/EUS-related AEs filed in Korea Medical Dispute Mediation and Arbitration Agency showed distinct features: duodenal perforation was the most frequent AE, and clinical outcomes were fatal, resulting in at least more than permanent physical impairment.

An Assessment of the Relationship between Built Environment and Socioeconomic Factors with the Incidence of Meningococcal Meningitis in Kaduna Urban Area, Nigeria

Meningococcal meningitis is an airborne disease that has been a threat to human life in many regions of the world, especially in West Africa. The disease has caused permanent physical impairment to some of its victims and many lives have been lost due to the disease. Factors that are associated with the incidence of the disease which are geographically referenced include built environment, geographical location and climatic conditions. Others are socioeconomic and demographic factors. This study established the relationship between built environment and socioeconomic factors with the incidence of the disease. Data that were used include the incidences of the disease from 2007 to 2011, housing conditions, population density, number of house ownership, employment, income level, and the number of hospitals, schools and refuse dumps. Neighborhoods were used as the unit of analysis in the study. The method of analyzing the data includes factor analysis and some statistical techniques in Geographical Information System such as the Ordinary Least Square (OLS). The findings of the study reveal the spatial variations of the incidence of Meningococcal meningitis in Kaduna Urban Area (KUA). The study recommends that there should be strict observance of the development control regulations especially at the high density residential neighborhood. The model can also be used for other communicable disease to ensure the health of the public.

Evaluation of skin natural change function in split-thickness skin graft

Treatment for severe burns has improved rapidly in the last 20 years. Nowadays, patients can survive with burns covering up to approximately 90% of the body, although they often face permanent physical impairment. This type of research is a literature review. A literature review was conducted to gather information regarding the evaluation of skin natural change function in the split-thickness skin graft. This research is a type of review article that aims to obtain information about acne based on bio-markers. Source of data used secondary sources. The method of data collection through collecting data was from research articles taken within the last five years. Skin grafting remains an essential step on the reconstructive surgeon ladder. Meanwhile, the basic premise has remained similar results over the years. New techniques and devices have contributed to significantly improved functional and aesthetic results. Advances in the production of skin substitutes have provided better options to treat patients and will continue to be an essential and dynamic component of this field in the future.

Emergency Department visits due to firework accidents in the Reykjavik capital area from 2010 to 2022

Public use of fireworks is widespread in Iceland, and unfortunately associated with injuries. No prior comprehensive research has been done on firework accidents in Iceland. The goal of this study was to gather information about the extent, cause, and impact of firework accidents in the Reykjavik capital area. Text search was conducted in medical records to find visits to the Emergency Department (ED) resulting from fireworks accidents over the period December 2010 to January 2022. Medical records were reviewed for details of events and injury. Over the period 248 patients came to the ED after a firework related injury, 73% male. The age range was from 9 months to 79 years of age. Children were 114, 12 were younger than 6 years. There where overall 54 secondary accidents. In total 96 (39%) accidents were traced to a faulty firework. Rockets caused the most accidents 56 (23%), cakes 43 (17%) and handheld candles 32 (13%). Type of firework was not reported in 62 (25%) cases. 157 sustained a burn injury, of which 104 where on hands. Eye injury was found on 67 patients and 97 individuals had open wounds. 22 where admitted to the hospital for a total of 91 days. Nobody died but at least 13 sustained permanent physical impairment due to fireworks. Over the past decade, 21 patients on average presented to the ED annually with firework injury. 73% of those injured by fireworks are male. Children make up one half of the injured and one child 5 years of age or younger sustains a firework injury every year on average. Preventive measures against firework accidents should be expanded and more restrictive regulations on their use should be considered.

Health-Related Quality of Life after Pediatric Traumatic Brain Injury: A Qualitative Comparison of Perspectives of Children and Adolescents after TBI and a Comparison Group without a History of TBI.

The assessment of the impact of pediatric traumatic brain injury (TBI) on the health-related quality of life (HRQoL) of the children and adolescents affected can be ameliorated by a disease-specific instrument. Such an instrument does not yet exist. This qualitative study investigates how children and adolescents after TBI subjectively perceive their HRQoL and whether and how this differs from the perspective of individuals without a history of TBI. Eight problem-centered interviews were conducted with 11 children and adolescents around four years after mild TBI and with eight children and adolescents around three years after moderate to severe TBI. Nine problem-centered interviews were conducted with 25 participants without a history of TBI. The interviews were recorded and transcribed verbatim. The statements were assigned to inductively and deductively derived categories relevant to the HRQoL of children and adolescents after TBI and compared with those of individuals without a history of TBI. The HRQoL of children and adolescents after TBI tended to display both structural and content-related differences, independently of TBI severity, on several HRQoL dimensions, in contrast to the comparison group. For example, participants after TBI reported a broader range of negative emotions (such as worry, sadness, shame, and guilt), permanent physical impairments, felt that they were treated differently from others, and perceived cognitive limitations. The results of this qualitative study identified HRQoL dimensions that are relevant to children and adolescents after TBI and underlined the need for the development of a disease-specific instrument.

Detection and Visualisation of Pneumoconiosis Using an Ensemble of Multi-Dimensional Deep Features Learned from Chest X-rays.

Pneumoconiosis is a group of occupational lung diseases induced by mineral dust inhalation and subsequent lung tissue reactions. It can eventually cause irreparable lung damage, as well as gradual and permanent physical impairments. It has affected millions of workers in hazardous industries throughout the world, and it is a leading cause of occupational death. It is difficult to diagnose early pneumoconiosis because of the low sensitivity of chest radiographs, the wide variation in interpretation between and among readers, and the scarcity of B-readers, which all add to the difficulty in diagnosing these occupational illnesses. In recent years, deep machine learning algorithms have been extremely successful at classifying and localising abnormality of medical images. In this study, we proposed an ensemble learning approach to improve pneumoconiosis detection in chest X-rays (CXRs) using nine machine learning classifiers and multi-dimensional deep features extracted using CheXNet-121 architecture. There were eight evaluation metrics utilised for each high-level feature set of the associated cross-validation datasets in order to compare the ensemble performance and state-of-the-art techniques from the literature that used the same cross-validation datasets. It is observed that integrated ensemble learning exhibits promising results (92.68% accuracy, 85.66% Matthews correlation coefficient (MCC), and 0.9302 area under the precision–recall (PR) curve), compared to individual CheXNet-121 and other state-of-the-art techniques. Finally, Grad-CAM was used to visualise the learned behaviour of individual dense blocks within CheXNet-121 and their ensembles into three-color channels of CXRs. We compared the Grad-CAM-indicated ROI to the ground-truth ROI using the intersection of the union (IOU) and average-precision (AP) values for each classifier and their ensemble. Through the visualisation of the Grad-CAM within the blue channel, the average IOU passed more than 90% of the pneumoconiosis detection in chest radiographs.

Mucoadhesive Nanocarriers as a Promising Strategy to Enhance Intracellular Delivery against Oral Cavity Carcinoma.

Oral cancer, particularly squamous cell carcinoma (SCC), has posed a grave challenge to global health due to its high incidence, metastasis, and mortality rates. Despite numerous studies and favorable improvements in the therapeutic strategies over the past few decades, the prognosis of this disease remains dismal. Moreover, several drawbacks are associated with the conventional treatment; including permanent disfigurement and physical impairment that are attributed to surgical intervention, and systemic toxicity that results from aggressive radio- or chemotherapies, which impacts patients’ prognosis and post-treatment quality of life. The highly vascularized, non-keratinized oral mucosa appears as a potential route for cytotoxic drug administration in treating oral cancer. It acts as a non-invasive portal for drug entry targeting the local oral lesions of the early stages of cancer and the systemic metastasis sites of advanced cancer. The absorption of the poorly aqueous-soluble anti-cancer drugs can be enhanced due to the increased permeability of the ulcerous mucosa lining in the disease state and by bypassing the hepatic first-pass metabolism. However, some challenges in oral transmucosal drug delivery include the drugs’ taste, the limited surface area of the membrane lining the oral cavity, and flushing and enzymatic degradation by saliva. Therefore, mucoadhesive nanocarriers have emerged as promising platforms for controlled, targeted drug delivery in the oral cavity. The surface functionalization of nanocarriers with various moieties allows for drug targeting, bioavailability enhancement, and biodistribution at the site of action, while the mucoadhesive feature prolongs the drug’s residence time for preferential accumulation to optimize the therapeutic effect and reduce systemic toxicity. This review has been focused to highlight the potential of various nanocarriers (e.g., nanoparticles, nanoemulsions, nanocapsules, and liposomes) in conferring targeting, solubility and bioavailability enhancement of actives and mucoadhesive properties as novel tumor-targeted drug delivery approaches in oral cancer treatment.

Comparison of permanent physical impairment ratings according to government of India disability evaluation guidelines version 2001 and 2018

Comparison of permanent physical impairment ratings according to government of India disability evaluation guidelines version 2001 and 2018

Examining the association between traumatic brain injury and headache.

Traumatic brain injury is a common and major cause of disability and death that might require emergency neurological and neurosurgical interventions. Traumatic brain injury can result in temporary or permanent physical, cognitive and psychological impairments. One of the most common complications associated with traumatic brain injury is post-traumatic headache, associated with significant disability and reduced quality of life. Post-traumatic headache is a public health concern that can affect the long-term outcome of traumatic brain injury patients. Clinical symptoms of post-traumatic headache significantly overlap with common primary headaches such as migraine and tension-type headaches. Beyond neurobiological factors, psychological factors can play crucial roles in the initiation and sustainment of post-traumatic headache. While neurological mechanisms underlying post-traumatic headache remains unknown, different studies suggest various mechanisms such as physical damages to the cranial nerves and neck structure, hyper-sensitization of the pain modulatory pathway, and inflammation as underlying causes for the neurobiology of headache. I explore the hypothesis that traumatic brain injury is associated with headaches. In particular, I provide an overview of the neurobiology of post-traumatic headache, its diagnosis, presenting recent findings on the etiology, explaining similarities and differences between with primary headaches such as migraine and tension-type headache, discuss pharmacological and non-pharmacological interventions for the treatments, as well as emphasising on the psychological importance of post-traumatic headache.

English

The term body integrity dysphoria (BID) describes a discrepancy between the actual anatomical body constitution and the mentally represented body of a physically impaired person, which is often experienced as chronically dysphoric as well as the resulting desire of the affected person to have a (permanent) physical impairment (amputation, paralysis, etc.) in order to complement their own “true” identity. In the present study, potentially relevant factors influencing the quality of life of BID sufferers in the context of their coming-out process were examined. A questionnaire survey was used to ask BID sufferers (N = 50) about the reactions of their immediate social environment about their coming-out as a person suffering from BID and the influence of these reactions on the stress caused by the BID symptoms. Contrary to the expectations of those affected by BID and the great fear of social rejection prior to coming out, most of the time they experienced positive reactions (t test: p = .000). In addition, it became clear that coming-out can be a considerable relief for those affected by BID due to the social support experienced in this context (t test: p = .000). These results suggest that the coming-out of BID sufferers, in combination with the experience of being able to live out their own “true” identity within a liberal social environment without having to fear being labeled “abnormal" and excluded from participation in society can significantly reduce the likelihood of the occurrence of comorbid disorders such as depression, etc., the not uncommon result of coming-out is a significant reduction in the number of BID suffers. Comorbid disorders may frequently be the result of a defamatory self-perception shaped by the collective views of a conservative society.   Key words: Body integrity dysphoria, BID, Body Integrity Identity Disorder, BIID, coming-out, quality of life.

Family functioning and stroke: Family members' perspectives.

BackgroundStroke survivors often experience permanent or temporal physical and psychological stroke impairments. As a result, stroke survivors are often discharged to recover in their home environments and are cared for mostly by family members. Additionally, caregiving roles are often assumed without any formal training or preparation whatsoever. This can transform the family’s functional patterns due to adjustments that are made to accommodate the caregiving needs.ObjectivesTo explore the experiences and influence of stroke on families and on family functioning.MethodExplorative descriptive qualitative research design through the use of in-depth interviews were employed as the means of data collection. The sample size was eight (8) family members and was guided by the saturation point. Data was thematically analysed.ResultsFour themes emerged from the analysis: 1) reduced interactions with family members due to communication barriers, 2) the influence of stroke on family relationships, 3) emotional engagement in caring for a family member with a stroke and 4) financial implications of stroke on family functioning. This study found that stroke can influence the family functioning negatively as family members may be forced to change their functional patterns. However, some family members reported positive experiences, they developed a supportive structure to accommodate the new life of the stroke survivor.ConclusionUsing the McMaster’s model of family functioning, this study found that stroke is a threat to the six dimensions of family functioning: 1) problem-solving, 2) communication, 3) roles, 4) affective responsiveness, 5) affective involvement, and 6) behaviour control.

The learning, compliance, and psychological costs of applying for the Disability Support Pension

AbstractThe Disability Support Pension (DSP) provides financial support to more than 750,000 Australians with permanent physical, intellectual or psychiatric impairments that prevent them from engaging in employment. We sought to characterise the information, compliance and psychological costs of applying for the DSP. A cohort of 518 DSP applicants and recipients completed a questionnaire capturing medical, disability, benefit and demographic data. The questionnaire also included an Administrative Burden (AB) scale that was co‐developed with disability advocates and people with lived experience of DSP processes. Most respondents reported high or very high scores on three sub‐scales assessing information, compliance and psychological costs. In logistic regression models, DSP applicants reported greater costs than DSP recipients across all three scales. People with poorer health‐related quality of life, younger age and less education reported higher costs, consistent with the observation of an inequitable distribution of administrative burden in AB theory. All three scales had acceptable reliability. Study findings suggest that DSP applicants find the application process challenging and stressful. These effects are more pronounced in people who have applied for the DSP than those currently receiving the DSP, and in those with lower human capital.

STRUCTURING HUMAN AUGMENTATION WITHIN PRODUCT DESIGN

AbstractHuman augmentation is a thriving research field that aims to amplify human abilities through the development of technological improvements as an integral part of the human body. Human augmentation products may be made for anyone, ranging from healthy users wanting to enhance their human abilities to users who face temporary or permanent disabilities, physical impairments, or perilous situations that oblige them to use these products.This article attempts to introduce readers to the domain of human augmentation by providing a thorough formulation of the concept and its related terms to develop a more solid structural basis. Additionally, a categorical and dimensional classification of the field was given. Based on these findings, we then proposed a novel framework in the form of a diagrammatic presentation of both classifications, which could enable product designers to better understand and characterize the type of human augmentation product they are designing by determining its location in the diagram. Finally, the proposed framework was evaluated by introducing and classifying several significant human augmentation products most of which have proven to successfully exceed human abilities.

Complications in TLIF spondylodesis\u2013do they influence the outcome for patients? A prospective two-center study

Purpose Transforaminal lumbar interbody fusion (TLIF) is a widely accepted surgical procedure for degenerative disk disease. While numerous studies have analyzed complication rates and risk factors this study investigates the extent to which complications after TLIF spondylodesis alter the clinical outcome regarding pain and physical function.Methods A prospective clinical two-center study was conducted, including 157 patients undergoing TLIF spondylodesis with 12-month follow-up (FU). Our study classified complications into three subgroups: none (I), minor (IIa), and major complications (IIb). Complications were considered “major” if revision surgery was required or new permanent physical impairment ensued. Clinical outcome was assessed using visual analog scales for back (VAS-B) and leg pain (VAS-L), and Oswestry Disability Index (ODI).Results Thirty-nine of 157 patients (24.8%) had at least one complication during follow-up. At FU, significant improvement was seen for group I (n = 118) in VAS-B (–50%), VAS-L (–54%), and ODI (–48%) and for group IIa (n = 27) in VAS-B (–40%), VAS-L (–64%), and ODI (–47%). In group IIb (n = 12), VAS-B (–22%, P = 0.089) and ODI (–33%, P = 0.056) improved not significantly, while VAS-L dropped significantly less (–32%, P = 0.013) compared to both other groups.Conclusion Our results suggest that major complications with need of revision surgery after TLIF spondylodesis lead to a significantly worse clinical outcome (VAS-B, VAS-L, and ODI) compared to no or minor complications. It is therefore vitally important to raise the surgeon´s awareness of consequences of major complications, and the topic should be given high priority in clinical work.

Longitudinal changes in physical activity levels and fear of falling after hip fracture.

Due to global ageing, more people will suffer from hip fracture in the future, and many will be left with permanent physical impairments. The care burden for people post hip fracture is high. The aim of this study is to measure longitudinal changes in physical activity levels and fear of falling in people after hip fracture who return home after inpatient rehabilitation. Longitudinal observational study. Participants were recruited from three rehabilitation centres in Victoria, Australia. Self-reported fear of falling (Short Falls Efficacy Scale - International) and physical activity levels (Human Activity Profile - Adjusted Activity Score and Frenchay Activity Index) were assessed at 2 weeks, 3 and 6 months after discharge. Mobility (walking speed) and balance (Timed Up-and-Go test and Step Test) were measured at discharge from rehabilitation. Thirty-four participants (mean age: 82 years [SD 8]; 62% female) with unilateral hip fracture were recruited. Participants had moderately impaired balance and mobility at discharge compared to age-matched normative data; they were all discharged with a walking aid and were 40% slower in their walking speed. Participants had increased fear of falling and reduced physical activity 2 weeks after discharge, which improved significantly (p < 0.01) over the following 6 months, but scores were still lower than the normative values. At 6 months, participants also had moderate to high levels of fear of falling and were less active than the general population of similar age. Although fear of falling and physical activity improved in the 6 months following discharge, both remained negatively affected compared to normative data. Rehabilitation post hip fracture should include routine assessment of fear of falling as a potential barrier for return of physical activities.

Short and Long-Term Parental Posttraumatic Stress After a Child\u2019s Accident: Prevalence and Associated Factors

Studies on the long-term prevalence of parental posttraumatic stress symptoms (PTSS) following child accidental injury are scarce, and findings on risk factors vary. In this follow-up study (T2, n = 69) we determined the prevalence of parental PTSS 2–4 years after accidental injury of their child, compared with 3 months after the accident (T1, n = 135). Additionally, we examined the association between parental and child factors and PTSS severity. Children were 8–18 years old at the time of the accident. Parent and child PTSS was assessed by self-report. Other data were retrieved from medical records and a telephone interview. Parental PTSS was 9.6% at T1 and 5.8% at T2. Acute parental stress as measured within 2 weeks of the child’s accident was significantly associated with parental PTSS severity (T1 and T2), as was the child’s hospitalization of more than 1 day at T1 and the child’s permanent physical impairment at T2. To prevent adverse long-term psychological consequences we recommend identifying and monitoring parents at risk and offering them timely treatment.

Long-Term Posttraumatic Stress Following Accidental Injury in Children and Adolescents: Results of a 2\u20134-Year Follow-Up Study

In this study, we determined the long-term prevalence of posttraumatic stress disorder (PTSD) in children and adolescents after accidental injury and gained insight into factors that may be associated with the occurrence of PTSD. In a prospective longitudinal study, we assessed diagnosed PTSD and clinically significant self-reported posttraumatic stress symptoms (PTSS) in 90 children (11–22 years of age, 60% boys), 2–4 years after their accident (mean number of months 32.9, SD 6.6). The outcome was compared to the first assessment 3 months after the accident in 147 children, 8–18 years of age. The prevalence of PTSD was 11.6% at first assessment and 11.4% at follow-up. Children with PTSD or PTSS reported significantly more permanent physical impairment than children without. Children who completed psychotherapy had no symptoms or low levels of symptoms at follow-up. Given the long-term prevalence of PTSD in children following accidents, we recommend systematic monitoring of injured children. The role of possible associated factors in long-term PTSS needs further study.

Living on the edge: Family caregivers' experiences of caring for post-stroke family members in China: A qualitative study

BackgroundGlobally, one-third of the 15 million people with stroke suffer permanent physical, cognitive, and emotional impairment. Because of traditional Chinese culture and the limited development of the primary healthcare system, most stroke survivors are cared for and live with their family after hospital discharge. However, previous literature shows a lack of qualitative studies on family caregivers’ experience of caring for their relatives in China. ObjectivesThe aim of this study was to explore the experience of family caregivers taking care of stroke survivors in China. MethodsAn explorative design was used wherein qualitative semi-structured interviews were conducted with family caregivers in China. Family caregivers were selected from one city and three communities using a purposive sampling method until no new data were generated (n = 26). A thematic analysis was used for the data analysis in this study. FindingsFamily caregivers’ experience was described as living on the edge, which pulled their lives in multiple directions, created an unstable situation, and reduced their well-being and health. The participants believed they had total responsibility and felt that this was expected from both themselves and society. Little external understanding and insufficient support was emphasised, resulting in the caregivers feeling all alone, drained by caring, and like prisoners in their own lives. The family caregivers had to face all of the family events and make all of the decisions by themselves. They expressed love for their family members with stroke, but this was often overshadowed by feelings of sadness, depression, sensitivity, and anger. This resulted in an inability to see how things could improve and in the family caregivers being uncertain about the future. ConclusionAll of these findings increased understanding and added knowledge of this topic that has been seldom studied in China. Healthcare authorities and professionals should recognise and understand the lives and situations of family caregivers since their relatives had a stroke to further identify their difficulties and needs. Appropriate and effective support, both from government and society, should be planned and implemented for family caregivers to relieve them from caring for their relatives with stroke and maintaining the quality of their own lives.